Lymphedema People

acute_lymphedema

2007-10-02T17:39:27-07:00

Acute Lymphedema There are four types of acute lymphedema. Type One Acute Lymphedema The first type of acute lymphedema is mild and lasts only a short time, occurring a few days after surgery to remove the lymph nodes or after injury to the lymphatic vessels or veins just under the collarbone. The affected limb may be warm and slightly red, but is usually not painful and gets better within a week by keeping the affected arm or leg supported in a raised position and by contracting the musc…

adrenomedullin_and_the_development_of_the_lymph_system

2008-06-26T06:00:49-07:00

The recent discovery of an essential hormone in the proper development the lymph system in mice may have far reaching implications for either the prevention of or treatment of lymphedema in humans according to new studies released this previous week.

americans_with_disabilities_act

2008-06-22T10:15:43-07:00

Having lymphedema means having a loss of mobility and a loss of motion in the affected limbs. If you have abdominal lymphedema and/or other medical conditions, getting around, staying in a hotel, even doing shopping can be a time consuming and frustrating experience. This page provides info on the Americans with Disabilities Act of 1990.

an_etiological_study_of_lymphedema

2007-09-28T04:10:57-07:00

An etiological study of lymphedema based upon the Kinmonth classification as modified by Cordeiro. Introduction Lymphedema is a diffused edema of a specific region of the body and whose etiology is a dysfunction of the superficial lymphatic system and, in some rare cases, also affects the deep lymphatic system. As a result of lymphatic system overload, glossary:protein|proteins]] and liquids accumulate within subcutaneous cellular tissues causing them to increase in size. Weight is also incre…

anatomy_of_the_lymphatic_system

2007-11-26T18:27:21-07:00

What are the various “parts” of the lymphatic system and what exactly do they do? The lymphatic system is not really a separate system of the body. It is considered part of the circulatory system since it consists of lymph, a moving fluid that comes from the blood and returns to the blood by way of the lymphatic vessels. Lymph carries some nutrients around the body, especially fat. It also distributes germ-fighting white cells. Lymph resembles plasma, but is more diluted and contains only abo…

angioedema

2008-01-22T04:35:13-07:00

Related Terms: angioneutrotic edema, chronic recurrent angioedema, idiopathic angioedema, hereditary angioedema, oedema, allergic reactions, AAE, HAE, hereditary angioneutrotic edema, swelling, allergic angioedema, hives, urticaria, laryngoedema, anaphylaxis, chronic recurrent angioedema, idiopathic angioedema, hereditary angioedema, hereditary angioedema I, hereditary angioedema II, urticaria

angiomyomatous_hamartomas

2009-06-25T09:20:13-07:00

In our articles, our goal is to provide educational information on any and all conditions that are related or associated with the lymph system and to lymphedema. This page provides the most current information on angiomyomatous hamartomas, which is a rare type of tumor that originates from blood vessel tissue and forms most often in the inguinal (lower abdomen and groin) lymph nodes.

aqua_therapy_for_postsurgical_breast_cancer_arm_lymphedema

2007-10-03T09:43:37-07:00

Rehabilitation Oncology, 2004 by Tidhar, Dorit, Shimony, Avi, Drouin, Jacqueline ABSTRACT Background and Purpose. Women who undergo surgery for breast cancer are at high risk for developing lymphedema. The conventional treatment for lymphedema is complex lymphatic therapy (CLT). Complex lymphatic therapy has good outcomes during the intensive phase of lymphedema treatment, but it is often difficult to preserve these results through the maintenance phase. The purpose of this case report is to…

aqua_therapy_in_managing_lower_extremity_lymphedema

2007-10-03T09:46:22-07:00

Dorit Tidhar,BPT,Jacqueline Drouin,PhD,PT,and Avi Shimony,MD Lymphedema of the lower extremity is a complication that follows treatment for gynecologic cancers.1 The prevalence of lower ex-tremity lymphedema in women treated for these malignancies reportedly is 30%. However, among women with vulvar cancers who undergo removal of the inguinofemoral lymph nodes and radiother-apy, the prevalence increases to 47%.1,2

arm_and_leg_swelling_in_a_baby

2007-09-15T18:08:18-07:00

Home page: Lymphedema People The problem and questions begin when you discover that your beautiful new little baby has arms or legs that swell for no apparent reason. You take your baby to the doctors...one after another and all they seem to be able to do is shake their head and say “I don't know!”

arm_lymphedema

2009-06-30T08:00:46-07:00

Discussion Most arm lymphedema is a secondary condition caused by removal of lymph nodes for cancer biopsy, damage to the lymphatics from radiation or even chemotherapy for breast cancer. Other causes can include burns, various infections, injury or trauma.

arm_or_leg_swelling_after_cancer

2008-06-01T06:49:07-07:00

Arm and Leg Swelling After Cancer With the advent of better and more effective cancer treatments, the survival rate for all cancers has risen dramatically. With this progress, a new and often misunderstood and misdiagnosed complication has arisen.

artificial_lymph_nodes

2008-06-26T05:11:11-07:00

Another interesting research series I found regarding the creation of artificial lymph nodes. Please understand, these artificial nodes were used in the creation of a new immune response system in immunodeficient mice. The nodes did not transport lymph fluid and thus at the present time would not work for the treatment of lymphedema. But, perhaps, this cutting edge research is a strong first step towards that possibility.

artificial_lymphatic_system

2008-06-26T05:15:28-07:00

I ran across these articles researching lymphedema and possible treatment processes and found it intriguing. These three abstracts are the only information I could locate on an artificial lymphatic system. As soon as I can secure further information, I will update the page.

auricular_therapy

2008-06-01T06:54:35-07:00

A Review of the Medical Literature This past week in one of the online lymphedema support groups, we had discussions involving a new “type” of treatment method. It is called auricular therapy and it claims to treat and cure a number of serious ailments by acupuncture in the ear.

axillary_node_biopsy

2008-07-02T04:33:41-07:00

An axillary node biopsy or dissection has been the standard procedure to determine whether or not cancer has spread (metastasized ) to the lymph nodes. In this procedure numerous nodes are removed and submitted to the pathologist for diagnostic study.

bioimpedance_and_lymphedema

2009-07-05T06:34:58-07:00

One of the challenges in the treatment and management of lymphedema is the measurement of tissue composition, fluid amount or amount and skin condtion. In short, this is called body or tissue composition. These are important for for both the diagnoses, treatment and long term management of lymphedema.

blisters

2008-06-30T05:46:09-07:00

Synonym: Vesicle Because of the condition of the skin and the swelling, it is fairly common for people with lymphedema to experience blisters. It is important to treat these correctly as they can be an opening for bacteria. A blister is a lfuid filled “bump” or “bubble on the skin. It is an inflammatory response to skin trauma, injury or damage and is your body’s way of helping protect the injured area and to help it heal.

blood_blister

2008-06-30T06:54:29-07:00

Blisters, a common skin injury has two basic forms. First is a “regular” blister which is filled with lymph. The other type of called a blood blister, and it is a bubble of blood that forms under the skin as a result of a pinch, bruise or trauma. The blisters form from ruptured capillaries and contain blood/bloody serum. It is usually inflicted upon by injury.

bunions

2008-07-03T03:24:06-07:00

Synonym: hallux valgus; hallux abducto valgus Just as common as corns and calluses, bunions are swellings that develop generally on the inner side of the fot around the base of the big toe. These very painful swellings are more serious then a corn or callus and cause severe problems with wwalking, can easily become inflamed and sometimes will cause calluses and lesions (sore or ulceration). With lymphedema any open area can quickly develop into a serious infection.

buttock_lymphedema

2009-06-29T05:41:18-07:00

Generally, we associate lymphedema as a potential complication of lymphatic damage to either the inguinal nodes or abdominal nodes. Generally, this is expressed as leg lymphedema. Here is the first report made on secdonary lymphedema with both erysipelas and pelvis surgery.

calluses

2008-07-03T02:46:47-07:00

Many of us with lymphedema report constant problems with calluses, and corns. These growths, which is a thickening of the skin is a response to constant pressure. Or friction. Possible complications, especially with lymhpedema or ddiabetes would be an ulceration or infection developing at the sight of the callus. Also, they can be incredibly painful. At that point we need to treat or remove them.

can_bone_fractures_cause_lymphedema

2008-02-16T03:19:27-07:00

Over the past few years, there have been several members of my various groups who have reported lymphedema triggered by bone breaks. These cases involve both arm lymphedema and leg lymphedema. This is highly unusual and even many lymphedema experts are unaware this can occur.

cancer_associated_with_lymphedema

2008-06-01T06:59:27-07:00

As time has progressed and there has been a greater understanding of the pathophysiology of lymphedema, it has become clear that lymphedema in and of itself can set the stage for the development of secondary cancers. There are two broad groups of these cancers. First, lymphatic cancers and secondly skin cancers.

cat_scratch_fever

2008-06-26T05:56:54-07:00

Ok, I can see the raised eyebrows now. What in the world is a page on cat scratch fever doing on a lymphedema website? I have included cat scratch fever in the list of types of infections because of the number of cats people have as pets and because this infection seriously effects the lymph nodes. Lymphedema patients ar particularly susceptible due to the localized immunodeficiency of the lymphedematous limb.

complications_of_breast_cancer_radiotherapy

2008-06-01T07:00:42-07:00

I am including this page on the complications associated with breast cancer radiation therapy after a discussion in one of the lymphedema support groups. Arm lymphedema has long been an easily identifiable complications of this treatment, but there are numerous other ones as well. These include many shoulder, elbow and joint problems.

complications_of_lymphedema

2008-06-01T07:08:53-07:00

When I first started Lymphedema People just 3 ½ years ago, there was basically a short list of complications associated with lymphedema. As time has continued and studies have bee completed and as there has been better follow up on lymphedema patients, the list of complications has expanded.

compression_bandages_for_lymphedema

2007-11-26T19:58:11-07:00

An essential part of the treatment and management of lymphedema are compression bandages. For me, it is an automatic part of my daily ritual that after my shower, applying skin lotion comes compression wrapping of my legs. This page gives complete information on what compression bandages are, what they do, how to wrap your limb and the care of your bandages.

compression_garments_stockings_for_lymphedema

2008-07-20T18:50:17-07:00

There are three broad groups of compression appliances we use in the treatment and mangement of lymphedema. First are the compression bandages that are generally used during the treatment phase and that we wrap our legs or arms with each day. Secondly are the compression garments referred to generally as compression stockings. After our treatments are complete and the limb is reduced as far as we can get it through MLD or CDT the next step is in wearing these compression stockings.

compression_pumps_for_lymphedema_treatment

2008-06-01T07:11:46-07:00

Put a crowd of lymphedema patients, therapists and doctors together and nothing will start a heated debate like the topic of using pneumatic compression pumps for the treatment of lymphedema. Compression pumps were at one time a standard of treatment for lymphedema. These older types referred to simply as compression pumps consist of an inflatable garment for the arm, leg, or foot and an electrical pneumatic pump that fills the garment with compressed air. The garment is intermittently inflated…

contribution_via_paypal

2008-11-14T18:45:05-07:00

Thank you for your interest in making a donation! Make a Donation via PayPal (Please click the link above to make a donation...) All donations are applied to hosting costs. Finances are managed by Brad Clevenger (omno at omno dot org).

corns

2008-07-02T07:19:20-07:00

Discussion Many of us with lymphedema report constant problems with corns and calluses. These growths, which is a thickening of the skin is a response to pressure. For us it is not only the normal pressure of a shoe, but pressure caused by the swelling and in our wearing shoes that often do not fit properly.

cutaneous_periarteritis_nodosa

2008-06-08T10:52:31-07:00

Cutaneous periarteritis nodosa Discussion Polyarteritis nodosa (PAN) presents pathologically as an ongoing segmental inflammatory response within the media of small and medium sized muscular arteries. This page is regarding Cutaneous polyarteritis nodosa, one that effects the skin.

deep_oscillation_therapy

2007-11-25T10:53:22-07:00

There is a new treatment modality that is hitting the lymphedema world. It is called Deep Oscillation Therapy. Classified as an alternative or complementary medical treatment, it was originally marketed as a treatment tool for muscle relaxation, anti-inflammatory action, wound healing and skeletal injuries.

directory_of_lymphedema_articles_on_html_pages

2008-06-25T05:29:40-07:00

Use this as a quickie directory list of all articles in our original htm index. We have aproximately 340 articles - many of which have just been updated and or being dated. All About Lymphedema - On Wiki Sept 10, 2007 Our new Wiki page Lymphedema has updated and replaced this page on general lymphedema information

diuretics_are_not_for_lymphedema

2007-11-18T10:05:15-07:00

Because of the incredible lack of awareness and/or knowledge of lymphedema in the medical community, it is very common to hear of lymphedema patients speak of being prescribed diuretics (water pils) by their physcians in attempting to treat this condition.

does_lymphedema_treatment_spread_cancer

2008-06-01T07:14:10-07:00

For many many years, one of the sacred myths of the lymphedema world was that you should never do complete decongestive therapy (or) manual decongestive therapy on a patient with active cancer. The general belief was that the CDT/MLD would promote the spread (metastasis) of the cancer.

edema

2008-06-01T07:17:54-07:00

Related terms: Edema, Oedema, Lymphedema Edema or Lymphedema Not all swelling is lymphedema, some is edema caused by an underlying medical condition. This section includes articles that will help explain the difference. If you have unexplained swelling, it is crucial for you to work with your doctor to find the underlying cause. Don't assume it is lymphedema. You must get treatment for the condition that is causing your edema.

editorial_board

2009-08-21T02:01:35-07:00

Pat O'Connor, (CPAR, PCSM) - 'Papa-Bear' - Founder, Executive Administrator Unless otherwise noted, almost all LympedemaPeople pages were authored by Pat. His education includes degrees in History, Political Science and Social Science, with graduate studies in philosophy and religion. Professional designations include Certification in Customer Service Management, Advanced Certification Patient Account Representative, formerly licensed in Life and Health Insurance (Oregon). Pat is a beautiful pe…

enhance_your_understanding_of_lower_quadrant_lymphedema

2008-06-01T07:20:34-07:00

Ting-Ting Kuo, PT, MS Clinical Specialist, Lymphedema New York University/Rusk Institute of Rehabilitation Medicine Patients undergoing any type of lymph node dissection or radiation therapy are at risk for developing what is becoming an increasingly recognized and acknowledged potential side effect: lymphedema. Lymphedema is localized retention of protein-rich fluid that can result in chronic swelling and lead to episodes of cellulitis and :infections associatedwith l…

exercises_for_lymphedema

2008-06-01T07:22:25-07:00

Whether you have arm lymphedema or leg lymphedema, exercise is still critical to your overall health and a vital part in successfully managing lymphedema. LYMPHEDEMA AND EXERCISE One thing that really bothers me is when I hear of people with lymphedema who give up on any activity of exercise because they have this condition. You have to want more from life than just being a couch potato, exercising only your thumb as you click that TV remote.

extraperitoneal_para-aortic_lymph_node_dissection_eplnd

2008-01-22T04:10:51-07:00

Retroperitoneal Lymph Node Dissection Laparoscopic Retroperitoneal Lymph Node Dissection Because lymph node dissection in the staging and diagnosis of cancer is a leading cause of secondary lymphedema, we have included pages on axillary node biopsy, Sentinel Node Biopsy, Small Needle Biopsy and Lymphoscintigraphy

family_medical_leave_act

2008-06-22T10:13:27-07:00

Let's face it, lymphedema isn't simply a medical condition that one has with no complications, associated conditions or problems. Out of the blue, we can get hit with that massive infection. For those of us with cancer we made need additional biopsies, chemotherapy or additional radiation. There may be times of medical emergencies and situations when we absolutely need to take time off from work or are simply unable to work.

farrow_wrap

2009-03-20T07:26:37-07:00

Daily compression wrapping is a critical part of the treatment and management of lymphedema. Many lymphedema patients, however, find it incredibly difficult to properly wrap their legs consistently. This often leads to patient noncompliance and eventually causes their lymphedema to worsen with increased complications, swelling, draining wounds, more infections and substantially increased pain.

female_genital_lymphedema

2009-07-05T08:15:18-07:00

With anyone male or female that has lymphedema of the lower limbs, genital lymphedema is a very real possibility. This is especially true of those whose lymphedema expresses itself early in childhood. While this subject may embarrass some, there needs to be discussion and enlightenment on it.

financial_report

2008-08-07T13:34:09-07:00

Your assistance is greatly appreciated! Make a one-time donation, help keep this resource free and available to everyone. - Total - Donations to Date 175 ---------- Lymphedema People owes a debt of gratitude to the following individuals, for helping to make Lymphedema People possible.

foot_care_for_lymphedema

2008-07-02T06:39:15-07:00

Most people who have leg lymphedema also will have foot involvment. Thus, taking care of our feet becomes even more critical for lymphedema patients. Feet that have damaged skin, cuts, scrapes or any open areas become entry foci for bacterial infections associated with lymphedemainfections. Feet with unhealthy skin can become an open door for foot fungal infections. Both can cause further complications and worsening of our lymphedema.

fungal_infections_associated_with_lymphedema

2008-04-27T04:44:14-07:00

For those of us with lymphedema, proper skin care is essential to our health and well being. The skin must be cared for correctly and every effort must be made to avoid fungus and fungal infections. If after all we do, we acquire one, it must be treated promptly. These fungal infections can be catastrophic.

giant_scrotal_elephantiasis_of_inflammatory_etiology_a_case_report

2007-11-23T15:44:55-07:00

Stefan Denzinger,1 Elke Watzlawek,1 Maximilian Burger,1 Wolf F Wieland,1 and Wolfgang Otto Corresponding author. Stefan Denzinger: stefandenzinger@gmx.de; Elke Watzlawek: ewatzlawek@gmx.de; Maximilian Burger: maximilianburger@gmx.de; Wolf F Wieland: wieland@caritasstjosef.de; Wolfgang Otto: wolfgang1.otto@klinik.uni-regensburg.de Received February 15, 2007; Accepted June 2, 2007.

guidelines_on_lymphedema

2009-07-05T06:58:48-07:00

These guidelines, originally came from an article from the American Lymphedema Society and even though they are “aged” are still valid. 1. Keep the entire at-risk quadrant spotlessly clean. Natural gentle cleansing products are strongly encouraged. Dry skin in a gentle but thorough non-vigorous fashion. Pay special attention to creases in the skin and the areas between toes and fingers.

how_to_appeal_a_denial_of_social_security_disability_benefits

2008-06-20T15:20:30-07:00

OK, you have gone through the hassle of applying, endured the wait and frustrations and now find yourself denied. What do you do now? Remember, as we said in our page How to Apply for Social Security Disability Income, it is possible to obtain SSDI when you have lymphedema.

how_to_appeal_a_denial_of_supplemental_security_income

2008-06-20T13:57:55-07:00

OK, you have gone through the hassle of applying, endured the wait and frustrations and now find yourself denied. What do you do now? Remember, as we said in our page How to Apply for Supplemental Security Income, it is possible to obtain SSI when you have lymphedema.

how_to_apply_for_social_security_disability_income

2008-06-22T10:14:49-07:00

In our page Social Security Disability Insurance page, we described the basics of SSDI. In this page, we present basic information on how to apply for the benefit. Since lymphedema is not listed in the Social Security Bluebook of recognized disabilities, we may need to take some special actions and build our case on the disabling factors of our condition.

how_to_apply_for_supplemental_security_income

2008-06-20T14:08:15-07:00

Our previous page on Supplemental Security Income gave an overview and description of SSI. This page will help in the application process. Our next page will be on How to Appeal a Denial of Supplemental Security Income. Since lymphedema is not listed in the Social Security Bluebook of recognized disabilities, we may need to take some special actions and build our case on the disabling factors of our condition.

how_to_assess_the_size_and_composition_of_a_lymphedema_limb

2007-11-22T04:35:34-07:00

From a presentation at the 2000 Conference of the British Lymphology Society Dr. Anthony Stanton History and examination This is most important: ask the appropriate questions and then carefully examine the limb. History of the presenting complaint.

how_to_choose_a_lymphedema_therapist

2008-06-01T07:31:05-07:00

From time to time members of our various groups have asked, “just how do you go about finding a credible lymphedema therapist? What do you look for and what questions should you be asking?” MLD or CDT is a must in any treatment program Also, I need to mention a growing concern of mine when it comes to a treatment program. There is an increasing trend among therapists to not due MLD or CDT. Instead they treat through compression bandaging. It is my opinion that MLD/CDT is the critical…

how_to_choose_a_primary_care_doctor

2008-06-01T07:33:58-07:00

One major concern lymphedema patients have is in how to find a primary care doctor when you have this condition. There are a few “rules of thumb” I use. First, do they know enough to recognize lymphedema? Secondly, do they know enough to refer you to a certified lymphedema therapist for the correct treatment?

how_to_diagnose_lymphedema

2007-12-02T08:13:04-07:00

Diagnosing Lymphedema by Physical Examination Important Questions to Ask Your Patient Out thier Family History Understand the patients personal medical history CONNIE M. SARVIS, RN, BN, MN, CON(C) CONNIE SARVIS is a wound consultant at Seven Oaks General Hospital in Winnipeg, Manitoba, Canada. KEY WORDS: lymphedema, lymphangitis, deep vein thrombosis, filariasis, lymphoscintigraphy, Kaposi-Stemmer's sign, decongestive lymphedema therapy, manual lymph drainage

how_to_evaluate_complementary_and_alternative_medicine

2007-10-08T07:18:26-07:00

Educating yourself about complementary and alternative medicine helps you determine whether its treatments are worth exploring. Follow these suggestions to help you assess the claims. Complementary and alternative medicine may give you additional treatment options, but while some of those options can help you, others can hurt you. When considering complementary and alternative medicine, steer a middle course between uncritical acceptance and outright rejection. Be open-minded yet skeptical at t…

how_to_file_a_complaint_against_your_insurance_company

2008-06-19T08:25:12-07:00

After we have submitted an appeal, failed in mediation and exhausted all attempts of resolving a problem with our health insurance company, our final option before anctually hiring an attorney is to file a formal complaint against the company with your state insurance commissioner. Remember, when you have lymphedema, you are very often you best advocate.

how_to_file_a_health_insurance_appeal

2008-06-19T08:24:01-07:00

A problem, we who have lymphedema often face are denials from insurance companies. At this time, there is no uniform national standard for the treatment of our condition. Many insurance companies will pay for therapy, but not compression garments or equipment. Others may give you trouble with needed diagnostics tests and/or present problems when it comes to treating complications. When you plan any treatment, whether your have leg_lymphedema or arm_lymphedema, you will want to study this impo…

how_to_find_a_lymphedema_therapist

2008-04-09T16:12:21-07:00

It is important for the lymphedema patient to understand that there is an important difference between what we know of as massage therapy and the type of decongestive therapy that is the protocol treatment for lymphedema Traditional massage therapy is not treatment for lymphedema.

how_to_have_healthy_nails

2008-01-27T17:26:02-07:00

Having healthy nails is as important to those with lymphedema as having healthy skin. Any break, hanggnail, tear could lead to celluitis infections. Unhealthy nails also become more susceptible to fungal infections and other problems. These infections, whether bacterial or fungal will do further damage to our system and cause a worsening of our lymphedema.

how_to_plan_a_local_lymphedema_event

2008-06-01T08:20:16-07:00

Become an awareness ADVOCATE right where you live!! Planning and Executing a Local Lymphedema Awareness Event Earlier, we had some discussion of forming support groups for lymphedema and I posted an article how to start a lymphedema support group.

how_to_prevent_errors_in_your_medical_care

2007-10-08T07:07:06-07:00

Medical errors are one of the Nation's leading causes of death and injury. A recent report by the Institute of Medicine estimates that as many as 44,000 to 98,000 people die in U.S. hospitals each year as the result of medical errors. This means that more people die from medical errors than from motor vehicle accidents, breast cancer, or AIDS.

how_to_prevent_lymphedema

2008-06-01T08:24:07-07:00

You can not absolutely prevent lymphedema if your lymphatic system has been damaged or compromised and you are at risk. But there are certain steps you can take that can that can lessen your chances of getting it or will help lessen the severity of it should it happen.

how_to_start_a_lymphedema_support_group

2007-09-13T18:07:14-07:00

Become a lymphedema advocate right in the community where you live! The possibilities are limitless for the potential of lymphedema support groups! We at the NLN know that it is support groups nationwide that make the difference in putting on the pressure for issues such as treatment, research, and reimbursement.

how_to_treat_a_lymphedema_wound

2007-12-06T05:02:19-07:00

Everyone of us will from time to time get wounds on our lymphedema limbs. If your a clutz like me, you will get them from accidents. They also may be caused by insects bites, such as ants or mosquitos. More often however, there will be times when our skin just pops open and starts draining. When this happens, you must take care of the wound immediately. The fluid that seeps out will very quickly cause surrounding skin tissue to deteriorate and in no time that tiny wound can become a very serio…

how_to_understand_clinical_trials

2008-06-01T08:36:10-07:00

I have often referred to the need for clinical trials to substantiate claims made by makers of various “would be” treatment modalities. With the surge of new proposed treatments available for lymphedema, it becomes even more important for us to insist on the process of clinical trials. This is also one of the foundations of what is known as evidence based medicine.

hyperkeratosis

2008-07-03T06:26:35-07:00

Hyperkeratosis and Lymphedema One of the complications of long term lymphedema is a condition referred to as hyperkeratosis and is usually found in leg lymphedema versus arm lymphedema. Hyperkeratosis is a condition where in the body produces excessive protein called Keratin, resulting in the thickening of the skin. The hyperkeratosis associated with lymphedema also is a thickening of the skin layers due to increased fibrosis. and is more common in late stage two or stage three.

impetigo

2007-12-06T04:10:08-07:00

Discussion Impetigo is a common skin infection, generally effecting children more so then adults. Statistics indicate that approximately 10% of skin infections/problems that occur in the US are cases of impetigo. The exception is the lymphedema patient. Due to the immunocompromised condition of our lymphedematous limb, we are much more susceptible to infections. In fact, if discussions in our online support groups is any indication, impetigo is the third most common infection we come down w…

infections_associated_with_lymphedema

2009-09-11T04:06:44-07:00

Related Infections: Cellulitis, Lymphangitis, Lymphadenitis, Erisypelas, Impetigo, Cat Scratch Fever, Cutaneous Abscesses, Scalded Skin Syndrome, Necrotizing Fascitis, MRSA Methicillin Resistant Staphylococcus Aureus I feel it is important to have an understanding of the various types of infections that we face with lymphedema. These infections include cellulitis, lymphangitis, and erysipelas.

infectious_disease_doctor

2007-11-21T09:26:20-07:00

I am a firm believer in the concept of a “team” approach to the management and treatment of lymphedema and its associated complications. What is a Team Approach The team approach is a group of medical providers working together for the well being and health of the lymphedema patient.

injectable_skin_wrinkle_removers

2008-06-07T19:46:27-07:00

Cosmetic Procedures and Lymphedema Cosmetic surgeries and procedures to make us look younger are a multi-billion dollar industry that seems to b growing exponentially as we strive to hide our age and look more beautiful. We of the Western world seems to be driven in a frenzy to deny and hide our age, as if growing older is some type of horrible taboo to be avoided at all costs.

insurance_codes_for_lymphedema

2008-06-22T22:15:24-07:00

CPT-9; HCPCS Procedure Codes; HCPCS Modifiers; Related Codes If there is any question, you must check with the specific insurance company involved Covered ICD-9-CM Edema or Lymphedema Codes 125.0-125.9 Filarial lymphedema 457.0 Post-mastectomy lymphedema syndrome 457.1 Other lymphedema (praecox, secondary, acquired/chronic, elephantiasis) 457.2 Lymphangitis 457.8 Other noninfectious disorders of lymphatic chan…

interstitial_fluid

2007-09-17T17:08:59-07:00

Everyone of us with lymphedema has heard that our swelling is due to the collection of interstitial fluid and the lymphatic system’s inability to remove it. But, what exactly is interstitial fluid? What does it do and what is it made of? Interstitial fluid (or tissue fluid, or intercellular fluid) is a solution which bathes and surrounds the cells of multicellular animals.

klinefelter_syndrome

2008-02-22T07:35:56-07:00

This condition was first identified by Dr. Harry Klinefelter at the Massachusetts General Hospital in Boston. A report published he and his coworkers reported case studies on nine men who had enlarged breasts, sparse facial and body hair and an inability to produce sperm. Now more appropriately referred to as XXY Male of XXY Male Syndrome, males born with this condition have an extra sex chromosome XXY instead of the usual genotype XY. It is associated with a 47XXY karyotype and statistical…

klippel_trenaunay_weber_syndrome

2008-06-12T17:28:46-07:00

Related Terms Parkes Weber syndrome, PWS, Klippel-Trenaunay syndrome, KTS, Kasabach-Merritt syndrome, angioosteohypertrophy syndrome, cutaneous capillary malformation, congential vascular nevus, capillary hemangioma, port-wine stain, lymphedema Clinical Features First described by French physicians Klippel and Trenaunay in 1900, this syndrome is characterized by port-wine stain (capillary hemangioma), varicose veins and bony and soft tissue hypertrophy involving an extremity.

launchpad

2008-06-01T06:50:04-07:00

Very generally, lymphedema describes the condition of (or the physical symptoms of) swelling of a leg, arm, or even abdomen, resulting from a malfunction of (or damage to) the lymph system. The lymph system is responsible for the flow of fluids that carry both the food and waste for cells. Hence, lymph-edema. These are, of course, dramatically oversimplified and technically inaccurate statements. However, this should be a fair start if you do not know what lymphedema is.

leg_lymphedema

2008-06-25T04:46:00-07:00

Traditionally, leg lymphedema has been thought of as a primary and or hereditary lymphedema condition. However, with cancer treatment become much more effective and with so many more cancer patients not only surviving cancer but literally achieving a cure, more and more incidents of leg lymphedema are coming to the forefront. We have long understood breast cancer as a leading cause of secondary lymphedema, but the frightening truth is that as statistics are kept we are finding similar ratios amo…

leg_swelling_after_prostate_cancer

2008-06-12T17:28:25-07:00

Have you had prostate cancer and now your leg is swelling? With the advent of better and more effective cancer treatments, the survival rate for all cancers has risen dramatically. With this progress, a new and often misunderstood and misdiagnosed complication has arisen. Many cancer survivors , having overcome cancer, find themselves with sudden and often unexplained swelling, usually of the arms or of the legs.

letter_of_medical_necessity

2008-06-20T14:10:14-07:00

Because lymphedema is not well understood, it may be necessary to file a Letter of Medical Necessity for either a proposed treatment or in conjunction with appealing an insurance company denial of coverage. This section will provide information as to what these letters should contain and will provide links for further assistance.

lipedema

2009-07-05T07:11:48-07:00

Key Words: lipedema, lipoedema, lipodema, lipodystrophy, lipadema, lipo-lymphedema, painful fat syndrome What is lipedema: Lipodema is a medical condition that is often confused with lymphedema. The individual with this condition may appear to be simply obese and/or to have extremely swollen legs and swollen abdomen. The condition is an uneven distribution of fat cells in the sub-cutaneous regions generally in the legs or abdomen. One major frustration of people with lipodema is that they ar…

liposuction

2007-11-18T11:21:46-07:00

A new and still somewhat controversial treatment for lymphedema has emerged from Sweden. Head of the lymphedema unit in the department of plastic and reconstructive surgery at Malmo University Hospital, Dr. Hakan Brorson reports that in the 70 lymphedema patients he treated with this method said that his patients had complete reduction of swelling with no recurrence.

lower-extremity_lymphedema_in_a_patient_with_gynecologic_cancer

2009-07-05T07:18:53-07:00

Kathleen Appollo, RN, BSN, OCN Oncology Nursing Forum – Vol 34, No. 5, 2006 Case Study H.F. is a 56-year-old woman who presented to the gynecologic oncology department at a major comprehensive cancer center after an endometrial biopsy revealed an International Federation of Gynecology and Obstetrics grade III serous carcinoma of the endometri- um. In addition to relevant endometrial cancer statistics, she received information about choices for treatment. The standard surgical treatment at th…

lymph_fluid

2008-06-01T08:46:37-07:00

Lymph is a clear-to-white fluid made of: ·Fluid from the intestines called chyle, which contains proteins and fats ·Red blood cells ·White blood cells, especially lymphocytes, the cells that attack bacteria in the blood. First of all, lymph is important - as important as blood or oxygen. While loss of the lymph system would not be as immediately fatal, it would be fatal nonetheless - in less than 72 hours. Lymph is blood plasma after it has carried its nutrients into the body's tissues, dro…

lymph_node_transplant

2009-09-11T03:57:06-07:00

This past year, we had quite a discussion on a newer type of experimental treatment for lymphedema, so I have included two pages of related information, During this past year, we had quite a discussion on two newer concepts in the treatment and management of lymphedema.

lymph_nodes

2008-08-07T03:09:45-07:00

Any of us with lymphedema are well aware of the term “lymph nodes. We all understand that mass removal of lymph nodes for cancer biopsy is the leading cause of secondary lymphedema and that missing or malformed lymph nodes (in addition to lymphatic distortions) is one of the reasons for primary lymphedema.

lymph_vessel_transplant

2008-06-26T05:53:52-07:00

During this past year, we had quite a discussion on two newer concepts in the treatment and management of lymphedema. These two treatments are lymph vessel transplant and lymph node transplant. In truth, the concept is not new and I found an article first published in 1981 proposes lymph vessel transplantation and subsequently an experiment on dogs.

lymphangiogram

2007-09-30T11:29:11-07:00

Even though this particular radiological test for lymphedema is long outdate and replaced by lymphoscintigraphy question still pop up in our various groups and in our forums. I had one done at Jackson Memorial Hospital in Miami in 1966. The test showed I was missing significant inguinal lymph nodes. This was not particularly surprising since I was born with Milroy's Syndrome.

lymphangiomatous_papules

2008-06-01T08:49:27-07:00

Long term lymphedema can present with a significant number of skin or dermal complications. Most of these are types of skin growths and plaques directly related to decreased vascular and or lymphatic flow. While most of these are benign, it is still important for the treating physician to understand the necessity of having these growths biopsied to determine whether or not they are malignant.

lymphangitis

2008-06-01T08:50:22-07:00

Discussion Lymphangitis Often confused with and called cellulitis; lymphangitis is an inflammation or infection of the lymphatic channels from an infection beginning elsewhere in the body. Due to the immuncompromised limb, lymphedema patients are quite susceptible to this infection.

lymphatic_filariasis

2008-06-01T08:52:20-07:00

Discussion Lymphatic Filariasis is the leading type of lymphedema worldwide, affecting an estimated 120 million people. It is an endemic conditions located in the tropical regions of the world. These areas include SE Asia, the Indian sub-continent, Africa, and areas of South America.

lymphatic_system_response_to_trauma

2008-01-13T07:28:56-07:00

Ask just about anyone with lymphedema about the relationship between trauma injury and the lymphatics and they will be quick to tell you that trauma causes edema and that sometimes the edema becomes permanent, which means lymphedema. As one person recently wrote to me “…However, we already know that any traumatic injury to tissue containing lymphatics (including the lymphatics in bone marrow and possibly the Haversian canals of the bony formations themselves) will likely result in some kind of …

lymphedema

2009-09-11T05:38:58-07:00

Lymphoedema Our Home Page: Lymphedema People E-mail: It is estimated that 120 million people throughout the world suffer from this condition in one form or another. Furthermore, tens of thousands are added each day. Let's explore and learn together about one of the least understood, but most prevalent, medical conditions that exists today.

lymphedema_advocacy

2008-07-03T04:19:50-07:00

Lymphedema is an incredibly complex medical condition in that not only do we as patients have to educate the medical community, but we, ourselves, must be our own advocates. Insurance coverage for lymphedema is minimal at best and patients often go through a nightmare maze appealing, getting referrals, authorizations and even medications.

lymphedema_after_breast_cancer

2008-07-02T04:55:12-07:00

Studies on Risk Assessment and Prevention Aggressive research continues on techniques to assess the risk of arm lymphedema after breast cancer diagnosis and treatment and in ways to prevent it. From the research available, it would seems appropriate that a multifocal approach would be the best practice. This multifocal approach would include The use of sentinel node biopsy versus axillary node biopsy, exploration in the use of the small needle biopsy; assessment of tissue type which includes…

lymphedema_after_cancer_-_how_serious_is_it

2008-07-02T04:35:03-07:00

NCI Cancer Bulletin May 29, 2007 - National Cancer Institute Many people who survive cancer will suffer from a serious side effect of treatment known as lymphedema, and they may not even know about it. The lymphatic system comprises a very fine network of vessels and filtering nodes that circulate lymph (the fluid that bathes cells with nutrients and helps clear away waste and infection) throughout the body. Lymphedema results when part of this system is interrupted - when lymph nodes …

lymphedema_and_autoimmune_diseases

2008-06-25T09:32:59-07:00

Notice: I am not a doctor nor am I trained in any medical profession. The information presented here is my own opinion based on experience and research Very often in our many support groups, lymphedema patients will speak of other conditions they have and ask if they are connected. In doing research into that question and the particular disease in question, I look for how many patients have that particular condition. If only one or if only a few have it, then I generally consider it not real…

lymphedema_and_high_blood_pressure

2009-06-29T05:51:14-07:00

Hypertension Does lymphedema cause hypertension (high blood pressure)? Another question that often surfaces in the online lymphedema groups regards whether or not lymphedema can cause hypertension. There is clinical evidence that some syndromes, such as Klippel Trenaunay Weber, for example) that present with lymphedema as a complication can have venous hypertension as a complication as well. (1)

lymphedema_and_medicare

2008-06-22T12:14:16-07:00

Medicare and Medicare coverage continues to be a very uphill battle for those of us with lymphedema. While the Women’s Health and Cancer Rights Act (WHCRA) mandates that all insurance companies and HMOs provide coverage for physical complication of mastectomy including lymphedema, other secondary lymphedemas and primary lymphedema continues to have very limited coverage. Clearly, there is a significant need for legialtive reform. The tragic reality though is that the lymphedema world seems hop…

lymphedema_and_pain_management

2007-11-21T05:58:10-07:00

Coping with Pain from Lymphedema PAIN AND LYMPHEDEMA Lymphedema is not simply a condition of swollen limbs with occasional infections from time to time. It is and can be an excruciatingly painful condition. Pain is part of our bodies immediate survival defense mechanism. The signal from our nerves to our brains tells us when something has gone wrong, that there is an injury, inflammation, trauma, infection. Warning pain is a life saver, but chronic unrelenting pain is a debilitating experienc…

lymphedema_and_pregnancy

2008-06-01T08:59:20-07:00

Introduction For young women with lymphedema, especially primary lymphedema, the thought of having babies and what might happen is a scary topic with many many questions. They want to know if their lymphedema will worsen as a result of pregnancy; if they have hereditary lymphedema, can they have a baby and can they pass it on to their children.

lymphedema_and_psoriatic_arthritis

2009-07-05T07:54:47-07:00

Having posted an indepth page of information on lymphedema and rheumatoid arthritis, I thought it might be helpful to also include a page on psoriatic arthritis, which has also been demonstrated to be involved in lymphedema. To understand the possible relationship between arthritis, or any inflammatory disease and lymphedema, I want to share something Tom Kincheloe, a lymphedema therapist and a member of our online support group Advocates for Lymphedema shared:

lymphedema_and_rheumatoid_arthritis

2008-03-21T11:34:40-07:00

Case Reviews and Studies In our online lymphedema support group Advocates for Lymphedema we recently had a discussion and many questions regarding the issue of lymphedema and rheumatoid arthritis. Is it a chicken and egg situation wherein lymphedema causes RA or the reverse?

lymphedema_changes_your_life

2007-12-02T06:50:13-07:00

Original post from: Lymphedema People October 25. 2006 by Silkie Dorothy Mooney A Question was asked on Lymph Friends unfortunately I cannot respond to it there so I thought I would do it here. A Lifetime of Lymphedema

lymphedema_clinical_trials

2008-06-08T13:57:28-07:00

Members of our lymphedema groups are always asking “What research is being done on lymphemdema?” Historically, this condition has been a step-child in terms of medical research. Indeed, monies spent on research are minute compared to other conditions, despite the fact that millions of people are afflicted with it.

lymphedema_clinics_hospital_affiliated

2008-06-19T23:48:05-07:00

This list will not be all inclusive. If you know of a clinic not mentioned, please submit it for addition. As always you must check out the credentials of the clinic you may choose. This is for informational purposes only. I distinguish clinics between individual therapists as they are associated with a medical center and directed by a physician. Also, therapists must be vertified in CDT, CLT, MLD.

lymphedema_for_the_newly_diagnosed

2008-06-01T09:02:24-07:00

The immediate time period after being diagnosed with lymphedema can be a confusing and frightening time. In one sense, there may be relief...finally there is a name to this awful “thing” that has attacked your body. But there is also a bewildering amount of emotions, fear...questions of what do I do now and where do I turn to begin dealing with this condition.

lymphedema_from_sirolimus_treatment

2009-07-05T07:31:50-07:00

Sirolimus (INN) is a relatively new immunosuppressant drug used to prevent rejection in organ transplantation, and is especially useful in kidney transplants. It is also known as rapamycin. Sirolimus is a macrolide antibiotic (”-mycin”) first discovered as a product of the bacterium Streptomyces hygroscopicus in a soil sample from an island called Rapa Nui, better known as Easter Island.[1] It is marketed under the trade name Rapamune by Wyeth.

lymphedema_gene_foxc2

2007-11-28T03:48:00-07:00

Perhaps the most well known of genes responsible for hereditary lymphedema is the FOXC2 gene. Identified by University of Michigan scientists and collaborators from the University of Arizona, FOXC2 is the genetic cause of Lymphedema Praecox Meige Syndrome (Hereditary Lymphedema II).

lymphedema_gene_sox18

2007-11-28T03:49:45-07:00

One our other pages involving genetically caused lymphedema, we read about the VEGF gene and the FOXC2 gene. Another gene that has been identified is the SOX18 gene. This mutations of this gene are responsible for hypotrichosis-lymphedema-telangiectasia syndrome.

lymphedema_gene_vegfc

2009-06-23T05:50:10-07:00

The Vascular Endothelial Growth Factor C. Discovered by researchers from the University of Pittsburg, VEGFC is a member of the broad ranging and critical gene family VEGF. This is the gene identified as being responsible for Hereditary Lymphedema, better known as Milroy’s Syndrome or Milroy’s Disease.

lymphedema_in_children

2008-06-01T09:12:20-07:00

Lymphoedema Our Home Page: Lymphedema People Email: lymphedemapeople@aol.com Introduction This page was in a way, quite easy for me to write as from the day I was born in 1952, I had evident leg lymphedema. I have never known a day without it and because correct treatment wasn’t known in my childhood, I have lived long enough to experience to worse complications of untreated or improperly treated lymphedema.

lymphedema_no_longer_rare_still_underdiagnosed

2007-11-26T19:22:53-07:00

Climbing rates of obesity may be adding to the burdens of the lymphatic system and boosting the number of cases of lymphedema. By Susan J. Landers, AMNews staff. Dec. 3, 2007. Washington -- Trained in family practice medicine, Caroline Fife, MD, didn't know what she was getting into when she decided to begin treating people with lymphedema.

lymphedema_patient_education

2008-05-31T09:39:38-07:00

This was originally done as an editorial post and was based on discussion in our support group Advocates for Lymphedema. As the explosion continues throughout the internet on the establishment of new site supposedly relating to lymphedema, the importance of what is said becomes even greater.

lymphedema_people_blogs

2008-11-05T04:28:26-07:00

My Life with Lymphedema Developmental Disorders of the Lymphatics Edema and Related Medical Conditions Lymphedemaville

lymphedema_people_forums

2008-05-31T19:54:27-07:00

In our forums section, you will find over 3,000 posts with hundreds of additional articles encompassing every aspect of lymphedema you can imagine. Information, questions and answers that will enable you to discover not only how to live with lymphedema, but to manage it, overcome it and lead a life that is rich, meaningful and rewarding.

lymphedema_people_glossaries

2008-06-01T06:33:49-07:00

Lymphedema Glossary This is our new glossary which replaces our old htm format glossary and the glossary in the forums section. Updated on a regular basis. Glossary of Lymphedema Terms Antibiotic Glossary

lymphedema_people_online_support_groups

2008-11-05T04:20:27-07:00

Come and be a part of the largest lymphedema online network in the world. All groups owned and sponsored by Pat O'Connor Advocates for Lymphedema Join us as we work for lymphedema patients everywhere: Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.

lymphedema_praecox_meige_syndrome

2008-06-01T09:16:22-07:00

Related Terms Nonne-Milroy-Meige Syndrome, Meige's lymphedema, Hereditary lymphedema II, familial lymphedema praecox Form of primary hereditary lymphedema that starts at or around the time of puberty. The affected limbs are generally the legs.

lymphedema_products_and_supplies

2009-08-24T06:13:53-07:00

Bandages, Wraps, Compression garments, skin care supplies, foam products, videos, cd's Thought it might be helpful to have a list of vendors for medical supplies, lymphedema equipment and supplies, durable medical equipment. This list replaces the page in our “Articles Section.”

lymphedema_ptosis

2008-06-05T05:15:37-07:00

Discussion Though incredibly rare, one of the most “known of” lymphedema conditions is lymphedema ptosis. This particular syndrome is easily recognizable by the “droopy” eyelids. The entity was briefly reported by Falls and Kertesz in 1964 in a father and son. The association of ptosis with lymphedema was documented by Bloom in 1941 in a 5 generation family.

lymphedema_sleeves

2008-06-22T11:25:20-07:00

The first type of compression garment used in the treatment and management of lymphedema is the compression bandage. After successful treatment and limb reduction, the patient then moves onto compression stockings. The final type of compression apparel worn by lymphedema patients is generally referred to as a sleeve and is used in both arm lymphedema and leg lymphedema.

lymphedema_tarda

2008-06-01T11:10:50-07:00

Disorder Subdivisions Lymphedema Hereditary Lymphedema, Type I Congenital Hereditary Lymphedema Milroy Disease Nonne-Milroy-Meige Syndrome Hereditary Lymphedema, Type II Meige's Lymphedema Familial Lymphedema Praecox Hereditary Lymphedema Tarda Hereditary Lymphedema Type III Discussion Form of primary hereditary lymphedema that expresses itself during middle age (generally onset 35+ years). Swelling generally occurs in the legs and may involve eit…

lymphedema_tarda_after_liver_transplantation

2007-11-23T15:55:49-07:00

Sammy Saab,1 Stephen Nguyen,2 James Collins,3 Gregg Kunder,4 Ronald W Busuttil5 Keywords - Chylous ascites, Lymphedema tarda, Evaluation, Liver transplantation We present a patient with lymphedema that developed after orthotopic liver transplantation. The cause of the posttransplant lymphedema was likely related to a developmental abnormality of the lymphatic system that was exaggerated by refractory chylous ascites. A peritoneal fluid with a milky appearance, chylous ascites is rich in trigly…

lymphedema_therapy_and_the_quality_of_life_for_breast_cancer_patients

2008-06-01T11:12:37-07:00

The acquisition of lymphedema following breast cancer can be devastating both, physicially and psychologically for the breast cancer patient. The key to successful management of arm lymphedema is both early diagnosis and intervention (treatment).

lymphedema_treatments_are_poorly_utilized

2008-06-12T17:26:09-07:00

Kate Johnson Medscape Ob/Gyn & Women's Health 8(2), 2003. (c) 2003 Medscape Posted 10/29/2003 Lymphedema is an underrecognized complication of cancer therapy, and even when it is recognized, it is often undertreated, says Dr. Anna Towers, Director of the Palliative Care Program at McGill University in Montreal, and head of the university's Lymphedema Program.

lymphedivas_fashions_for_lymphedema

2008-01-25T07:47:12-07:00

Tired of those old blah looking tan or black lymphedema sleeves and garments? Here is a new and exciting alternative in a fashion company with garments created by two young breast cancer survivors Robin Miller and Rachel Levin. Finally, lymphedema fashion has become creative and stylish!!!

lymphoscintigraphy

2009-07-05T06:45:36-07:00

HOW DO YOU GET DIAGNOSED WITH LYMPHEDEMA? IS THERE A "TEST" FOR LYMPHEDEMA? There is a question that is asked continuously in the online groups I am a member of is, “Is there a test that can be done to accurately determine whether or not you have lymphedema?”

magnetic_resonance_imaging

2008-05-03T04:16:29-07:00

Related Terms: interstitial magnetic resonance lymphangiography; A powerful tool in the assistance of diagnosing lymphedema and in imaging the lymphatic system is magnetic resonance imaging. The MRI which is one of the best imaging techniques for soft tissues has become sophisticated enough to now show the lymphatic system, lymph nodes, and lymphatic vessels.

male_genital_lymphedema

2009-07-05T06:52:38-07:00

malignant_lymphedema

2009-07-05T07:22:13-07:00

What is Malignant Lymphedema? Lymphedema caused by an impaired lymph flow due to malignant tumor infiltratration and blockage or compression of lymphatic vessels and lymph nodes. This is different then secondary lymphedema which is caused by removal of lymph nodes, damage to the lymph system from trauma; cancer treament, biopsy. See risk factors for lymphedema for causes of secondary lymphedema. Secondary lymphedema tends to develop slowly over an extended period of time versus the rapid de…

manual_lymphatic_drainage_mld_complex_decongestive_therapy_cdt

2008-06-19T21:21:59-07:00

Home page: Lymphedema People Related Terms: Manual Lymphatic Drainage, MLD, Comprehensive Decongestive Therapy, CDT, Complete Decongestive Therapy, Complex Decongestive Physiotherapy, CDP, Simple Lymph Drainage, lymphedema, arm lymphedema, leg lymphedema

massive_localized_lymphedema

2009-09-11T03:50:26-07:00

I first became aware of massive localized lymphedema after one of our members posted on this huge “growth's she had at the top of one of her legs. Her doctors were apparently clueless as to what it was. In their ignorance, some told her that what ever it was, it could not be removed; that it would eventually kill her, on and on.

medicare_and_compression_garments

2008-06-22T10:10:09-07:00

In a startling ruling on February 20, 2008 lymphedema compression garments were defined as meeting Medicare definition as a covered item. This will help is obtaining reimbursement for these extremely necessary and important part of a lymphedema management program.

medicare_and_compression_pumps

2008-06-22T11:00:34-07:00

Except for the Flexitouch Device and the BioCompression compression pump used with a ReidSleeve Optiflow insert, I am still opposed to the treatment of leg lymphedema by compression pumps. It has been safely used for arm lymphedema in conjunction with lymphedema decongestive physiotherapy,The below informatino does not constitute an endorsement of compression pump therapy. It is provided as a service and for patient information.

medicare_appeal_procedure_for_lymphedema

2008-06-22T10:10:50-07:00

Most of the information on this page has been provided by Robert Weiss, lymphedema activist and advocate. Appealing an unfavorable ruling or appealing a Medicare denial can be frustrating at the least. However, you should appeal any denial. using the tips and considerations listed here should be a great assistance and make the appeal process a little less scary or intimidating.

mesotherapy

2008-06-07T19:42:00-07:00

Mesotherapy, which is classfied as an alternative medical treatment and still highly experimental with lymphedema is the injection of hyaluronidase or similar substances into the lymphedemous limb. The claim is that this injection helps loosen the extracellularmatrix, thereby encouraging lymphatic flow is of doubfult therapeutic value to our condition.

milroys_syndrome

2009-09-26T09:02:16-07:00

MILROY'S DISEASE Congenital Lymphedema Our Home Page: Lymphedema People Related Terms: Nonne-Milroy lymphedema, Milroys Disease, Primary congenital hereditary lymphedema, hereditary lymphedema I, Nonne-Milroy-Meige disease, hereditary tropholymphoedema syndrome; idiopathic hereditary lymphedema, lymphoedema; lymphedema, early onset type; trophoedema hereditarium (chronicum extremitatum inferiorum); tropholymphoedema, elephantiasis congenita hereditaria,…

my_life_with_lymphedema

2008-06-24T20:09:20-07:00

Introduction When I was asked to do an article about my life with lymphedema, I thought that would be easy. I have found the opposite to be true. It’s hard to put into words a story of 52 years of living with a condition like this. My life is an example of what can happen when lymphedema is incorrectly treated, or not treated at all. But it is also, I hope, an example of what you can do and what a full and exciting life you can have, even with lymphedema.

my_life_with_lymphedema_and_lymphoma

2007-09-22T00:43:33-07:00

Originally from: My Life with Lymphedema Blog Spot OK...so a dear friend wrote me and said, “the blog needs to be more about the person then lymphedema.” LOL...so I guess that is what a blog is for. I very much want to put in an article on coping and adjusting, but first, let me share a bit about what it has been like to have the combination of hereditary lymphedema and secondary lymphoma.

new_articles_and_updates

2009-09-26T09:04:02-07:00

Be sure to check this page for the latest new articles and updates to existing article in our new Lymphedema People Wiki format. September 26, 2009 Milroys Syndrome - updated September 16, 2009 Lymphedema Glossary - Updated September 11, 2009 Stem Cell Therapy for Lymphedema - New

new_york_law_to_raise_awareness_of_lymphedema

2008-07-03T04:48:41-07:00

Many many thanks to our lymphedema treatment advocate Bob Weiss for sharing this and sending the full context of the bill passed in the New York State Assembly regarding Lymphedema. Here is the full text: AN ACT to amend the public health law, in relation to lymphedema 5892—B 2007-2008 Regular Sessions

noonan_s_syndrome

2008-02-22T07:34:55-07:00

Noonan Syndrome A familial condition similar to both Turner Syndrome. It is different however, in that here is no chromosomal defect as is involved with Turner and unlike Noonan's, this condition can affect both sexes. As with Turner Syndrome and Klinefelter Syndrome, lymphedema is listed as a complication. Generally, it is transient, but if it remains constant or progresses, treatment and care of the patient will need to include management of the lymphedema.

nutrition_and_wound_healing

2007-12-06T18:24:47-07:00

A very important aspect of helping our bodies heal wounds is our nutritional state of being. Improper nutrition, vitamin deficiencies, mineral or protein deficiencies can all make it more difficult for our bodies to heal itself. Like so many lymphedema people, I personally struggle with this issue.

obesity_and_lymphedema

2008-07-16T18:27:05-07:00

There is a growing epidemic in the United States, actually it almost might be referred to as a pandemic. That is the skyrocketing incidents of obesity, not only among adults, but also among children. We are also seeing an increase in reported cases of lymphedema as a secondary condition caused by obesity. Obesity and especially morbid obesity causes lymphedema by crushing and/or overwhelming the lymphatics.

otophyma_and_lymphedema_of_the_ear

2008-01-24T08:36:18-07:00

Otophyma: A Case Report and Review of the Literature of Lymphedema of the Ear. Little heard of, and even less talked about is the possibility of lymphedema of the ear. It is commonly associated with Rosacea This page present specific case histories and an overview of the general condition.

pathophysiology_of_lymphedema

2008-06-01T12:50:35-07:00

Understanding Lymphedema Pathophysiology and Treatment By: Joachim E. Suther Lymphedema, a protein rich swelling which usually affects the extremities, is a very common condition worldwide. Complete Decongestive Physiotherapy is done successfully in Europe for decades in the treatment of primary and secondary Lymphedema and is now becoming widely recognized in the U.S.

patient_self-massage_for_breast_cancer_related_lymphedema

2008-06-01T12:51:23-07:00

Anne Williams gives a guide to patient self massage in the management of lymphedema. Anne F. Williams RGN, MSc, DN, RNT, Onc Cert, is a Lymphoedema Specialist Practitioner Dalkeith, Scotland. Article accepted for publication: November 2005 Keywords: Lymphoedema Lymphatic system; Simple lymphatic drainage (SLD) Manual lymphatic drainage (MLD); Decongestive Lymphatic Therapy (DLT); Lymphedema

pelvic_lymphedema

2009-06-29T05:27:31-07:00

It has long been documented and reported on that a potential complication of inguinal lymph node removal is leg lymphedema or lower-limb lymphedema. What has not been reported on in depth is the possible complication of either abdominal or pelvic lymphedema from the same procedure. This is surprising to me as one of the earliest reports I ever read was one regarding abdominal lymphedema from surgery, written in 1963 by my former doctors in Portland, Oregon.

peripheral_neuropathy

2008-06-12T17:46:47-07:00

Many lymphedema patients express complaints of a loss of sensation, muscle weakness and or a sense of tingling and burning in an effected limb. This complication is actually a condition called peripheral neuropathy It is important to note that while periperal neuropathy in some causes a loss of sensation in others, due to nerve damage, it can cause a significant increase in debilitating pain.

podoconiosis_lymphedema_from_exposure_to_clay_soil

2009-06-23T05:45:06-07:00

Traditionally when we think of type of lymphedema known as elephantiasis, we think of the mosquito spread parasitic infection called lymphatic filariasis that is so common in the tropical world. Here is an interesting collection of abstract about endemic non-filarial elephantiasis cause by exposure to certain alkalic clay soils in Ethiopia and Uganda.

prevalence_of_lymphedema_in_breast_cancer

2007-12-26T05:00:54-07:00

Last week one of the members of our online support group Advocates for Lymphedema asked if there were statistics for the incendence of secondary lymphedema, especially arm lymphedema in breast cancer. As time has passed and the success of breast cancer treatment has improved, the prevelance of secondary arm lymphedema among breast cancer survivors has increased.

prevalence_of_lymphedema_in_gynecologic_cancer

2008-02-20T04:40:02-07:00

Last week one of the members of our online support group Advocates for Lymphedema asked if there were statistics for the incendence of secondary lymphedema, especially leg lymphedema in gynecologic cancers. Sadly, not many studies have been done and the information is slim.

preventing_hospital_infections

2007-11-22T07:49:14-07:00

Having been in the hospital five times during the past year has made me acutely aware of, interesting in and concerned about acquiring one of those hospital acquired infections we are hearing so much about. These infections have become a major problem and it is estimated that about 100,000 people a year die from them and another couple million will suffer some type of in hospital infection. Another statistic I saw was that it is estimate that perhaps ten percent of all hospital patients will …

privacy_statement

2008-09-15T22:10:06-07:00

Our Commitment To Privacy Your privacy is important to us. To better protect your privacy we provide this notice explaining our online information practices and the choices you can make about the way your information is collected and used. To make this notice easy to find, we make it available on our homepage and at every point where personally identifiable information may be requested.

protein_and_lymphedema

2008-07-15T03:20:22-07:00

One of the great myths that always seem to reemerge in the lymphedema world is the notion that because our limbs are swollen with a protein rich fluid, that those of us with lymphedema should be on a low protein diet. Nothing could be further from the truth. It is a basic reality of our physiology that a certain amount of protein is required for a healthy life.

reflex_sympathetic_dystrophy

2008-06-15T03:45:10-07:00

Related terms Reflex Sympathetic Dystrophy, RSD, Complex Regional Pain Syndrome, Edema, Lymphedema, Causalgia, CRPS, Sudeck's Dystrophy, Post Traumatic Dystrophy, Shoulder Hand Syndrome, Reflex Neurovascular Dystrophy Discussion Reflex Sympathetic Dystrophy or Complex Regional Pain Syndrome is a chronic and debilitating condition that causes excruciating burning pain changes in bone and skin tissue, excessive sweating, sensitivity to touch and swelling (edema). The condition affects and invo…

reflexology

2008-06-23T10:31:15-07:00

Key Terms Reflexology, Lymphedema Treatment, Ingham Method, Alternative Medicine Reflexology is an alternative treatment therapy which deals with the principle that there are reflex areas in the feet and hands which correspond to all of the glands, organs and parts of the body. Stimulating these reflexes properly can, according to practitioners help many health problems in a natural way, a type of preventative maintenance.

risk_factors_for_lymphedema

2009-07-05T07:49:19-07:00

What are the risk factors for lymphedema? Is there an answer to how to prevent lymphedema? Anyone who has one or more of the following factors can acquire lymphedema: * Lymph node removal for biopsies * Serious infections that include lymphangitis, cellulitis or erysipelas.

rules_of_conduct

2008-08-22T15:21:48-07:00

Your use of LymphedemaPeople.com is conditioned upon your continued acceptance of and compliance with our Terms of Use and Rules of Conduct. Please take this time to familiarize yourself with these important policies and rules. You must abide by the following rules when accessing or using LymphedemaPeople.com, including the community forums:

sand_between_my_toes

2007-12-01T05:41:46-07:00

I am currently down in Avon, North Carolina for the week and today for the first time since my diagnosis with lymphedema over 2 years ago I walked on the beach, which is my favorite place on this earth. Boy did I enjoy walking along with the water lapping at my toes, squishing my toes in the sand. picking up seashells, walking in the wading ponds created by the surf.

secondary_lymphedema_in_the_cancer_patient

2008-06-01T12:55:28-07:00

MedSurg Nursing, Oct, 2006 by Jane E. Lacovara, Linda H. Yoder October is Breast Cancer Awareness Month, and nurses should engage in all the prevention, treatment, and survivorship education and related activities that take place during the month. Nurses play a vital role when interfacing with breast cancer survivors. Medical-surgical nurses may interact with these individuals when they need care for non-oncology problems. It is important to describe a serious problem encountered by many bre…

sentinel_node_biopsy

2009-07-05T06:39:40-07:00

We continue our series of article with information that may help patients avoid secondary lymphedema. Our first article described the use of the small needle biopsy as a diagnostic tool, replacing the surgical removal of many lymph nodes. This page gives information on the Sentinel node biopsy. This newer technique of nodal biopsy focuses on finding the first node that cancer may have spread too.

short_stretch_bandages_for_lymphedema

2009-07-05T07:02:35-07:00

The short stretch bandage is a wrap used in the treatment of lymphedema. It is called “short strech” because of it rating on elasticity. These bandages are rated at approximately 70%, which means they can stretch up to 70% beyond their actual non extended length. Because of this, they are able to provide continual compression on the lymphedema limb. They work inconjunction with your muscles to help not only prevent additional swelling, but to help lymph flow.

skin_care

2008-07-03T05:35:38-07:00

Because of the compromised condition of a lymphovenous limb, we are often susceptible to a large number of skin complications. These may include various skin growths such as skin tags, warts, dermatofibromas, lymphangiomas, rashes, fungal infections, superficial bacterial infections infections which include as impetigo, folliculitis, carbuncles, furuncles and boils and weeping sores.

small_needle_biopsy

2009-07-05T08:02:38-07:00

Fine Needle Aspiration A procedure used more and more in the detection of cancers and in the biopsy of suspect areas is the needle aspiration. More commonly, patients refer to it as simply a “small needle biopsy.” In the procedure, a small amount of tissue is removed and it can be used to make a diagnosis of a number of medical problems including cancer, infections or inflammation or infection. Any lump, bump, growth or suspect area can have a small needle biopsy done.

social_security_disability_insurance

2008-06-22T10:12:20-07:00

There are two main Federal programs that provide income to individuals with disabilities, or who are disabled because of lymphedema. On is Social Security Disability Insurance, the other is Supplemental Security Income. Social Security Disability funding comes from Social Security itself, while the Supplemental Security Income program comes from general taxes and is only administered by Social Security.

social_security_information_-_usa

2008-06-20T16:08:31-07:00

Our other pages on Social Security services focused on Social Security Disability Insurance and Supplemental Security Incomeand their applicability to those of us with lymphedema. They are only two of the services managed or administered by the Social Security Administration. The other main services involve the Social Security Retirement fund and the Medicare program.

sotos_syndrome

2008-06-25T09:24:22-07:00

Genetics: Mutations in the NSD1 gene cause Sotos syndrome. More than 100 mutations in the NSD1 gene have been identified in people with Sotos syndrome. Prevelance Sotos syndrome Sotos syndrome is reported to occur in 1 in 10,000 to 14,000 newborns. Many cases of this disorder are not diagnosed, however, so the true incidence may be closer to 1 in 5,000.

spreading_lymphedema

2007-10-02T03:03:55-07:00

Does Lymphedema Spread to Other Areas of Your Body? Discussion: Can lymphedema spread from your legs to your abdomen? Can it spread to your arms? This question has been asked on every online support group I am in, and it has been asked many times. From the life experience of those of us who have experienced this, we would have to answer with a resounding yes!

stages_of_lymphedema

2008-06-01T13:12:10-07:00

WHAT ARE THE STAGES OF LYMPHEDEMA? There are three basic stages active of lymphedema. The earlier lymphedema is recognized and diagnosed, the easier it is to successful treat it and to avoid many of the complications.. It is important as well to be aware that when you have lymphedema, even in one limb there is always the possibility of another limb being affected at some later time. This “inactive” period referred to as the latency stage. It is associated with hereditary forms of lymphedema.…

stem_cell_therapy_for_lymphedema

2009-09-11T06:19:47-07:00

As research continues and our longing increases to find a cure for lymphedema, this study was sent to me by a membe of our Children with Lymphedema Yahoo Support Group. I attempted to access the original site it came from in Cuba, but was unfortunately blocked, either by Google or by some Cuban governmental restriction. Never the less, I thought it important enough to post.

supplemental_security_income

2008-06-22T10:11:31-07:00

There are two main Federal programs that provide income to individuals with disabilities, or who are disabled because of lymphedema. On is Social Security Disability, the other is Supplemental Security Income. Social Security Disability funding comes from Social Security itself, while the Supplemental Security Income program comes from general taxes and is only administered by Social Security.

surgery_for_lymphedema

2008-06-18T22:30:23-07:00

Surgical Management of Lymphedema Related Terms: Charles Procedure, Thompsons Procedure, Buck's Fascia, Homans-Miller Procedure, Kondoleon Procedure, Sisktrunk Procedure, Thompson Procedure, Lymphedema Microsurgery, Dermal Flap, Miller Sistrunk Procedure, Surgical Therapy

syndromes_associated_with_lymphatic_dysplasia

2008-06-25T07:51:51-07:00

There are many, rare syndromes associated with lymphatic dysplasia where in the patient will present with lymphedema. Therefore it is useful to include them in the website. I especially want to express my deep appreciation to Dr. Bruno Chikly for his very kind permission in allowing us to use and reproduce information from his book Silent Waves Theory And Practice Of Lymph Drainage Therapy. His books and works have brought hope and much needed information to countless thousands throughout …

temporary_lymphedema_versus_chronic_lymphedema

2007-10-11T21:49:52-07:00

When we usually think of lymphedema, it is in terms of a permanent condition. However, there is a form of lymphedema that is temporary or “transient.” The following excerpt from the National Cancer Institute gives an excellent description and comparison between the two.

terms_of_use

2009-08-06T20:49:34-07:00

Your use of LymphedemaPeople.com is conditioned upon your continued acceptance of, and compliance with, our Terms of Use and Rules of Conduct. Additionally, you are responsible for reading and understanding our policies and disclaimers. Please take this time to familiarize yourself with this information.

the_lymph_system_and_immunity

2007-09-28T03:51:56-07:00

The lymph system is our body's front line defense against infection, disease, cancer. This is also the reason those of us with lymphedema are so susceptible to cellulitis and other fections associated with lymphedema]] A limb afflicted with lymphedema is considered to be immunocompromised due to the malfunction of the lymph system

the_lymphedema_diet

2008-07-16T18:25:37-07:00

There is no “special” diet that lymphedema patients must follow, just because they have lymphedema. If you have no other medical conditions involved, your diet will be fairly normal (healthy diet of course). The rules on foods to avoid or consume in moderation are much like the guidelines given for non-lymphedema people.

thompson_s_procedure

2008-06-06T09:54:48-07:00

Debulking Surgery for Lymphedema One of the experimental procedures I had as a young person with lymphedema was called the Thompson's Procedure. This was a debulking surgery that was actually a combination surgery using techniques of both the Charles and the Miller surgeries. The limb is first debulked, the a flap of skin was sewn into the muscle of the limb with anticipation that flap would act as a “wick” drawing the fluids into the deeper lymphatics.

thrombophlebitis

2008-06-12T17:25:36-07:00

Related Terms blood clot, phlebitis, edema, vein obstruction, superficial thrombophlebitis, deep venous thrombosis, venous stasis, aseptic thrombophlebitis, septic thrombophlebitis, edema, lymphedema Thrombophlebitis is an condition in which a blood clot and inflammation occurs in one or more veins close to the surface of the skin. Generally this is referred to as a superficial thrombosis versus deep venous thrombosis. It is extremely important to accurately assess this condition because an…

tips_on_inpatient_lymphedema_treatment_centers

2007-09-28T19:33:23-07:00

After just having spent a couple weeks in an inpatient lymphedema treatment center, I had a few thoughts I wanted to share about what to look for and expect from such a facility. 1.) What is the training and certification of the lymphedema massage therapists? This includes where they received training, how they were certified, are they LANA certified and do they partipate in orgnizations like the National Lymphedema Network, where they are kept abreast of new developments and treatment …

tissue_tonometry

2008-06-21T20:48:12-07:00

What is Tissue Tonometry? Tissue tonometry is the measurement of change within tissue or the in the case of lymphedema measurement of the resistance of the lymphedematous tissues to compression. It does this by measuring the “softness” of the skin and the change in fibrosis.

travel_tips_for_lymphedema

2007-09-13T16:00:44-07:00

Summertime and “the living is easy, fishing are jumping and the cotton is high.” Or, maybe its Winter and you are tired of the snow and cold and decide it is time to run to the islands for a couple weeks of sun and surf. Just because you have lymphedema, there is no reason why you can enjoy traveling, going on vacation or just going to see friends and family.

treatment

2008-06-23T08:44:12-07:00

Our homepage: Lymphedema People Related Terms: Manual Lymphatic Drainage MLD Comprehensive Decongestive Therapy CDT Pneumatic Compression Pump Therapy, Lymphedema Surgical Treatment, Liposuction, Laser Treatment, Wholistic Treatment, Benozpyrones and Flavonoids, Diuretics, Acupuncture, Complimentary Medicine, Alternative Medicine, Naturopathy

turner_syndrome

2007-11-25T09:22:53-07:00

Can be classified as: Primary Lymphedema with other symptoms Named after Dr. Henry Turner who was one of the first to describe its features in the 1930's. An internist at the University of Oklahoma, he first identified a common set of traits or physical features in seven of his patients in an article published in 1938. This is a chromosomal condition caused when one of the two x chromosomes normally found in females is missing or incomplete. However, the actual chromosomal deficiency was not id…

warning_signs_of_lymphedema

2007-09-28T03:51:12-07:00

If you are a person who is at risk for lymphedema, you will want to learn the early warning signs. The earlier lymphemdea is diagnosed and the sooner you seek treatment, the more likely you are to avoid the potentially serious complications. If you are a person who is at risk, you will also want to know tips on how to prevent lymphedema.

welcome

2009-07-18T03:29:58-07:00

---------- Array ---------- An information portal created for, and by, people with the medical condition Lymphedema. ---------- Forums - Real people, real answers, real community. Our home page. Wiki - Where you are now. ;-) * Directory of Lymphedema Articles on HTML Pages

what_are_the_different_kinds_of_primary_lymphedema

2008-06-01T22:43:42-07:00

There are many different kinds of primary lymphedema. Some are hereditary, but most are not. The list is far from complete. There are many syndromes which include lymphedema, but they are rare syndromes. Listed below are a few of the identified syndromes.

what_causes_the_swelling_in_primary_lymphedema

2008-06-01T22:44:06-07:00

The lymphatic system varies a little in everyone: the number and size of lymph nodes, the number, exact location and specific direction of lymph vessels, and so on. When these variations become more extreme, a person can be at risk for lymphedema. Some of the problems found in primary lymphedema (whether hereditary or not) are as follows:

what_physicians_should_know_about_lymphedema

2008-06-01T13:21:18-07:00

This was started by Anne, a registered nurse who is also a member of our Advocates for Lymphedema Yahoo support group and edited by our resident lymphedema treatment advocate and champion Bob Weiss and I wanted to share it here. Pat My Life with Lymphedema and Lymphoma

what_type_of_doctor_should_i_go_to

2008-06-01T13:21:54-07:00

Two of the most commonly asked questions regarding doctors and lymphedema is: * 1.) What type of doctor diagnosis lymphedema? * 2.) What type of doctor treats lymphedema? Unfortunately, because lymphology or lymphatic science is not a recognized or distinct medical subspecialty, there is no particular type of doctor who would be automatically good to go for for either treatment or diagnosis.

wild_syndrome

2008-07-03T05:06:21-07:00

Excellent article on the discovery of a possible new syndrome associated with lymphedema. The syndrome involves: * Human papillomavirus * Disseminated warts * Depressed cell-mediated immunity * Primary lymphedema * Anogenital dysplasia

wound_care_clinics

2007-12-06T17:17:32-07:00

So many times those of us with lymphedema ignore those small draining areas that open up on our arms or legs and very quickly those tiny wounds become huge ugly, draining and infected wounds. It is critical to take care of any open area immediately. Remember the lymphedematous limb is immunocompromised which means infections can develop quickly and we have weakened resistance to them.

yellow_nail_syndrome

2007-11-20T16:26:15-07:00

An expression of primary lymphedema associated with yellowish coloration of the finger nails and pleural effusions. This syndrome is also caused by same the FoxC2 gene that is responsible to what we think of as regular hereditary lymphedema type II or lymphedema praecox meige syndrome.

your_emotions_and_self_image_with_lymphedema

2008-06-01T13:24:01-07:00

In this page I have provided a wide variety of articles, tips and info on dealing with your emotions, working through the frustration, anger and fear involved with lymphedema, whether it be arm lymphedema or leg lymphedema. I hope it can be a positive encouragement in overcoming lymphedema.