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Lymphoedema Support Groups United Kingdom

List of Lymphoedema Support Groups

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This information on lymphedema support groups was as current as given to us.  Please first contact the listed group to see if they are still meeting and for further information.  If you know of incorrect information, or if your group information has changed, please email me at: lymphedemapeople@aol.com

Pat O'Connor

May 19, 2008

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St Giles Lymphoedema Support Group

For people with lymphoedema of the arms and legs, either cancer related or primary lymphoedema.  Offers one to one counselling, group work, telephone / clinic support, manual lymphatic drainage, literature and information on practical matters and benefits is available.
Address: Lymphoedema Clinic,
St Giles Hospital,
Fisherwick Road,
Whittingdon,
WS14 9LH
County: Staffordshire
Telephone: 01543 434514
Email: helen.young@st-giles-hospice.org.uk

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Walsgrave Lymphoedema Support Group

A support group for people with lymphoedema caused by cancer.  Offers information, speakers and telephone support
Address: Lymphoedema Clinic, Oncology Unit,
Walsgrave Hospital,

CV2 2DX
County: Coventry
Telephone: 02476 538875
Email: sheiladiffer@hotmail.com
Notes: Catchment: Coventry, Nuneaton, Bedworth, Rugby, Hinckley, Solihull, Warwick, Stratford, Kenilworth, Redditch, Bromsgrove, Atherstone.

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Lymphoedema Support Group: Newbury

For patients with lymphoedema resulting from any kind of cancer, mainly breast, also for those with non-cancer primary lymphoedema.
Address: Charles Clore Macmillan Day Centre,
Sandleford Hospital,
214 Newtown Road
RG14 7ED
County: Newbury
Telephone: 01635 32500 x 3362
Notes: Offers meetings which consist of a speaker followed by tea and general discussion or questions. Also has hosiery supplies and ML specialists. Informative newsletter sent out to members four times a year

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Lymphoedema Support Group: Bradford on Avon

A support group for people with cancer related lymphoedema who are currently patients at Dorothy House Hospice, the Royal United Hospital, Bath, and the North Wiltshire local Lymphoedema Service.
Address: Dorothy House Hospice

Winsley

Bradford on Avon
BA15 2LE
County: Wiltshire
Telephone: 01225 722988
Email: info@dorothyhouse-hospice.co.uk
Website: http://www.dorothyhouse.co.uk
Notes: Facilitated by Sister Miriam Hare, who runs the lymphoedema service at Dorothy House Hospice, the group offers leaflets, speakers, information and telephone support.

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Lymphoedema Support Group: Tameside & Glossop

A support group for people with lymphoedema providing mutual support, guest speakers and social meetings.
Address: 44 Keb Lane,
Bardsley,
Oldham,
OL8 2TY
County: Oldham
Telephone: 0161 626 9882
Notes: Catchment: Tameside and Glossop.

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Scarborough Lymphoedema Support Group

A support group for people with lymphoedema.  Provides information booklets, visiting speakers, telephone support and peer group support.
Address: St Catherine's Hospice
137 Scalby Road
Scarborough
YP12 6TB
County: North Yorkshire
Telephone: 01723 351421
Email: diane@robinsonscarborough.freeserve.co.uk
Notes: A lymphoedema support nurse, breast care nurse and hospice physiotherapist are involved with the group in an advisory capacity.

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Hull Lymphoedema Support Group

A support group for people with lymphoedema, their friends, carers and family.  Provides telephone and personal support, information, visiting speakers and access to complementary therapies and massage.
Address: Oncology Department
Princess Royal Hospital
Sutton
HU8 9HE
County: North Yorkshire
Telephone: 01482 676625

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Northern Ireland

The Northern Ireland Lymphodema Support Group (NILSG) was established in 2002 by a small group of people with lymphoedema together with their physiotherapist. They are based in Belfast as you can find out more on their web site at www.nilsg.co.uk.

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ENGLAND
Ashford, Kent
Ashton-in-Makerfield, Lancs
Basingstoke, Hampshire
Bath & District
Blackpool, Lancashire
Bradford, West Yorkshire
Bristol & District
Chesterfield, Derbyshire
Chichester, West Sussex
Coventry, Warwickshire
Crawley, West Sussex
Devon (North)
Doncaster
Durham
Eastbourne, East Sussex
Enfield and Edmonton
Essex (South)
Exeter & District
Fazakerley, Liverpool
Gloucester
Guildford, Surrey
Hartlepool
Kendal, Cumbria
Lancaster, Lancashire
Leeds, West Yorkshire
Leicester, Leicestershire
Lichfield, Staffordshire
Liverpool, Merseyside
London (Chelsea)
London (Greenwich & Bexley)
Manchester
Newbury, Berkshire
Newcastle-upon-Tyne
Northampton, Northants
Norwich, Norfolk
Nottingham
Orpington, Kent
Preston, Lancashire (St Catherine's Hospice)
Preston, Lancashire (Vine House)
Rotherham, South Yorkshire
Scarborough, North Yorkshire
Sheffield
Stoke-on-Trent, Staffordshire
Taunton, Somerset
Thanet & North Kent
Truro, Cornwall
Walsall, West Midlands
West Cumbria
Weymouth, Dorset
Wokingham, Berkshire
Wolverhampton, Staffordshire
Worcester
Worthing, West Sussex
Yeovil, Somerset

CHANNEL ISLANDS
Jersey

WALES
Aberaeron, Ceredigion
Cardiff
Llandrindod Wells, Powys
Swansea
Wrexham, Clwyd

SCOTLAND
Aberdeen
Edinburgh
Glasgow
Stirling

Support Group Page LSN

For Specific Information, please contact:

Lymphoedema Support Network

See Page: LSN SUPPORT GROUPS for additional information

http://www.lymphoedema.org/Menu2/4Support%20Groups.asp

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Lymphoedema Information and Forum

http://www.lymphedemapeople.com/phpBB3/viewforum.php?f=23

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Social Security and Pensions - United Kingdom

http://www.lymphedemapeople.com/thesite/social_security_and_pensions_united_kingdom.htm

Lymphoedema Government Resources - United Kingdom

http://www.lymphedemapeople.com/thesite/government_resources_united_kingdom.htm

Lymphoedema Therapists - United Kingdom

http://www.lymphedemapeople.com/thesite/lymphedema_therapists_united_kingdom.htm

Lymphoedema Resources - United Kingdom

http://www.lymphedemapeople.com/thesite/lymphedema_resources_united_kingdom.htm

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Join us as we work for lymphedema patients everywehere:

Advocates for Lymphedema

Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.

http://health.groups.yahoo.com/group/AdvocatesforLymphedema/

Subscribe: AdvocatesforLymphedema-subscribe@yahoogroups.com

Pat O'Connor

Lymphedema People / Advocates for Lymphedema

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For information about Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\

For Information about Lymphedema Complications

http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema

For Lymphedema Personal Stories

http://www.lymphedemapeople.com/phpBB2/viewforum.php?f=3

For information about How to Treat a Lymphedema Wound

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound

For information about Lymphedema Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment

For information about Exercises for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema

For information on Infections Associated with Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema

For information on Lymphedema in Children

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

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Lymphedema People - Support Groups

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Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.

http://health.groups.yahoo.com/group/childrenwithlymphedema/

Subscribe: childrenwithlymphedema-subscribe@yahoogroups.com

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Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!

http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515

Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com

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MEN WITH LYMPHEDEMA

If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.

http://health.groups.yahoo.com/group/menwithlymphedema/

Subscribe: menwithlymphedema-subscribe@yahoogroups.com

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All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.

http://health.groups.yahoo.com/group/allaboutlymphangiectasia/

Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com

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Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.

DISCRIPTION

Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.

http://health.groups.yahoo.com/group/lymphaticdisorders/

Subscribe: lymphaticdisorders-subscribe@yahoogroups.com

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All About Lymphedema

For our Google fans, we have just created this online support group in Google Groups:

Homepage: http://groups-beta.google.com/group/All-About-Lymphedema

Group email: All-About-Lymphedema@googlegroups.com

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Lymphedema Friends

http://groups.aol.com/lymphedemafriend

If you an AOL fan and looking for a support group in AOL Groups, come and join us there.

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Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet?  Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more.  Come and take a stroll! 

Lymphedema Glossary 

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing 

Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema 

Arm Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema 

Leg Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema 

Acute Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema 

The Lymphedema Diet 

http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet 

Exercises for Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema 

Diuretics are not for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=diuretics_are_not_for_lymphedema 

Lymphedema People Online Support Groups 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_people_online_support_groups 

Lipedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lipedema 

Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment 

Lymphedema and Pain Management 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pain_management 

Manual Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT)

http://www.lymphedemapeople.com/wiki/doku.php?id=manual_lymphatic_drainage_mld_complex_decongestive_therapy_cdt 

Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema 

How to Treat a Lymphedema Wound 

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound 

Fungal Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=fungal_infections_associated_with_lymphedema 

Lymphedema in Children 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children 

Lymphoscintigraphy 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphoscintigraphy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Extraperitoneal para-aortic lymph node dissection (EPLND) 

http://www.lymphedemapeople.com/wiki/doku.php?id=extraperitoneal_para-aortic_lymph_node_dissection_eplnd 

Axillary node biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=axillary_node_biopsy

Sentinel Node Biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=sentinel_node_biopsy

 Small Needle Biopsy - Fine Needle Aspiration 

http://www.lymphedemapeople.com/wiki/doku.php?id=small_needle_biopsy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Lymphedema Gene FOXC2

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_foxc2

 Lymphedema Gene VEGFC

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_vegfc

 Lymphedema Gene SOX18

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_sox18

 Lymphedema and Pregnancy

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pregnancy

Home page: Lymphedema People

http://www.lymphedemapeople.com

Page Updated: Nov. 29, 2011