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Lymphoedema Support Groups United Kingdom

List of Lymphoedema Support Groups


This information on lymphedema support groups was as current as given to us.  Please first contact the listed group to see if they are still meeting and for further information.  If you know of incorrect information, or if your group information has changed, please email me at:

Pat O'Connor

May 19, 2008


St Giles Lymphoedema Support Group

For people with lymphoedema of the arms and legs, either cancer related or primary lymphoedema.  Offers one to one counselling, group work, telephone / clinic support, manual lymphatic drainage, literature and information on practical matters and benefits is available.
Address: Lymphoedema Clinic,
St Giles Hospital,
Fisherwick Road,
WS14 9LH
County: Staffordshire
Telephone: 01543 434514


Walsgrave Lymphoedema Support Group

A support group for people with lymphoedema caused by cancer.  Offers information, speakers and telephone support
Address: Lymphoedema Clinic, Oncology Unit,
Walsgrave Hospital,

County: Coventry
Telephone: 02476 538875
Notes: Catchment: Coventry, Nuneaton, Bedworth, Rugby, Hinckley, Solihull, Warwick, Stratford, Kenilworth, Redditch, Bromsgrove, Atherstone.


Lymphoedema Support Group: Newbury

For patients with lymphoedema resulting from any kind of cancer, mainly breast, also for those with non-cancer primary lymphoedema.
Address: Charles Clore Macmillan Day Centre,
Sandleford Hospital,
214 Newtown Road
RG14 7ED
County: Newbury
Telephone: 01635 32500 x 3362
Notes: Offers meetings which consist of a speaker followed by tea and general discussion or questions. Also has hosiery supplies and ML specialists. Informative newsletter sent out to members four times a year


Lymphoedema Support Group: Bradford on Avon

A support group for people with cancer related lymphoedema who are currently patients at Dorothy House Hospice, the Royal United Hospital, Bath, and the North Wiltshire local Lymphoedema Service.
Address: Dorothy House Hospice


Bradford on Avon
BA15 2LE
County: Wiltshire
Telephone: 01225 722988
Notes: Facilitated by Sister Miriam Hare, who runs the lymphoedema service at Dorothy House Hospice, the group offers leaflets, speakers, information and telephone support.


Lymphoedema Support Group: Tameside & Glossop

A support group for people with lymphoedema providing mutual support, guest speakers and social meetings.
Address: 44 Keb Lane,
County: Oldham
Telephone: 0161 626 9882
Notes: Catchment: Tameside and Glossop.


Scarborough Lymphoedema Support Group

A support group for people with lymphoedema.  Provides information booklets, visiting speakers, telephone support and peer group support.
Address: St Catherine's Hospice
137 Scalby Road
YP12 6TB
County: North Yorkshire
Telephone: 01723 351421
Notes: A lymphoedema support nurse, breast care nurse and hospice physiotherapist are involved with the group in an advisory capacity.


Hull Lymphoedema Support Group

A support group for people with lymphoedema, their friends, carers and family.  Provides telephone and personal support, information, visiting speakers and access to complementary therapies and massage.
Address: Oncology Department
Princess Royal Hospital
County: North Yorkshire
Telephone: 01482 676625


Northern Ireland

The Northern Ireland Lymphodema Support Group (NILSG) was established in 2002 by a small group of people with lymphoedema together with their physiotherapist. They are based in Belfast as you can find out more on their web site at


Ashford, Kent
Ashton-in-Makerfield, Lancs
Basingstoke, Hampshire
Bath & District
Blackpool, Lancashire
Bradford, West Yorkshire
Bristol & District
Chesterfield, Derbyshire
Chichester, West Sussex
Coventry, Warwickshire
Crawley, West Sussex
Devon (North)
Eastbourne, East Sussex
Enfield and Edmonton
Essex (South)
Exeter & District
Fazakerley, Liverpool
Guildford, Surrey
Kendal, Cumbria
Lancaster, Lancashire
Leeds, West Yorkshire
Leicester, Leicestershire
Lichfield, Staffordshire
Liverpool, Merseyside
London (Chelsea)
London (Greenwich & Bexley)
Newbury, Berkshire
Northampton, Northants
Norwich, Norfolk
Orpington, Kent
Preston, Lancashire (St Catherine's Hospice)
Preston, Lancashire (Vine House)
Rotherham, South Yorkshire
Scarborough, North Yorkshire
Stoke-on-Trent, Staffordshire
Taunton, Somerset
Thanet & North Kent
Truro, Cornwall
Walsall, West Midlands
West Cumbria
Weymouth, Dorset
Wokingham, Berkshire
Wolverhampton, Staffordshire
Worthing, West Sussex
Yeovil, Somerset


Aberaeron, Ceredigion
Llandrindod Wells, Powys
Wrexham, Clwyd


Support Group Page LSN

For Specific Information, please contact:

Lymphoedema Support Network

See Page: LSN SUPPORT GROUPS for additional information


Lymphoedema Information and Forum


Social Security and Pensions - United Kingdom

Lymphoedema Government Resources - United Kingdom

Lymphoedema Therapists - United Kingdom

Lymphoedema Resources - United Kingdom


Join us as we work for lymphedema patients everywehere:

Advocates for Lymphedema

Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.


Pat O'Connor

Lymphedema People / Advocates for Lymphedema


For information about Lymphedema\

For Information about Lymphedema Complications

For Lymphedema Personal Stories

For information about How to Treat a Lymphedema Wound

For information about Lymphedema Treatment

For information about Exercises for Lymphedema

For information on Infections Associated with Lymphedema

For information on Lymphedema in Children

Lymphedema Glossary


Lymphedema People - Support Groups


Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.



Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!




If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.



All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.



Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.


Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.



All About Lymphedema

For our Google fans, we have just created this online support group in Google Groups:


Group email:


Lymphedema Friends

If you an AOL fan and looking for a support group in AOL Groups, come and join us there.


Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet?  Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more.  Come and take a stroll! 

Lymphedema Glossary 


Arm Lymphedema 

Leg Lymphedema 

Acute Lymphedema 

The Lymphedema Diet 

Exercises for Lymphedema 

Diuretics are not for Lymphedema 

Lymphedema People Online Support Groups 



Lymphedema and Pain Management 

Manual Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT) 

Infections Associated with Lymphedema 

How to Treat a Lymphedema Wound 

Fungal Infections Associated with Lymphedema 

Lymphedema in Children 


Magnetic Resonance Imaging 

Extraperitoneal para-aortic lymph node dissection (EPLND) 

Axillary node biopsy

Sentinel Node Biopsy

 Small Needle Biopsy - Fine Needle Aspiration 

Magnetic Resonance Imaging 

Lymphedema Gene FOXC2

 Lymphedema Gene VEGFC

 Lymphedema Gene SOX18

 Lymphedema and Pregnancy

Home page: Lymphedema People

Page Updated: Nov. 29, 2011