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Lymphoedema Organizations Australia

Lymphedema organizations, suuport groups and information in Australia.

Pat O'Connor

May 19, 2008



The Lymphoedema Association of Australia
Address: 94 Cambridge Terrace, Malvern, SA 5061
Telephone: (08) 8271 2198
Fax: (08) 8271 8776


Support Groups



Lymphoedema Support Group
Address: 19 Bardsley Pl, Holt, 2615
Telephone: (02) 6254 4753



Lymphoedema Support Group of NSW Inc
Address: 204/9 Everton St, Pymble, NSW 2073
Telephone: (02) 9402 5625
Contact person: Ms Barbara Smith


Support groups are being set up at Westmead, Mt Wilga Hospital, St George Hospital and Royal Prince Alfred Hospital for lymphoedema. Their aims are to provide support for people living with lymphoedema and provide education and information on lymphoedema. Meeting details can be obtained through the following contacts:

• Westmead: Lara Griffiths on (02) 9845 6500
• Mt Wilga Hospital: Barbara Smith on (02) 9402 5625
• St George Hospital: Lianne O'Brien on (02) 9350 2163
• Royal Prince Alfred Hospital: Sally Latchford on (02) 9515 9965

Charge of $2 per person to cover coffee/tea/biscuit costs.


Northern Territory

Breast Cancer Support Group, run by the Cancer Council NT

For more information, contact:

Ms Shirley Preston, Phone: 89819000



Lymphoedema Association of Queensland Inc.

Ms Nerida Smith President 
PO Box 3068 
Bracken Ridge Q 4017
Ph/Fax  07 3269 1498

BRISBANE: Meeting 2nd Wednesday of month 10.00 am to 1Noon.
Cost - Gold coin donation. Refreshments served at close of meeting. Train and Bus transport to centre. Free car parking.

PO Box 3068
Bracken Ridge, Qld, 4017
.Ph: 07 3269 1498
Meeting Room
Toowong Library, Toowong Village
Shopping Centre,
BUNDABERG: Meets Bi-Monthly, 3rd Monday at 10.00am. Recreation Room, Mater Hospital, (from Hope St) Bundaberg.


Olga  Ph: (07)4152 8507 

Ph: (07) 4152 1713
Recreation Room
Mater Hospital (from Hope St)
Bundaberg, Qld, 4670
TrCAIRNS: The Association will support interested persons/members wishing to form a support group in their area.e

GOLD COAST: Meets 4th Thursday of month 10.00am to Noon. January to November at Senior Citizens, T E Peters Drive, Broadbeach Waters.


Ph: 07 5563 1423
Senior Citizens, T E Peters Drive,
Broadbeach Waters.

r: MACKAY: Meets Monthly, 1st Friday at Noon.St Rita's Function Room, Mater Hospital, Mackay.



Joy  Ph: (07) 4956 1184

Ph: (07) 4956 5142

St Rita's Function Room
Mater Hospital
SUNSHINE COAST: Meets Monthly, 4th Monday at 10am at Queensland Cancer Fund, Maroochydore.


Ph: 07 5446 8668

Ph: 07 5492 4437

Meeting time 10am.
Queensland Cancer Fund, cnr Maroochydore and Baden Powell Rds, Maroochydore

TOOWOOMBA: Meets QCF periodically for information sessions.
Contact: Brenda Ph: 07 4613 5318 or
Alex at QCF Ph: 07 4638 4799

Meets 1st Tuesday 10am, QCF, 24 Warburton St,
Contact: Pat
Ph: 07 4723 6745


South Australia

SA: Lymphoedema Support Group of South Australia,  
211Ms Trish Simmonds  President 
PO Box 211 Surry Downs SA 5126
Ph 83386300


Lymphoedema Support Group -Yorke Peninsula Kadina Rene Piezy



Lymphoedema Support Group

Tasmanian Lymphoedema Centre Inc.,
Jean Legge President  
Phone 03 63722391, 
Email , 
Address: "Cullenswood" St MARYS 7215  
Kate Williams Vice Pres. 03 63722900, , PO BOX 55 ST MARYS 7215.



Lymphoedema Association of Victoria

Vic Lymphoedema Association of Victoria Inc.: 
Kaye Splatt President  Nicky Zanen Vice President
PO Box 83 Ashburton, Vic. 3147
Phone 1300 852 850 (all information requests)

Support Groups Phone: 1300 852 850 For details
Ballarat Support Group Ballarat Kay John
Eastern Lymphoedema Support Group Surrey Hills Dianna Scrivener
Geelong Lymphoedema Support Group Belmont Betty Sapwell
Gippsland Lymphoedema Support Group Traralgon Wendy Steenbergen
San Remo Lymphoedema Support Group Bass Coast Community Health Yvonne Mc Rae
  Service Ruth Rowell
  1 Back Beach Road, San Remo
Werribee Mercy Hospital Werribee Bill Shepherdson


Western Australia

Lymphoedema Association of WA
C/- 215 Nicholson Road - Shenton Park WA 6008

Telephone: (08) 9497 1378
Contact person:  Kay Dawson -



Lymphoedema Forum and Information

Lymphoedema Therapists - Australia

Lymphoedema Therapists - New Zealand

Lymphoedema Government Resources - Australia and New Zealand


Join us as we work for lymphedema patients everywehere:

Advocates for Lymphedema

Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.


Pat O'Connor

Lymphedema People / Advocates for Lymphedema


For information about Lymphedema\

For Information about Lymphedema Complications

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For information about How to Treat a Lymphedema Wound

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For information on Infections Associated with Lymphedema

For information on Lymphedema in Children

Lymphedema Glossary


Lymphedema People - Support Groups


Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.



Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!




If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.



All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.



Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.


Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.




Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet?  Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more.  Come and take a stroll! 

Lymphedema Glossary 


Arm Lymphedema 

Leg Lymphedema 

Acute Lymphedema 

The Lymphedema Diet 

Exercises for Lymphedema 

Diuretics are not for Lymphedema 

Lymphedema People Online Support Groups 



Lymphedema and Pain Management 

Manual Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT) 

Infections Associated with Lymphedema 

How to Treat a Lymphedema Wound 

Fungal Infections Associated with Lymphedema 

Lymphedema in Children 


Magnetic Resonance Imaging 

Extraperitoneal para-aortic lymph node dissection (EPLND) 

Axillary node biopsy

Sentinel Node Biopsy

 Small Needle Biopsy - Fine Needle Aspiration 

Magnetic Resonance Imaging 

Lymphedema Gene FOXC2

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 Lymphedema Gene SOX18

 Lymphedema and Pregnancy

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Page Updated: Nov. 29, 2011