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Lymphedema Treatment Legislation 

Motivation for Lymphedema Treatment Legislation 

1. Health System Burden

Senior population to double by 2030
CDC: Expect increasing demands on health system

ATLANTA, Feb. 13 — America’s population of senior citizens is expected to double by 2030 to 71 million, and the nation needs to begin preparing for the demands they are going to put on the health care system, the government said Thursday.

     BETWEEN 2000 and 2030, the number of Americans 65 or older will increase from 35 million to 71 million, or from 12.4 percent to nearly 20 percent of the population, the Centers for Disease Control and Prevention said. The increase reflects both the aging of the baby boom generation and major improvements in life expectancy. “Increased life expectancy reflects ... the success of public health interventions,” the CDC said. “But health programs must now respond to the challenges created by this achievement.” The chronic diseases associated with aging will mean increased demands on the nation’s medical and social systems.

       Health officials should expand their focus from infectious diseases and maternal and child health to promoting health in older adults, preventing disabilities and maintaining quality of life, the CDC said. “We think it’s time for public health to really pay attention to this,” said Dr. Suzanne Smith, chief of the CDC’s health care and aging studies branch. “We can extend the period of higher functioning, which means people can stay in their homes longer, can reduce the burden on long-term care givers and people can have a happy life.

              © 2003 Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

2. Patient Burden

“Indirect Economic Effects of Long-Term Breast Cancer Survival” Thomas N. Chirikos PhD, Anita Russell-Jacobs MPH, Alan B. Cantor PhD, Cancer Practice, September 2002, Volume 10, Issue 5, Page 248. 

    Purpose: The indirect morbidity/disability costs of breast cancer may be rising as a consequence of the growth in the population of long-term survivors. This study was conducted to test whether women who have survived breast cancer for at least 5 years experience long-lasting or  continuing economic consequences that are attributable to their disease.

     Description of Study: A group of 105 women who initially had been treated for breast cancer approximately 5 years before were interviewed to obtain data on economic, demographic, and health changes in the period since diagnosis. An age-matched and work-matched group of 105 women without cancer also was interviewed to obtain the same data for the same time period. Key changes in the economic position of subjects and their families were measured, including changes in work effort, pay rates, and annual earnings of working women and changes in household earnings, income, and assets of all women.

     Results: These preliminary empirical findings suggest that breast cancer exacts an economic toll from long-term survivors. In particular, survivors who were working at the time of their diagnosis experienced significantly larger reductions in annual market earnings over the 5-year study period than did working control subjects. These losses appear to arise mostly from reduced work effort, not changes in pay rates. Also, changes in total household earnings were lower for survivors, suggesting the presence of family adjustments to the disease. However, no significant differences were detected between the groups in changes in total income or assets over the study period.

Clinical Implications: Clinicians and policy makers must seek ways to minimize the indirect economic losses attributable to breast cancer.

 Courtesy of Bob Weiss


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Lymphedema Glossary


Lymphedema People - Support Groups


Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.



Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!




If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.



All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.



Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.


Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.




Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet?  Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more.  Come and take a stroll! 

Lymphedema Glossary 


Arm Lymphedema 

Leg Lymphedema 

Acute Lymphedema 

The Lymphedema Diet 

Exercises for Lymphedema 

Diuretics are not for Lymphedema 

Lymphedema People Online Support Groups 



Lymphedema and Pain Management 

Manual Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT) 

Infections Associated with Lymphedema 

How to Treat a Lymphedema Wound 

Fungal Infections Associated with Lymphedema 

Lymphedema in Children 


Magnetic Resonance Imaging 

Extraperitoneal para-aortic lymph node dissection (EPLND) 

Axillary node biopsy

Sentinel Node Biopsy

 Small Needle Biopsy - Fine Needle Aspiration 

Magnetic Resonance Imaging 

Lymphedema Gene FOXC2

 Lymphedema Gene VEGFC

 Lymphedema Gene SOX18

 Lymphedema and Pregnancy

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Page Updated: Dec. 15, 2011