Lymphedema Treatment Law
Case for a
Lymphedema Treatment Law
Millions of dollars are being spent unnecessarily by medical providers to treat cellulitis and lymphangitis resulting indirectly from denials by Medicare of the preventive treatment modalities accepted by NIH NCI, ACS, ISL, NLN, LRF and most other knowledgeable medical and therapeutic organizations;
Hospital emergency facilities and personnel are being unnecessarily used by lymphedema patients in treating avoidable infections;
Millions of dollars are being spent unnecessarily in needless appeals of Medicare denials around the country--many of which are being reversed by Administrative Law Judges who recognize that the current standard of lymphedema care includes CDT.
Millions of dollars are being wasted because the expensive
pneumatic pumps are ending up unused by patients who find that they
or have caused further bodily damage--and these same patients are
from seeking the treatment most likely to help them because there is no
of this treatment.
Millions of dollars are being wasted in administering pharmaceuticals to manage the pain caused by the swelling of untreated or undertreated lymphedema.
Millions of dollars are being wasted to compensate for the disability
inability to walk or drive or to do useful work with the arms and hands
of the swelling of untreated lymphedema, and the time-off during
to treat cellulitis.
With the current Medicare crisis in the news, this may be a good time to present a new law to treat lymphedema from all causes, primary as well as secondary, as a means of REDUCING medical costs to citizens as well as the Government. Such legislation has been sponsored at the State level by Delegate Leo Wardrup in Virginia (in effect since January 1, 2004) and proposed by Senator Susan Fargo in Massachusetts and Assemblywoman Adele Cohen in New York.
Elements of this new legislation should include:
a. A mandate that all health insurance providers cover the costs of
b. Treatment defined to include a complete course of manual lymph drainage/ complete decongestive therapy (Phase 1) when medically required performed by nurses or physical, occupational, or message therapists licensed or certified by the appropriate governing board to perform treatments for lymphedema;
c. Initial course of treatment (Phase 1) shall include training the patient to perform self treatment in a home setting (Phase 2), including self-manual lymphatic drainage, bandaging, wearing and care of compression garments, use of specialized manually adjustable devices, donning aids, and other required ancillary equipment and techniques for self-measurement;
d. Include coverage for follow-up treatments when medically required or to periodically validate home techniques;
e. Include coverage of any compression sleeves and bandages recommended by the patient’s qualified caregiver with replacements when required to maintain the compressive function;
f. The plan of treatment should be determined by a qualified physician knowledgeable of the diagnosis and current treatment of lymphedema, or a certified lymphedema therapist. Limitations on treatment shall be based on medical necessity, not rules for rehabilitative physical therapy;
g. Denials of treatment of lymphedema shall only be made by a licensed physician or surgeon who is qualified to treat the condition for which treatment is being denied.
h. Periodic measurements shall insure the effectivity of the treatment plan and patient compliance, and be used to modify the treatment plan as required or to determine the need for followup courses of treatment.
i. The benefits under this law shall apply to the extent that benefits are covered under the general terms and conditions of the coverage policy, and are subject to the same deductable and co-insurance conditions applicable to other benefits.
Lymphedema treatment is a “win/win” situation. It is good medicine and good business. The time has come to fight this "hidden epidemic" lymphedema. I am prepared to support efforts with sample laws, back-up materials, cost-efficacy analyses, social/fiscal/medical impact statements, fact sheets, etc. Please feel free to contact us for any help you may need.
Lymphedema Treatment Advocate
National Lymphedema Network
For information about Lymphedema
For Information about Lymphedema Complications
For Lymphedema Personal Stories
For information about How to Treat a Lymphedema Wound
For information about Lymphedema Treatment
For information about Exercises for Lymphedema
For information on Infections Associated with Lymphedema
For information on Lymphedema in Children
Lymphedema People - Support Groups
The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.
No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.
Come join, be a part of the family!
MEN WITH LYMPHEDEMA
If you are a man with
lymphedema; a man with a loved one with lymphedema who you are trying
and understand come join us and discover what it is to be the master
the sufferer of lymphedema.
Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.
Disorders Support Group @ Yahoo Groups
While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.
Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.
Lymphedema People New Wiki Pages
you seen our new
“Wiki” pages yet? Listed
are just a sample of the more than 140 pages now listed in our Wiki
are also working on hundred more.
and take a stroll!
are not for
Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT)
to Treat a Lymphedema
para-aortic lymph node dissection (EPLND)
Needle Biopsy - Fine Needle Aspiration
Lymphedema Gene VEGFC
Lymphedema Gene SOX18
Home page: Lymphedema People
Page Updated: Dec 20, 2011