Lymphedema Support Groups
Meeting Times, Places, Contacts
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This information on lymphedema support groups was as current as given to us. Please first contact the listed group to see if they are still meeting and for further information. If you know of incorrect information, or if your group information has changed, please email me at: lymphedemapeople@aol.com
May 18, 2008
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ALABAMA
Lymphedema Support Group of Etowah County, Alabama
215 WALNUT
STREET - SUITE 2
GADSDEN, AL - 35901
telephone:
256.546.1431 - fax: 256.546.1433
e-mail: otgadsden@bellsouth.net
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ARIZONA
Lymphedema Support Group
Banner Thunderbid Medical Center
5555 W.
Thunderbird Road
Glendale, AZ 85306
(602) 865-5555
A free support
group for adult lymphedema/breast cancer
patients, survivors and support persons. The group meets the 3rd
Monday of each month from
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ARKANSAS
Lymphedema Support Group
3rd Tuesday 11:00am – 12:30pm
10 th Floor Room 1017 ACRC
For Patient & Caregivers
Lunch is provided
University of Arkansas Medical Services - 4301 W. Markham St., Little Rock, AR 72205
ACRC Clinical Oncology Social Work Department 686 - 8145 or email WisonAvisF@uams.edu.
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CALIFORNIA
| Lymphedema Support Group Dates: First Thursday Time: 6:00 to 7:30 pm Place: Room 2207, 2nd Floor, 2001 Dwight Way, Berkeley Contact: (510) 204-2548 |
|
Lymphedema Awareness
Workshop Dates: First and Third Tuesdays Time: 4:00 to 5:30 pm Place: Patient Resource Center, 2001 Dwight Way, Berkeley Contact: (510) 204-5263 to register |
Alta Bates Summit Medical Center
........
Lymphedema Support Group
- third Tuesday of every month, 7 p.m.
- check meeting board in hospital for location
Eden
Medical Center
20103
Lake Chabot Road
Castro Valley, CA 94546-5367
(510) 537-1234 Phone
(510) 889-6506 FAX
(510) 582-8882 TTY
e-mail: edeninfo@sutterhealth.org
........
Lymphedema
Support
Group for Women
6435 Van Maren Lane
Citrus Heights, CA 95621
Opening Hours:
Fourth Wednesday of each month from 2 to 4 p.m.
Description of
Services:
Peer-led lymphedema support group. Meetings held at Sutter Cancer
Center.
Donations from participants encouraged.
........
Lymphedema Support Group
Stevens Cancer Center, Women’s group in La Jolla - UCSD Cancer Center
858-626-5207
........
Lymphedema Support Group
Meets third Tuesday of each month at 6:30 p.m.
Physical Performance Institute - Community Hospital of Los Gatos
555 Knowles Dr., Suite 101 Los Gatos
Community
Hospital of Los Gatos
815 POLLARD ROAD
LOS GATOS, CA 95030
Ph: 408-378-6131
Fax: 408-866-4003
Email
Us
........
Lymphedema Support Group
Marin General Hospital - Cancer Services
Lymphedema
Support Group – for anyone diagnosed with upper or lower
extremity lymphedema
Meets 2nd Monday of the Month, 7:00 pm – 8:30 pm
The Marin B.R.E.A.S.T. Center – Lobby Level
Registration encouraged. Facilitated by Suzi Beattie.
No charge for attendance. Please call Jane Kraft, LCSW at (415) 925-7787.
........
Lymphedema Support Group- Meets first Tuesday of each month at Hoag Cancer Center Auditorium, Newport Beach, 2:00-3:00 pm. Patients, family, friends, and members of the community are welcome. No fee to attend. For information please call (949) 760-5542
........
Lymphedema Support Group for
Women
Sutter Cancer Center
2800 L Street
Sacramento, CA 95816
Information and support from educated providers and an opportunity to talk to women in the same situation.
Date/Time:
Fourth Wednesday of each month
except November and December, 2 - 4 p.m.
Contact: Lois Phillips, (916) 422-5973
........
San Fransisco area - lymphedema support group
San Francisco - Bay Area Lymphedema Support Group (415) 921-2911
........
Able Therapy Services
1411 Marsh St.
Suite 107, San Luis Obispo, CA 93401
Contact person is Leslyn Keith,
M.S., OTR/L at (805) 782-9300, fax (805) 782-9700,
email leslynk@hotmail.com
Support Group meets the Second Monday at 4:00
........
Lymphedema Discussion Group offered by Torrance Memorial and The Wellness Community-South Bay Cities (TWC-SBC) offering educational, clinical, psychological and social support to anyone with lymphedema. Held the last Tuesday of every month (except August and December) from 12 noon to 1:30 p.m. in Room 4. For more information please call TWC-SBC 310-376-3550 [www.wellnessandcancer.org] or Paula Bauer, RN, MSN, 310-517-4665.
The
Wellness
Community
South Bay Cities
109 West Torrance Boulevard, Suite 100
Redondo Beach, California 90277
Phone: 310-376-3550
Fax: 310-372-2094
E-Mail: info@wellnessandcancer.org
........
Lymphedema Support Group - UCLA
Lymphedema
Center,
Emily Iker-d’Harnoncourt, M.D.
2021 Santa Monica Blvd.
Suite 620 East
Santa Monica, CA 90404 US
Tel: 1-310-829-7472
Web: www.lymphedemacenter.com/
Offers: Treatments, Support Organization
Emily Iker,
M.D.,
leads this group. Friends and family are welcome.
Second Wednesday of each month, 5:30 – 6:30 p.m.
Call (310) 829-7472 for details.
........
Lymphedema Education &
Resource Group, California Pacific
Medical Center - Breast Health Center, 1st floor,
3698 California Street
1st Floor
San Francisco, CA 94118-1702 US
WWW: www.adventurebuddies.net/
Offers: Support Organization
The Lymphedema Education & Resource Group holds free monthly meetings on the 3rd Wednesday of every month from 5:00 to 7 PM. Meetings are held at the California Pacific Medical Center in San Francisco. The exception is that there are no meetings in November and December.
For details, and a possible change of meeting time (starting at 5:30), visit the Adventure Buddies website under the heading of education.
........
Hollywood Physical Therapy
Association,
Lymphedema Treatment Program
7080 Hollywood Blvd.
Suite 815
Hollywood, CA 90028-6935 US
Tel: 1-323-957-9571
WWW: www.hollywoodpt.com
Offers: Treatments, Support Organization
The free support group meets on the first Thursday night of each month at this facility. It is not necessary to be a patient to be a member of this group. More information is available by telephoning 323-957-9571
........
Location: John
Muir Medical Center, Concord
Campus
Date: 2nd Saturday
Time: 10 a.m.
Phone: 674-2125
Support is provided for lymphedema patients and their families as well as caregivers and practitioners.
2540 East
Street
Concord, CA 94520
(925) 682-8200
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CONNECTICUT
Circle
of Hope Lymphedema Educational Forum and Support Group
We meet on the first Wednesday of the month from 5:30PM - 7:30 PM. We
meet in
Waterbury CT. at the Harold Leever Regional Cancer Center. We have
professionals
come in and talk on all aspects of lymphedema treatment, continuing
care at
home, insurance coverage, legislation, research and psycho-social
aspects of
lymphedema. The support group also has a special time at each meeting
for it's
members to share their feelings and comments with the group.
Contact: JT@lymphedemacircleofhope.org
........
Lymphedema Support Group
Stamford Health System
30 Shelburne Road
Stamford, CT 06904-9317
(203) 276-1000
Who: Individuals suffering from lymphedema who would benefit from a
supportive
and educational group
Where: Tully Health Center
When: Quarterly on Tuesday evening
Contact: Outpatient Rehab, 203-276-2665
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FLORIDA
Current Community Networks
........
Lymphedema Support Group - Aventura, Florida
| Lymphedema Support Group: for individuals interested in the prevention and treatment of lymphedema symptoms. | |
|
ACCC |
|
2nd Tuesday each month |
|
5:30 to 7:30 PM |
........
Blake Medical Center
2020 59th. Street, Bradenton, Florida
Sponsored by the Occupational Therapy Department and the National Lymphedema Network, the group meets the third Wednesday of the month at Blake Medical Center in the Dolphin/Pelican Room at 3:00pm. For more information, call 941-798-6170.
........
The Daytime Lymphedema Support Group,
Casselberry,
FL
This group has been meeting for over three years. Each newcomer
receives a
folder containing basic information. Members receive an educational
handout at
each meeting and share something about their lymphedema situations; few
of the
meetings have formal speakers. Join the group from 1:30 pm to 3:00 pm
on the
third Wednesday of each month except December and January.
Main Branch Library
215 N. Oxford Road
Casselberry, FL
........
Southwest
Florida Regional Medical Center
2727 Winkler Avenue
Fort Myers, FL 33901
Telephone: (239) 939-1147
Fax: (239) 939-8284
You May Also Visit Us At http://www.swfrmc.com
Support Groups
The Southwest Florida Regional Medical Center Lymphedema Support Group meets on the second Saturday of each month from October through May from l0:30 am to Noon. For more information telephone Claire Hauenstein at 239-992-4965 or by e-mail at lymphedemares@aol.com.
This is an
informal group where people who have
lymphedema, are at risk of developing lymphedema, or have an interest
in the
topic are invited to join together to share experiences and
information. Each
meeting has a featured speaker of interest to attendees.
........
Greater
Orlando, FL:
Tel: 407-862-8642
email: fdavila@elymphnotes.org
........
Margate, Florida
Northwest Medical Center
A
free Lymphedema
Support Group Meeting is held on the 2nd Wednesday of the
month at 1 PM.
These meetings are open to those with
lymphedema, family,
friends and caregivers.
The meetings, which are facilitated by Cathy Kleinman-Barnett MOTR/L, CLT-LANA, LMT, CLM, are held at Northwest Medical Park, 2960 North State Road 7 (441) Suite 104, Margate, FL.
For more
meeting details telephone Cathy at 954-978-4180.
Cathy Kleinman-Barnett, MOTR/L, CLT-LANA, LMT
........
Miami, Florida
Miami
lymphedema support
group meeting
Where: Kendall
Regional Medical Center
Rehabilitation department
(2nd floor)
11750 Bird road
Miami, Florida 33175
When: Wednesday November 17 at 9:00 am
(1 hour)
For any information you can call us at 305-227-5589
ask for Gloria, Marina or Laura
........
Lymphedema Support Group
Kohly Center for Outpatient Rehabilitation - Mercy Hospital
For additional information, please call therapist Mary Harrison at (305) 285-2966.
Mercy Hospital
3663 South Miami Avenue
Miami, Florida 33133
(305) 854-4400
http://mercymiami.com/our-services/rehabilitation/services-and-support-groups.dothttp://www.mercymiami.org/Hospital_Services/Rehabilitation/Outpatient_Services_and_Support_Groups.asp
........
Naples. Florida
Bosom Buddies
please call Anne Schuch at 514-3845.
We meet the 2nd Wednesday and last Wednesday of each month at 7 PM in the Telford Educational Center which has covered parking, security and an elevator. The Telford Center is adjacent to Naples Community Hospital
........
Lymphedema
Resources, Inc.
Post Office Box 1115
Estero, FL 33928 US
Tel: 1-239-992-4965
WWW: www.lymphedemaresources.org/
Offers: Support Organization
The Lymphedema
Education Awareness Support
Group meets in Southwest Florida as an informal forum for
patients and
at-risk cancer survivors can share their experiences and information.
The
Southwest Florida group meets the second Saturday of every month
(October - May)
from 10:30 a.m. to noon at the Patty
Berg Cancer Center* at Southwest Florida Regional Medical
Center, 2727
Winkler Avenue, Fort Myers, Florida.
NOTE:
*Starting in October 2008 the group will be
meeting in a new location, to be announced here.
This
organization has a grant from Susan G. Komen
Breast Cancer Foundation to provide compression garments and bandages
to
underserved or underinsured women in certain areas.For more
information, e-mail
them at info@lymphedemaresources.org.
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GEORGIA
Lighthouse Lymphedema Support Group
ATLANTA — The Lighthouse Lymphedema support group will meet Thursday from 7 p.m. to 9 p.m. at the Cecil B. Day Wellness Center, 144 Mt. Vernon Road, Atlanta
770-921-1162 or 770-827-1723 for more information.
Website: http://lighthouselymphedema.org/
The goals of the Lighthouse Lymphedema Network are to provide support, create awareness and educate patients, caregivers, family members, professionals, and the community.
Each year, in January, the calendar of upcoming events is posted. This includes information about meeting dates, times, places, and topics.
........
Lymphedema Support Group - Ft. Gordon, Georgia
481-7235
Exceptional
Family Member Program (EFMP) -The
EFMP office is located in Darling Hall, Bldg. 33720, Suite 224, Army
Community
Service. The EFMP
provides
information and assistance to all soldiers and family members with
special needs
worldwide, especially within the Central Savannah River Area (CSRA).
........
Extending H.O.P.E. Support
Group,
Coliseum Medical Centers
340 Hospital Drive
Building E
Macon, GA 31217-3838 US
Tel: 1-478-765-7000
WWW: www.coliseumhealthsystem.com/
Offers: Support Organization
Extending H.O.P.E. is the lymphedema support group sponsored by the Coliseum Medical Centers of Macon GA. This group meets the first Wednesday of each month at 1:30 pm in the Coliseum Cancer Center, Bldg C.
For more information contact Sheila Fowler or Sonia Bearden through the Rehabilitation Department by telephoning 478-765-4884.
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HAWAII
Lymphedema Support Group
Kapiolani
Women's Center
1907 S. Beretania * Honolulu
Call (808) 973.6540 for information and registration
Lymphedema is a common but often misunderstood condition that affects the quality of life of many cancer survivors. It is caused when protein-rich lymphatic fluid accumulates in tissues, often causing visible swelling, tenderness and pain. Learn more about lymphedema, the latest treatment options and how it works.
This class is led by a physical therapist.
Call (808) 535-7000 for further information and to register.
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INDIANA
ParkView Health Center
Ft. Wayne Indiana
The Lymphedema Support Group, which meets the second Thursday of every other month (odd months) from 6:30 to 8 p.m., is open to all persons living with lymphedema. For more information, call Kathy Schaffer at (260) 749-2696 or (260) 373-3936.
http://www.parkview.com/HealthServices/Cancer/SupportServices/Pages/SupportGroups.aspx
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KANSAS
Lymphedema Support Group, 634-3495
........
Positive Encounters Lymphedema Support Group, 8340 Mission Rd, Ste. 100 Prairie Village, Ks 66206 Phone: (913) 438-8000
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INDIANA
Indianapolis Lymphedema Support Group
Meetings Held Quarterly on the Third Wednesday of the Month
Call for specific dates: 566-1858
6:30 pm - 8:00 pm
Little Red Door
Cancer Agency
1801 N. Meridian St.
Indianapolis, IN 46202
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ILLINOIS
Delnor-Community
Health System
300 Randall Road
Geneva, IL 60134
Where: Delnor-Community Health & Wellness Center in the South Conference Room
For
more information
For more information about the Lymphedema program and support group,
please
contact Jamie Olp in Delnor's Rehabilitation Services Department at
(630)
208-4592. The Lymphedema Support Group is newly formed and growing in
numbers.
All ideas and suggestions are welcomed.
........
Lymphedema
Support Group
Open to anyone who interested in sharing and gaining information about
lyphedema.
Meets the last Monday of every month from 6 to 8pm at Provena Saint
Joseph
Physical Rehab and Sports Injury Center, 2400 Glenwood Avenue, Joliet.
For more
information, call (815) 723-0383 or (815) 741-7114.
Joliet, Illinois
........
Genesis Health System - Moline, Illinois
Lymphedema Support Group
Category:
Cancer - Lymphedema
Date: Third Wednesday of each month
Time: Noon - 1:00 pm
Location:
Butterworth Center
1105 8th Street
Moline, IL
Description: Those dealing with breast cancer or who
had breast cancer
are invited to attend. A health professional from the Center for Breast
Health
serves as facilitator.
Contact: Call Roxanne at 309-764-2888 or Genesis On
Call at 421-2000 or
800-383-2575
........
Southland Lymphedema Support Group
HOMEWOOD -- Learn more about treatment options for lymphedema at Southland Lymphedema support group meeting from 6:30 to 8:30 p.m. Feb. 12 at Ingalls Wellness Center at Homewood-Flossmoor Racquet and Fitness Club, 2920 West 183rd St. For information or to pre-register, call Terry Wall at (708) 915-5013. Southland Lymphedema Support Group is a member of the National Lymphedema Network.
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LOUISIANA
West Jefferson Medical
Center , Rehab Connection
4519 Westbank Expressway
Marrero, LA 70072-3120 US
Tel: 1-504-349-6140
WWW: www.wjmc.org
Offers: Treatments, Support Organization
A community support group is offered at Rehab Connection quarterly, the last Tuesday of the month.Support group meetings usually feature a guest speaker on lymphedema related topics. Please telephone 504-349-6140 for more information.
........
Willis
Knighton Med Center,
Physical Medicine & Rehabilitation
2600 Kings HWY
Suite 400
Shreveport, LA 71103-3959 US
Tel: 1-318-212-8110
Offers: Treatments, Support Organization
The Lymphedema Support Group meets on the 4th Monday of each month, except for when this date is a holiday. Meetings are held at the Cancer Center in the 2nd floor conference room. Meetings are from 12:00 to 1:00 with drinks and snacks are provided. For more information, telephone 318-212-8110.
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MAINE
Lymphedema Support
|
Meetings are open to patients, family members, health care professionals and anyone wanting to learn more about lymphedema. |
|
Scheduled for the last Tuesday of each month at 6:30 PM |
|
Location: Boardroom, on the first floor of Maine Coast Memorial Hospital's Medical Office Building. |
|
|
|
Contact Maureen Giffin at 326-9656 for more information |
........
Mercy Hospital Lymphedema
Center
144 State Street
Portland, ME 04101 US
Tel: 1-207-879-3790
WWW: www.mercyhospital.com/
Offers: Treatments, Support Organization
A support group meets bi-monthly as does a general education class. Details are available
by telephoning the clinic at 207-879-3790.
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MARYLAND
Lymphedema Support Groups
| Fairfax, VA, Fairfax INOVA Hospital | 703-698-2841 |
| Kessler and Lerner Rehab Mid-Atlantic Lymphedema Center | |
| Annapolis,
MD Ellicott City, MD Rockville, MD Upper Marlboro, MD |
410-897-0120 410-964-4400 301-468-3670 301-808-6546 |
| Springfield, VA, Springfield Center for Women | 703-909-0399 |
........
Doctors Community Hospital
8118 Good Luck Road - Lanham, Maryland 20706 - 301-552-8118
Lymphedema Support
Group
Our quarterly support group meetings offer an open and
friendly forum for
patients, friends, and family members to discuss ideas, give hope,
provide
support, and share information with others. Speakers are also invited
to present
Lymphedema related topics, literature, and updates. These meetings
rotate dates
and alternate between days and evenings, so more interested individuals
have an
opportunity to attend. The group meets in the DSE
room (fifth floor) of the Medical Office
Building at Doctors
Community Hospital. For the schedule, additional
information, or to
register, please contact the Rehabilitation Department at 301-552-8144
or the
Lymphedema Clinic at 240-965-8410.
http://www.dchweb.org/dch/Newsroom/events/supportgroups.html
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MASSACHUSETTS
Greater Boston Lymphedema Network
........
Central MA Lymphedema Education and Resource Network, Inc. (Central MA LEARN)
PO
Box
443
East Brookfield MA 01515
508-865-8987
EMail: CMLEARN2002@aol.com
........
Lymphedema
Support Group at Bay State Medical Center, Springfield, Mass
Tel: 413-794-5432
Email: Tracie.Klekotka@bhs.org
| Name of Group: Name of Organization: Street: City: Phone: Contact Person: Starting Times: |
Lymphedema Support Group Baystate Medical Center Springfield 413-794-5432 Pat Drumm 4th Tuesday of the month, 3-4 pm, Baystate Medical Center, Rehabilitation Department |
........
Saint Anne’s Hospital,
Outpatient Rehab Services
222 Milliken Blvd
4th Floor
Fall River, MA 02721-1623 US
Tel: 1-508-646-9470
URL : www.saintanneshospital.org/
Offers: Treatments, Support Organization
Lymphedema treatment is provided by qualified therapists at Saint Anne's Hospital. For more information call 508-646 -9470
The Saint Anne’s Hospital Lymphedema Support Group meets on the second Monday each month from 6 to 7 pm on the 4th floor of Saint Anne’s Hospital. This education and support group offers a supportive environment for people living with lymphedema and/or caregivers of those with the disease to share their experiences and cope with the disease.
Participants in the lymphedema support group need not be patients of Saint Anne’s Hospital and are welcome at any time. Participants are encouraged to register in advance by contacting Diane DaSilva at 508-646-9470
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MICHIGAN
Lymphedema Support Group
Location:
Mastec
5080 Lovers Lane
Portage, MI
Day/Time: First Tuesday each month, 5:30 p.m. Contact: 616-373-6223 or
800.469-0143
*Meets only September through May
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MISSOURI
Mid-Missouri Lymphedema Network
One Hospital Drive
Columbia, MO 65212 US
Offers: Support Organization
Tel: 1-573-884-3827
........
Lymphedema Rehabilitation Support Group
Individuals participating in this group share the challenge of
lymphedema. This
group provides support through shared education, research, friendship,
and
discussion. It also maintains close ties with rehabilitation personnel
who are
present at all meetings.
Location: Shawnee Mission Medical Center, The Center
for Women's Health
Date: third Monday of each month
Time: 5:30-6:30 pm; bring a brown-bag dinner; drinks
and paper goods
supplied
Contact: 816-932-6220 or 1-800-932-6220 outside
Kansas City
........
Lymphedema Support of the Ozarks
Jan Weiss - 269-5500
CoxHealth, Springfield, Missouri | (417) 269-3000
Next meeting on October 5, 2004. Meets 1st Tuesday each month. To confirm, call Nora Burgess at 820-6373 - 6:30 PM - 8:00 PM - St.John's Cancer Center, 2055 S. Fremont, Room 116 Springfield, MO 65804 - This support group is a joint venture with CoxHealth. For additional Information, call Nora Burgess, R.N,. 417-820-6373
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NEW HAMPSHIRE
Southern
New Hampshire Lymphedema Support Group
Southern New Hampshire Rehabilitation Center
Nashua NH
Tel: 603-577-8400
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NEW JERSEY
Lymphedema Education and Support Group (973) 322-7293
This group provides individuals with an opportunity to participate in group discussions related to the treatment of everyday obstacles associated with lymphedema.
Saint
Barnabas Medical
Center
94 Old Short Hills Road
Livingston, New Jersey 07039
PHONE: (973) 322-5000 or 1(888) SBHS-123
info@sbhcs.com
........
Pascack Valley Hospital - 250 Old Hook Road, Westwood, NJ 07675
Pascack Valley Hospital’s Lymphedema Support Group provides support and education to patients who have had breast cancer surgery or have lymphedema. This group is facilitated by certified lymphedema therapists and is sponsored by the Lillian Booth Radiation Oncology Pavilion and the Department of Physical Medicine and Rehabilitation at Pascack Valley Hospital.
This group meets the second Wednesday of each month from 2-3 p.m. Registration is not required.
For further information about this program, please contact the Department of Physical Medicine and Rehabilitation at 201.358.3242
........
Lymphedema Support Group - Shore Memorial Hospital
1 East New York Avenue, Somers Point, NJ 08244
Lymphedema Support Group - 609 - 653 -3512
........
Norton Clinic for Lymphedema
& Physical Therapy
240 Wall Street
Suite 100
West Long Branch, NJ 07764-1181 US
Tel: 1-732-222-8556
URL www.NortonLymphPT.com
Offers: Treatments, Support Organization
The "Pea Pod, In it Together" support group meets at 5:30 pm on the first Tuesday of each month. Contact Tracey Towlen at the clinic for more information.
........
Lymphedema Support Group
Group Information (732) 294-2703
Support and education for coping with lymphedema. Facilitated by rehabilitation professionals with special knowledge of lymphedema.
Meets quarterly on the second Monday of the month (March 12, June 11, September 10, December 10) from 6 to 7 p.m. at the NEW Ambulatory Campus.
CentraState Healthcare System - 901 W. Main Street, Freehold NJ 07728
(732) 431-2000
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NEW MEXICO
Lymphedema Support Group - Albuquerque
Lymphedema Support Group: 7 p.m. first Tuesdays, 10433 Montgomery Parkway NE, Suite 400. 323-8811
........
Lymphedema Support group meets every 2nd Saturday of the month at Mountain View Regional Hospital , 4311 E. Lohman. Community Education Room A&B (first floor). Mirasol Lymphedema & Rehab Center offers a complete system of services for the management of swelling and wound care as well as general physical therapy services for a wide range of medical and surgical diagnoses with specialization in orthopedic dysfunction
MIRASOL
LYMPHEDEMA & REHAB CENTER
1180 Mall Drive, Suite A Las Cruces, NM 88011 (575)
556-8440 - Rehab Center -(505) 522-5852 Administrative - (505) 522-5850
Fax
Peter Ternedde & Rob Steinmetz, Directors
........
LYMPHEDEMA
SUPPORT GROUP OF LAS CRUCES
1705
E. University Ave., Las Cruces, NM 88001 - (505) 532-4420 Administrative
Peter
Ternedde, Director
SITE
HOURS: Second Saturday of
the month at 10:00 AM at the Solarium at Memorial Medical Center.
AREA SERVED: Southern New Mexico
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NEW YORK
Lourdes Regional Cancer Center - 169 Riverside Drive, Binghampton, NY 13905
607-798-5307
Lymphedema Support Group
Offering support to individuals and those affected by
lymphedema. Meetings:
2nd Wednesday of every month. Call for times and locations and more
information
Provided by:
Lourdes Hospital
Tel: (607) 798-6103
........
Lymphedema
Support Group
3rd Monday of each month 1:30-2:30 pm
For
both men and women with lymphedema. The group will discuss causes,
therapies,
treatments and other concerns.
Facilitated by: Norma Kresse, LMT, CLT Certified Lymphedema Therapist
This educational support group meets monthly at Hewlett House to
instruct men
and women who are cancer survivors how to live with Lymphedema through
specialized treatment protocols and addressing other topics such as
herbs &
nutrition, insurance reimbursement, compression garment fitting,
essential oils
and other resources. Hewlett House is the only location in Nassau
County that
addresses Lymphedema with an organized support group.
The group will meet at Hewlett House, 86 East Rockaway Road,
Hewlett, NY.
There is no fee, but registration is required by calling Sandy at
516-374-3190,
or click here to register online.
Facilitator: James F Kresse, AOS, CLT-LANA, and MLDT
For men and women with lymphedema.
“A Mind/Body Wellness Workshop”
........
Lymphedema Support Group
For Information: 315-797-8000
Sitrin Medical Rehabilitation Center
2050 Tilden Avenue, New Hartford, NY 13413 / 315-797-3114 (or) 888-578-8807
........
Lymphedema Support Group
Sitrin Medical Rehabilitation Center
Utica, NY 13501
Phone: 797 8000 ext 424
........
Lymphedema Support Group
Faxton-St Luke`s Healthcare
Utica, NY 13503
Phone: 738 6400
........
New York City Lymphedema Support &
Information
Group
1646 First Avenue #6C
New York, NY 10028 US
Offers: Support Organization
Maureen Schilling -
1646 First Avenue #6C, New York, NY 10028
e-mail: lymph@rcn.com
........
Lymphedema Support Group
American
Cancer Society
1400 N. Winton Rd. - Rochester, NY
800-227-4844
A free program offering support to individuals and those affected by lymphedema and for those at risk of developing this condition. Meetings are held at 7 p.m. on the 2nd Monday of each month (except in Dec, Jan and Feb). Call 716-288-1950.
........
Lymphedema Support
Group - Staten Island
1st Wednesday at 7:00 pm
Occupational Therapy Gym
NORTH - Staten Island University Hospital - 475 Seaview Avenue - Staten
Island,
NY 10305 - 718 226 9173
---------------------------------------
NORTH CAROLINA
Meets the
first Thursday of every month at 1004 Broad Street, Durham,
........
Lymphedema Support Group
Wellness One - 2418 Blue Ridge Road, Suite 100, Raleigh, NC 27607
Meets first Tuesday of the month - Contact: Michelle Snyder (919) 782 5954
---------------------------------------
OHIO
Lymphedema may
occur as a long-term complication following lymph node
dissection for a variety of cancers. The Lymphedema Support
Group provides
support and education for individuals who are experiencing this
condition.
Participants are also able to discuss the emotional, social and
occupational
impact of lymphedema as well as learn strategies for daily management.
For more information, call (614) 293-5066 or toll-free 1-800-293-5560.
Registration:
(614) 293-6428
........
Lymphedema Support Group
For persons with lymphedema, families, and friends.
Third Wednesday of month, 7:00pm
Drake
Center
151 West Galbraith Road
(at Conference Center)
Cincinnati, OH
(513) 948-2544
---------------------------------------
OKLAHOMA
Lymphedema
(Prevention and Education) _ Y-ME Breast Cancer Foundation
Fourth Thursday of each month
Y-ME Office
6:30-8:00 p.m.
Call Y-ME at (918) 494-8808 for more information
Beth
Cordingley, Executive Director
4606 East 67 th Street,
Building 7, Suite 314,
Tulsa, Oklahoma 74136
Business: (918)-494-8808
Fax: (918) 481-4837
Monday-Friday, 9:00 a.m.- 3:00 p.m.
---------------------------------------
OREGON
Medford -LYMPHEDEMA: Third Monday at Dubs Cancer Center. Call 608-5543 or 608-5102.
........
Tualatin 503-413-7753 4th Tuesday
........
Legacy Healthcare - Lymphedema Support Groups - 503-413-7348
........
Pendelton 541-938-3208
---------------------------------------
PENNSYLVANIA
Lymphedema Support Group
11:30 a.m. Thursday - Oct. 7 - Kaufman Dining Room - Call 949-4463
Bon Secours-Holy Family Hospital • 2500 Seventh Avenue • Altoona, Pennsylvania 16602
........
Lymphedema Support Group
Chestnut Hill HealthCare offers a variety of support groups designed to offer information and peer support. Times and locations vary. Please call 215-233-6240
........
Lymphedema Support Group
Held the third
Wednesday of the month
6:30pm at Complementary Care Center - Fox Chase Cancer Center
For information call Cheri Doll at 215-728-7000
Fox
Chase Cancer Center
333 Cottman Avenue
Philadelphia, PA 19111-2497
1-888-FOX CHASE (1-888-369-2427)
........
Lankenau
Hospital
100 Lancaster Avenue
Wynnewood, PA 19096
610-645-2000
........
Lymphedema Support Group........
Lehigh Valley Hospital
LVHHN
- Muhlenberg facility,
Outpatient Rehabilitation Services
2649 Schoenersville Rd
Bethlehem, PA 18017-7326 US
Tel: 1-484-884-2251
WWW: www.lvh.org
Offers: Treatments, Support Organization
........
LVHHN
Health Center at Trexlertown facility ,
Outpatient Lymphedema Therapy
6900 Hamilton Blvd
Trexlertown, PA 18087 US
Tel: 1-610-402-0221 (call for details)
........
Lymphedema Support Group
|
Lemont Physical Therapy,
Inc. |
We want to take this opportunity to invite you to our next support group meeting. We meet the second Thursday of every month at the Centre County United Way from 7:00 p.m. to 8:30 p.m. The Centre County United Way is located at 2790 West College Avenue, State College, PA
If you would like more information you may contact Dennis Fasekas, Support Group Coordinator at either 814-861-6608 or 814-693-8669 or email him at wopsytradr@aol.com (in the subject line please put Support Group).
---------------------------------------
RHODE ISLAND
Rhode
Island Support Group
Hope Center for Cancer Support
Providence, RI
401-739-4984
---------------------------------------
SOUTH DAKOTA
Lymphedema Education & Support Group
This support group offers lymphedema patients, their families and
friends an
opportunity to meet and discuss their feelings and concerns. For dates
and times
of these support groups, please call the Sioux Valley Clinic - Breast
& Bone
Health Institute at 605-328-5244.
Souix
Valley Health System - 605-333-1000
info@siouxvalley.org
1305
West 18th Street
PO Box 5039
Sioux Falls, SD 57117-5039
---------------------------------------
TENNESSEE
Middle Tennessee Medical Center - Murfreesboro, Tennessee
Lymphedema Support Group
Support and education for patients and their families. Contact
Linda Bullard, LPTA, 396-6733.
Lymphedema Fund – Founded in 2004 by MTMC physical therapist Linda Bullard, the Lymphedema Fund provides anti-swelling garments for indigent Lymphedema patients.
Phone Directory (Area Code 615)Main Number 396-4100
Rehabilitation Services 396-5584
URL: http://www.mtmc.org/
........
Lymphedema support group: Meets 6-7 p.m. every second Tuesday, Vanderbilt Stallworth Rehabilitation Hospital, third floor pediatric classroom. 963-4018.
2201 Capers
Ave.
Nashville TN 37212
(615) 320-7600
Lymphedema News Article: http://www.mc.vanderbilt.edu/reporter/index.html?ID=499
........
Siskin Hospital ,
Lymphedema Clinic
1 Siskin Plaza
Chattanooga, TN 37403-1306 US
Tel: 1-423-634-1246
Website: www.siskinrehab.org
Offers: Treatments, Support Organization
This group meets every other month on the second Thursday between 6:00 pm and 7:00 pm on second floor in patient dining room and features a specialty speaker.
Refreshments provided and you are invited to bring a friend! For meeting information call 1-423-634-1246 and ask for John.
........
St.
Thomas Health Services: Brentwood,
Rehab Services: Lymphedema Clinics
5101 Maryland Way
Brentwood, TN 37027 US
Tel: 1-615-369-0906
WWW: http://www.sthslifetherapies.com/
Offers: Treatments, Support Organization
St.
Thomas Health Services: Green Hills,
Lymphedema Clinic
2002 Richard Jones Rd.
Nashville, TN 37215 US
Tel: 1-615-292-1253
WWW: http://www.sthslifetherapies.com/
Offers: Treatments, Support Organization
A support group is also available for area patients. For more information telephone 1-615-292-1253
Physical Therapist, with postgraduate lymphedema training
Tel: 1-615-292-1253
St. Thomas Life Therapies: Green Hills
Nashville, TN 37215
Certified Lymphedema Therapist
St.
Thomas Health Services: Harding Road,
Lymphedema Clinic
4220 Harding Rd.
Nashville, TN 37205 US
Tel: 1-615-222-6671
WWW: http://www.sthslifetherapies.com/
Offers: Treatments, Support Organization
---------------------------------------
Lymphedema Support GroupThe Lymphedema Support Group provides an opportunity for individuals to share information concerning lymphedema therapy protocols, nutrition, diet and exercise. Different speakers make presentations on various topics. The goal of the Lymphedema Support Group is to provide participants with information on how to better manage their condition. Individuals with lymphedema, or those who are at risk for developing lymphedema, are encouraged to attend this group. This group meets the second Thursday of each month at 6:30 p.m. at the Harris Methodist HEB Hospital Physical Medicine and Rehabilitation Center located at 251 Westpark Way, Euless, Texas. For more information, please call (817) 355-8151.
........
LYMPHEDEMA
SUPPORT GROUP (MULTI-CULTURAL) OF EL PASO
4707
Montana Suite 203
El
Paso, TX 79903 - (505) 532-4420 - Spanish - (915) 860-6129 - Spanish --
(915)
565-9733 English Speaking Only
Peter
Ternedde, Director and Facilitator
AREA SERVED: El Paso and southern New Mexico
........
Lymphedema Support Group
Christus St. Michael Healthcare - Texarkana, Texas
The Lymphedema Support Group meets the last Tuesday at 12 noon of every other month at CHRISTUS St. Michael Rehabilitation Hospital Dogwood Room. Meeting months are January, March, May, July, September, and November. Call 903-614-4409 for information
........
H.O.P.E.
Lymphedema Treatment Center, (Helping Out
People with Edema)
9914 Highway 90
Suite A
Sugar Land, TX 77478-3126 US
Tel: 1-281-242-5807
WWW: www.hopelymphedema.com
The H.O.P.E. Lymphedema Treatment Center also offers periodic support group meetings.
---------------------------------------
VIRGINIA
Lymphedema Support Group
For more information on dates and times, call Harmony Aungst at
Gettysburg Hospital Rehab at 337-4206.
........
Lymphedema
Support Group
Monthly educational support group for patients with hereditary or
secondary
lymphedema, resulting from surgery, radiation or trauma to the
lymphatic system.
Facilitated by a licensed professional counselor and certified
lymphedema
therapist.
Second Wednesday of the month, 7:00 – 8:30 p.m. (FC)
Inova Health System - Northern Virginia - For more information please contact our Life with Cancer office at 703-698-2841.
---------------------------------------
WASHINGTON
Lymphedema Support Group
Anyone who has undergone lymph node dissection and/or radiation in the
axillary,
groin or neck region is at risk of developing lymphedema. Specialized
therapy
helps to treat lymphedema in the arms and legs. This support group is
held the
2nd Wednesday of each month, from 12:30-1:30 p.m., on the 1st floor,
room 1C, of
the Lindeman Pavilion. (Resumes in October.)
Virginia Mason
Medical Center,
1100 Ninth Ave., Seattle, WA, 98101
(206) 223-6600
........
Lymphedema
Networking Groups
Once a month groups open to anyone with lymphedema who is interested in
ongoing
support and information. Groups are offered in Everett, Tacoma, Sequim,
Bellingham and at the Dorothy S. O’Brien Center and the Cancer Lifeline
Office
at Eastgate. Call for specific dates and times.
Cancer Lifeline
Support Groups - Dorothy
O'Brien Center
6522 Fremont Ave N
Seattle, WA 98103
206-297-2100 voice
206-297-2200 fax
........
Lymphedema Networking Groups: 24-Hour Lifeline, trained volunteers offer emotional and resource referral to cancer patients, families, friends, 1-800-255-5505; Share the Care Support; Workplace Programs; Kids'/Parents' Group; Family Support Program; 206-297-2100; MultiCare Lymphedema educational classes, first Mondays, 6 to 7:30 p.m., Neuroscience Center, 915 Sixth Ave., Tacoma; free; 253-403-1040
---------------------------------------
WEST VIRGINIA
West Virginia Lymphedema Network
309 Grandview Ave
Morgantown, WV 26501 US
Tel: 1-304-293-3196
Offers: Support Organization
WVLN is based in Morgantown, WV and the support group usually meets quarterly on the first Tuesday of February, May, August, and November. (Sometimes we do move the date of the meetings to accommodate speakers.) Please feel free to post meeting information on public bulletin boards at work, place of worship, cancer support group meetings, hospitals or libraries.
Mary Babb Randolph Cancer Center
WISCONSIN
LAUGH AND LEARN SUPPORT
GROUP
Barron, Wisconsin
Contact: Nicolle Samuels, MSPT, CLT
Samuels.nicolle@mayo.edu
715 537 9905
---------------------------------------
MISCELLANEOUS
Support Groups Listed by NLN
http://www.lymphnet.org/patients/supportGroups.htm
======================
INTERNATIONAL
AUSTRALIA
Patient
Support Groups - Australia
http://www.lymphoedema.org.au/index.htm
........
Support Organizations - Australia
http://www.lymphedemapeople.com/thesite/lymphoedema_organizations_australia.htm
---------------------------------------
CANADA
Lymphoedema Resource Directory Canada
http://www.lymphedemapeople.com/thesite/lymphedema_organizations_canada.htm
........
The
Lymphedema Association of Quebec
5792 Côte des Neiges, Suite 251
Montréal, QC CA
Tel: 1-514-735-1149
Offers: Support Organization
........
ONTARIO - Lymphovenous
Association of Ontario
PM Postal, Box 55241
1800 Sheppard Avenue, E. Willowdale, ONT CANADA M2J 5A0
Tel: 416-245-0033 or Toll Free: 877-723-0033
Email: lymphontario@yahoo.com
---------------------------------------
ISREAL
Israel
Lymphedema Association
c/o Mrs. Silvia Avital
Burla Street 30, Tel Aviv, ISRAEL 69364
Tel: 011-972-03-699-2410
Email: silvia_a@walla.com
Tel-Aviv
Lymphedema Support
Group
Contact: Ruthi Peleg
6 Weizmann St., Tel Aviv ISRAEL 642339
Tel: 011-972-3-670-4206
---------------------------------------
PANAMA
Panama City
Contact: Myrna McLaughlin Anderson
Casa D 25, Suite 1, San Francisco
Panama, Republic of Panama
Tel: 011-507-226-7062
---------------------------------------
NEW
ZEALAND
Support
Groups - New Zealand
Lymphoedema Support Network, New Zealand:
Mrs. Jenny Bartley (neé Thomas), Auckland Lymphoedema Clinic, 204
Queen's Rd.,
Panmure, Auckland, N.Z.
(09) 527 7899; email: bartley@ihug.co.nz
---------------------------------------
UNITED KINGDOM
Lymphoedema Support Groups United Kingdom
http://www.lymphedemapeople.com/thesite/lymphoedema_support_groups_united_kingdom.htm
===========================
Join us as we work for lymphedema patients everywehere:
Advocates for Lymphedema
Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.
http://health.groups.yahoo.com/group/AdvocatesforLymphedema/
| Subscribe: | AdvocatesforLymphedema-subscribe@yahoogroups.com |
Pat O'Connor
Lymphedema People / Advocates for Lymphedema
===========================
For information about Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\
For Information about Lymphedema Complications
http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema
For Lymphedema Personal Stories
http://www.lymphedemapeople.com/phpBB2/viewforum.php?f=3
For information about How to Treat a Lymphedema Wound
http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound
For information about Lymphedema Treatment
http://www.lymphedemapeople.com/wiki/doku.php?id=treatment
For information about Exercises for Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema
For information on Infections Associated with Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema
For information on Lymphedema in Children
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children
Lymphedema Glossary
http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing
===========================
Lymphedema People - Support Groups
-----------------------------------------------
Children
with Lymphedema
The time has come
for families, parents,
caregivers to have a support group of their own. Support group for
parents,
families and caregivers of chilren with lymphedema. Sharing information
on
coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema
People.
http://health.groups.yahoo.com/group/childrenwithlymphedema/
Subscribe: childrenwithlymphedema-subscribe@yahoogroups.com
......................
Lipedema
Lipodema Lipoedema
No matter how you spell it, this is another very little understood and
totally
frustrating conditions out there. This will be a support group for
those
suffering with lipedema/lipodema. A place for information, sharing
experiences,
exploring treatment options and coping.
Come join, be a part of the family!
http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515
Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com
......................
MEN WITH LYMPHEDEMA
If you are a man with
lymphedema; a man with a loved one with lymphedema who you are trying
to help
and understand come join us and discover what it is to be the master
instead of
the sufferer of lymphedema.
http://health.groups.yahoo.com/group/menwithlymphedema/
Subscribe: menwithlymphedema-subscribe@yahoogroups.com
......................
All
About Lymphangiectasia
Support group for parents, patients, children who suffer from all forms
of
lymphangiectasia. This condition is caused by dilation of the
lymphatics. It can
affect the intestinal tract, lungs and other critical body areas.
http://health.groups.yahoo.com/group/allaboutlymphangiectasia/
Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com
......................
Lymphatic
Disorders Support Group @ Yahoo Groups
While we have a number of support groups for lymphedema... there is
nothing out
there for other lymphatic disorders. Because we have one of the most
comprehensive information sites on all lymphatic disorders, I thought
perhaps,
it is time that one be offered.
DISCRIPTION
Information and support for rare and unusual disorders affecting the
lymph
system. Includes lymphangiomas, lymphatic malformations,
telangiectasia,
hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of
information
available through sister site Lymphedema People.
http://health.groups.yahoo.com/group/lymphaticdisorders/
Subscribe: lymphaticdisorders-subscribe@yahoogroups.com
......................
All
About Lymphedema
For our Google fans, we have just created this online support group in
Google
Groups:
Homepage: http://groups-beta.google.com/group/All-About-Lymphedema
Group email: All-About-Lymphedema@googlegroups.com
......................
Lymphedema Friends
http://groups.aol.com/lymphedemafriend
If you an AOL fan and looking for a
support group in AOL
Groups, come and join us there.
===========================
Lymphedema People New Wiki Pages
Have
you seen our new
“Wiki” pages yet? Listed
below
are just a sample of the more than 140 pages now listed in our Wiki
section. We
are also working on hundred more.
Come
and take a stroll!
Lymphedema
Glossary
http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema
Arm
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema
Leg
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema
Acute
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema
The
Lymphedema Diet
http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet
Exercises
for Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema
Diuretics
are not for
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=diuretics_are_not_for_lymphedema
Lymphedema
People Online
Support Groups
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_people_online_support_groups
Lipedema
http://www.lymphedemapeople.com/wiki/doku.php?id=lipedema
Treatment
http://www.lymphedemapeople.com/wiki/doku.php?id=treatment
Lymphedema
and Pain
Management
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pain_management
Manual
Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT)
Infections
Associated with
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema
How
to Treat a Lymphedema
Wound
http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound
Fungal
Infections Associated
with Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=fungal_infections_associated_with_lymphedema
Lymphedema
in Children
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children
Lymphoscintigraphy
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphoscintigraphy
Magnetic
Resonance Imaging
http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging
Extraperitoneal
para-aortic lymph node dissection (EPLND)
Axillary
node biopsy
http://www.lymphedemapeople.com/wiki/doku.php?id=axillary_node_biopsy
Sentinel
Node Biopsy
http://www.lymphedemapeople.com/wiki/doku.php?id=sentinel_node_biopsy
Small
Needle Biopsy - Fine Needle Aspiration
http://www.lymphedemapeople.com/wiki/doku.php?id=small_needle_biopsy
Magnetic
Resonance Imaging
http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging
Lymphedema
Gene FOXC2
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_foxc2
Lymphedema Gene VEGFC
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_vegfc
Lymphedema Gene SOX18
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_sox18
Lymphedema
and
Pregnancy
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pregnancy
Home page: Lymphedema People
http://www.lymphedemapeople.com
Page Updated: Jan. 16, 2012