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Lymphoedema Resources United Kingdom

Lymphedema Resources United Kingdom

Pat O'Connor

My Life With Lymphedema.

My Life with Lymphedema and Lymphoma.

March 24, 2008

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Support Organizations and Groups

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Lymphoedema Support Network
St. Luke's Crypt
Sydney Street
London
SW3 6NH

Telephone: 020 7351 0990 (Administration)

Information and Support: 020 7351 4480

Facsimile: 020 7349 9809

E-mail: adminlsn@lymphoedema.freeserve.co  

http://www.lymphoedema.org/lsn/

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Northern Ireland Lymphoedema Support Group

http://www.nilsg.co.uk/Home.aspx

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British Lymphology Interest Group
President: Administration Centre P.O. Box 1059 Caterham, Surrey CR3 6ZU
(01883) 330 253; fax (01883) 330 254

email: BLIG@compuserve.com.

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MLD UK

PO Box 14491, Glenrothes, Fife, KY6 3YE

Website: www.mlduk.org.uk

E-mail: info@mlduk.org.uk


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UKLYMPH.COM

http://www.uklymph.com/


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East Kent Lymphoedema Support Group

http://www.uklymph.com/eklsg/eklsg.php


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The Lymphoedema Web Site - The Whiteley Clinic

http://www.thewhiteleyclinic.co.uk/

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Cancerbacup - UK - merged with Macmillan

http://www.macmillan.org.uk/Home.aspx

http://www.canceractive.com/cancer-active-page-link.aspx?n=356

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The Furry Monkey - UK

Lymphoedema and Lymphoma site by a lymphoma survivor

http://www.thefurrymonkey.co.uk/support.htm

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Government Sites and Resources

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Disability Services

Easy access to the public services you use and the information you need, delivered by the UK government

http://www.direct.gov.uk/en/index.htm

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Disability Financial Support Page

http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport/index.htm

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Office for Disability Issues

http://odi.dwp.gov.uk/

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National Health Service

Main Site

http://www.nhs.uk/Pages/homepage.aspx

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NHS Scotland

http://www.show.scot.nhs.uk/

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NHS Wales

http://www.wales.nhs.uk/

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NHS Northern Ireland

http://www.n-i.nhs.uk/

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N H S Direct Online

http://www.nhsdirect.nhs.uk/

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NHS Local Services Search

List of care trusts, hospital trusts, primary care trusts and strategic health authorities with contact details and website addresses where available.

http://www.nhs.uk/Pages/HomePage.aspx

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Lymphoedema Supplies and Vendors

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Medi UK Ltd

Suppliers of medical compression upper and lower limb garments and CircAid garments for lymphoedema
Address: Plough Lane
Hereford
HR4 0EL
County: Hereford
Telephone: 01432 373 500
Fax: 01432 373 510
Email: enquiries@mediuk.co.uk
Website: http://www.mediuk.co.uk

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Sigvaris Britain Ltd

Suppliers of lymphoedema sleeves, compression stockings and roll-on adhesives to support the garments.
Address: Unit 6a The Foundry
London Road
Winchester
SO23 7QD
County: Hampshire
Telephone: 01962 886226
Fax: 01962 886212
Email: thomas.ritson@btopenworld.com
Website: http://www.sigvaris.com

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Haddenham Healthcare Limited

Suppliers of compression hosiery, skin care products and compression bandages for people with lymphoedema. Guarantee to supply custom made compression garments within 10 days. Credit card payment accepted
Address: Crendon House
Crendon Industrial Park
Long Crendon
HP19 6BB
County: Buckinghamshire
Telephone: 01844 208842
Fax: 01844 208843
Email: sales@hadhealth.com
Website: http://www.hadhealth.com

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Activa Healthcare

Supplier of compression garments

Phone: 08450 606 707

http://www.activahealthcare.co.uk/

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BSN Medical

Supplier of compression garments

Our Customer Care Team is always ready to take your orders and answer queries.

Our office address and contact details are:

 

BSN medical Ltd

PO Box 258

Willerby

Hull

HU10 6WT

Tel: 01482 670100

Fax: 01482 670111

http://www.bsnmedical.com/BSNmedical/UK/Home+page.htm

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Cosyfeet

Supplier of footwear, socks and hosiery for swollen feet and legs

By Post :
Cosyfeet, The Tanyard, Leigh road,
STREET, Somerset BA16 0HR.

By Telephone : 01458 447 275

Monday to Friday 8.30am to 5.30pm and Saturday 9am to 1pm.
(Calls may be monitored for training and quality control purposes.)

By E-mail : comfort@cosyfeet.co.uk

By Fax : 01458 445 988

http://www.cosyfeet.com/

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Haddenham Healthcare Ltd

Suppliers of compression hosiery, skin care products and compression bandages for people with lymphoedema. Guarantee to supply custom made compression garments within 10 days. Also supplies an extensive range of wirefree support bras

Address: Crendon House
Crendon Industrial Park
Long Crendon
HP19 6BB
County: Buckinghamshire
Telephone: 01844 202203
Fax: 01844 208843
Email: sales@hadhealth.com
Website: http://www.hadhealth.com

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Huntleigh Healthcare

Supplier of medical equipment and devices

http://www.huntleigh-healthcare.com/

UK Site

http://www.nesbitevans.com/default.asp?subsidiary=UK

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Juzo UK

Supplier of compression garments

Juzo UK Ltd.
Unit 1 - Edison Place
Dryburgh Industrial Estate
Dundee DD2 3QU
Great Britain

Phone 00 44-13 82-82 66 20
Fax     00 44-13 82-82 66 41

email@juzo.uk

http://www.juzo.com/ww/en/pub/company/juzo_worldwide.cfm

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Limbvolume.com

At limbvolume.com, we specialise in supplying products for the treatment of lymphoedema. We also work in close association with lymphoedema support groups and promote training for practitioners in emerging techniques and treatments. Our sister company Kinesio UK was established as a division of Limbvolume Ltd to offer specific training services, products and information for the Kinesio Taping method in UK and Ireland.

Tel: 0191 2877008
Fax: 0191 2877003

180 Newbridge St., Newcastle Upon Tyne, NE1 2TE UK

sales@limbvolume.com

http://www.limbvolume.com/

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Kinesio UK

Tel: +44 (0) 191 2877008

Fax: +44 (0) 191 2877003

http://www.kinesiotaping.co.uk/

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Molly Polly Footwear

We are a family business that designs, manufactures and supplies specialist foot wear for people that suffer with foot disorders including Lymphoedema, Ulcerated Toes & Feet, Vascular Disorders, Diabetes, Arterial Disease, Arthritis, Bunions, Swollen Feet & Ankles, Leg & Foot Ulcers and Hammer Toe

E-Mail:

info@mollypolly.com

Phone & Fax:

01923-264042

 

http://www.mollypolly.com/

 

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Other Important Links

 

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Disability resource directory of disabled aids information products services and advice

http://disabilityuk.com/links/disabilityresources.html

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Breast Cancer Care

 

http://www.breastcancercare.org.uk/

 

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Cambridge Centre for
Lymphology and Feldenkrais (CCLF)


http://www.cclf.co.uk/

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Circulation Foundation

The Circulation Foundation was founded in 1992 in order to prevent ill health due to vascular disease by drawing attention to its existence, its prevalence and to the devastating effects that it causes.

http://www.circulationfoundation.org.uk/

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Disabled Living Foundation

Disabled Living Foundation (DLF), a national charity that provides free, impartial advice about all types of disability equipment and mobility products for older and disabled people, their carers and families. From stairlifts to walk-in baths, jar openers to tap turners, bath seats to walking sticks, wheelchairs to scooters, hoists to beds, the DLF can help you find disabled equipment solutions that enable you to stay active and independent

http://www.dlf.org.uk/

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Hospital Help

Hospital help offers Independent advice on hospital related issues,
bringing together all aspects
of hospital information and care

http://www.hospitalhelp.co.uk/

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Medical Pages UK

http://www.medicalpages.co.uk/

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Medical Register

Online Medical Buyer's Guide

http://www.medicregister.com/

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Patient Advocacy - UK

http://www.patient.co.uk/showdoc/30/

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Patients Association

The Patients Association is a national charity providing patients with an opportunity to raise concerns and share experiences of healthcare.

Through our Helpline, correspondence and research we learn from patients the issues that are of concern and work towards improving the healthcare we all receive.

Helpline0845 608 4455

Emailhelpline@patients-association.com

http://www.patients-association.com/

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Patient Information - Patient UK

Contains listings of UK and international internet sites on consumer health issues, including sites providing information on health promotion, medicines, dental and eye health, caring, benefits, news, glossaries and alternative medicine. Also includes details of UK Self Help and Patient Support Groups.

http://www.patient.co.uk/

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Specialist Info.com

The definitive online database of over 36,000 UK Consultants,
over 2,200 Republic of Ireland Consultants
and over 37,000 UK GPs

http://www.specialistinfo.com/

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Social Security and Pensions - United Kingdom

http://www.lymphedemapeople.com/thesite/social_security_and_pensions_united_kingdom.htm

Lymphedema Government Resources - United Kingdom

http://www.lymphedemapeople.com/thesite/government_resources_united_kingdom.htm

Lymphedema Therapists - United Kingdom

http://www.lymphedemapeople.com/thesite/lymphedema_therapists_united_kingdom.htm

Lymphoedema Support Groups - United Kingdom

http://www.lymphedemapeople.com/thesite/lymphoedema_support_groups_united_kingdom.htm

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Join us as we work for lymphedema patients everywehere:

Advocates for Lymphedema

Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.

http://health.groups.yahoo.com/group/AdvocatesforLymphedema/

Subscribe: AdvocatesforLymphedema-subscribe@yahoogroups.com

Pat O'Connor

Lymphedema People / Advocates for Lymphedema

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For information about Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\

For Information about Lymphedema Complications

http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema

For Lymphedema Personal Stories

http://www.lymphedemapeople.com/phpBB2/viewforum.php?f=3

For information about How to Treat a Lymphedema Wound

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound

For information about Lymphedema Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment

For information about Exercises for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema

For information on Infections Associated with Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema

For information on Lymphedema in Children

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

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Lymphedema People - Support Groups

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Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.

http://health.groups.yahoo.com/group/childrenwithlymphedema/

Subscribe: childrenwithlymphedema-subscribe@yahoogroups.com

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Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!

http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515

Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com

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MEN WITH LYMPHEDEMA

If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.

http://health.groups.yahoo.com/group/menwithlymphedema/

Subscribe: menwithlymphedema-subscribe@yahoogroups.com

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All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.

http://health.groups.yahoo.com/group/allaboutlymphangiectasia/

Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com

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Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.

DISCRIPTION

Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.

http://health.groups.yahoo.com/group/lymphaticdisorders/

Subscribe: lymphaticdisorders-subscribe@yahoogroups.com

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Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet?  Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more.  Come and take a stroll! 

Lymphedema Glossary 

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing 

Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema 

Arm Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema 

Leg Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema 

Acute Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema 

The Lymphedema Diet 

http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet 

Exercises for Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema 

Diuretics are not for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=diuretics_are_not_for_lymphedema 

Lymphedema People Online Support Groups 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_people_online_support_groups 

Lipedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lipedema 

Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment 

Lymphedema and Pain Management 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pain_management 

Manual Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT)

http://www.lymphedemapeople.com/wiki/doku.php?id=manual_lymphatic_drainage_mld_complex_decongestive_therapy_cdt 

Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema 

How to Treat a Lymphedema Wound 

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound 

Fungal Infections Associated with Lymphe dema 

http://www.lymphedemapeople.com/wiki/doku.php?id=fungal_infections_associated_with_lymphedema 

Lymphedema in Children 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children 

Lymphoscintigraphy 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphoscintigraphy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Extraperitoneal para-aortic lymph node dissection (EPLND) 

http://www.lymphedemapeople.com/wiki/doku.php?id=extraperitoneal_para-aortic_lymph_node_dissection_eplnd 

Axillary node biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=axillary_node_biopsy

Sentinel Node Biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=sentinel_node_biopsy

Small Needle Biopsy - Fine Needle Aspiration 

http://www.lymphedemapeople.com/wiki/doku.php?id=small_needle_biopsy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Lymphedema Gene FOXC2

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_foxc2

 Lymphedema Gene VEGFC

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_vegfc

 Lymphedema Gene SOX18

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_sox18

 Lymphedema and Pregnancy

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pregnancy

Home page: Lymphedema People

http://www.lymphedemapeople.com

Page Updated: Jan. 16, 2012