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Lymphoedema Organizations Canada

Lymphoedema Related Resource Directory for Canada

Pat O'Connor

May 21, 2008

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Lymphovenous Canada

http://www.lymphovenous-canada.ca/

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Welcome to the Dr. Vodder School - North America

http://www.vodderschool.com/

To provide the highest quality education in the Dr. Vodder method of Manual Lymph Drainage and Combined Decongestive Therapy and to ensure the continuing competence of practitioners trained by the Dr. Vodder School.

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Breast Cancer Association of Nova Scotia

BCANS provides online support and chat through its international breast cancer community support forums. The site also includes biography pages, user galleries, a cancer glossary, information, links resources and much, much more.

http://bca.ns.ca

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The Lymphedema Association of Quebec

This group is currently attempting to have lymphedema treatments covered under the government health insurance plan.

Visit their drop-in center, which offers a library of books and videos on lymphedema-related topics, lymphedema alert bracelets, and more.

Monthly support group meetings, of the Lymphedema Association of Quebec
will be held in French and English on THE LAST TUESDAY OF EACH MONTH from 5:00 p.m. to 7:00 p.m. at

5792 Cote des Neiges #268
Montreal, QC H3S 1Y9

For more information on these and other activities of the Lymphedema Association of Quebec:

AQL/LAQ 5792 Cote des Neiges #268
Montreal, QC H3S 1Y9

aql@infolympho.ca

Tel:(514)735-1149

www.infolympho.ca

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The Lymphovenous Association of Ontario

The Lymphovenous Association of Ontario is a support group for individuals, families and health care professionals with lymphatic disorders such as lymphedema.

Once a year the group holds its annual general meeting. It also puts out a newsletter three times a year. The Association is currently trying to improve ADP program coverage and improve coverage for CDT. It has a resource kit to help people lobby for improved services and an information package on how to get better insurance coverage

E-mail: lymphontari@yahoo.com

http://www.lymphontario.org/

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Alberta Lymphedema  Association

The Alberta Lymphedema Association (ALA) is a not for profit charitable organization founded in 2003 by a team of people who recognized the need to help people living with, or at risk of, lymphedema. A learning association committed to ongoing education of its stakeholders, ALA works to make a difference and empower affected individuals and their families to help manage this condition. ALA works from the patient standpoint.

http://www.albertalymphedema.com/

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Saskatchewan Lymphovenous Learning Association (SLLA)

The Saskatchewan Lymphovenous Learning Association (SLLA) is a support group and information network for people affected by lymphedema. For more information about the SLLA, contact:
 
Email: sasklymph@yahoo.ca

Website: http://www.sasklymph.ca/

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Manitoba
 

Lymphedema Support Group: There are a few individuals across Manitoba who have been working to establish an provincial association and may have information about a support group. Contact either Kim Avanthay at: kimavant@mts.net or Edith Mulhall at: ed.mul@hotmail.com for more information or to get involved.

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New Foundland and Labrador - St. John's

Lymphedema Support Group: held the first Thursday of every month at 7:00 pm (no meeting in July and August) at Daffodil Place, 70 Ropewalk Lane, St. John’s. These meetings are co-chaired by Janet Montevecchi and Martina Reddick, both nurses specialized in Complete Decongestive Therapy. This is an open meeting, everyone with or at risk for Lymphedema welcome! If you require any further information Martina can be reached at 709-777-8713 or by email at:martina.reddick@easternhealth.ca

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McGill Lymphedema Research Program

http://www.mcgill.ca/lymphedema-research/

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Ontario Support Groups:

BRANTFORD

 

Lymphedema Support Group: First ever meeting to be held on Tuesday, October 11, 2011 at St. Joseph’s Lifecare Centre, 4th Floor Board Room 6:00-7:30; then every second Tuesday of each month thereafter. Hosted by Pam Monarch, RMT/CDT, these meetings will be an opportunity for individuals to receive information on self care/maintenance and education in regards to lymphedema.  For contact info, click: this link.

 

BURLINGTON

 

Aqua Lymphatic Therapy Sessions: Sessions taking place through the Summer of 2011 at Altershot Pool.  Subsequent sessions may be held. For further information about ALT and contact information for inquiries about participating, click: this link

 

KINGSTON

 

Lymphedema Support Group: The goals are to provide confidential information sharing and peer support in a relaxed informal setting. Periodic use of guest speakers on related topics, and discussion on the best ways to successfully manage and live with this lifelong condition. The group meets 5 or 6 times a year, usually on the last Wednesday of the month. Please contact Breast Cancer Action Kingston at 613-531-7912 or visit www.bcakingston.org

  

KITCHENER WATERLOO REGION

 

Lymphedema Support Group meets monthly in the Victoria Room, Victoria Place, 290

Queen Street South, Kitchener on the last Tuesday of each month at 7pm. What is it? Am I at risk for it? How did I get it? How do I manage it? Does everyone feel this way about it? What can I do about it? Call Melody Southgate, RMT, CDT at 519-653-2101

 

NORTH BAY

 

Lymphedema Educational Workshop: occasional workshops are offered free of charge by Caring Treatments Massage and Lymphedema Clinic and will run once a season. Information may include updates on research and treatment, understanding the lymphatic system, exercises, self-care and treatments, garments, and how to minimize the physical, emotional, social, and financial impact of lymphedema. For more info, or to register and obtain the meeting site, please call Susan Woodman at 705-497-0683

 

OSHAWA

 

The Hearth Place Lymphedema Support Group – provides information, emotional and practical support for those with lymphedema, and for those at risk following breast cancer treatment. Learn how to detect symptoms early and develop strategies to manage the challenges of lymphedema. The group meets every third Thursday evening of the month usually from 7 p.m. to 9 p.m. 86 Colborne St. West. For more information or to register call Hearth Place at 905-579-4833

 

OTTAWA

 

Information Sessions: Learn the facts about secondary lymphedema, how to self-monitor, important lifestyle recommendations, when and where to go for help and exercises to delay the onset or manage lymphedema. To register, please call Breast Cancer Action Ottawa at

613-736-5921 or visit www.bcaott.ca for further information.

 

Go with the Flow: is an exercise program designed for breast cancer patients to minimize and reduce the risk of lymphedema. To register, please call Breast Cancer Action Ottawa at

613-736-5921 or visit www.bcaott.ca for further information.

 

TORONTO

 

Lymphedema Information and Support Group: sponsored by the LAO in connection with Wellspring and providing informal peer support for individuals and families in a caring and confidential setting. Sessions are held on the second Thursday of the month between 10:00 am and 12:00 pm at Wellspring in Toronto. To register, pleasQe call the LAO at 416-410-2250 or 877-723-0033 toll free.

 

WINSOR / ESSEX / KENT

 

Lymphedema Support Group: A small group is trying to form a support group for those living with cancer-related lymphedema to serve the Windsor/Essex/Kent region.  This group is still in the formative stages, but has a presence on facebook and encourages those who are interested to please get in touch.  

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Quebec Lymphoedema Support Groups:

Lymphedema Support Group: Contact The Lymphedema Association of Québec for further information about monthly support group meetings. For LAQ contact information, click: this link.

 

 

DOLLARD-DES-ORMEAUX / POINTE CLAIRE

 

Aqua Lymphatic Therapy, Tidhar Method®: current and ongoing classes. See the AQL/LAQ website for contact and further information by clicking: this link

 

MONTRÉAL

 

Aqua Lymphatic Therapy, Tidhar Method®: current and ongoing classes at several locations. See the AQL/LAQ website for contact and further information by clicking: this link

 

ST-HUBERT

 

Aqua Lymphatic Therapy, Tidhar Method®: current and ongoing classes. See the AQL/LAQ website for contact and further information by clicking: this link

 

TROIS RIVIERES

 

Aqua Lymphatic Therapy, Tidhar Method®: current and ongoing classes. See the AQL/LAQ website for contact and further information by clicking: this link

 

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Related Medical Links:

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Breast Cancer Information Resources and Support for Canadian Women

http://www.cbcn.ca/

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Canadian Breast Cancer Research Alliance

http://www.breast.cancer.ca/WebNET.aspx?u=WebNETGuest&p=user&v1=guest&a=2

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Willow Breast Cancer Support and Resources Services

http://www.willow.org/

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Health Canada

http://www.hc-sc.gc.ca/

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Charity Village

Canada's supersite for the nonprofit sector --- 3,000 pages of news, jobs, information and resources for executives, staffers, donors, and volunteers. If philanthropy and volunteerism are part of your world, this is your place. Discover what's new today in the village, or visit our Welcome Centre for first-time visitors and the media

http://www.charityvillage.com/cv/main.asp

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Canadian Organization for Rare Disorders

email: office@cord.ca.

www.cord.ca/

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The Klippel-Trenaunay Support Group of Canada

www.k-t.org


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Canadian RSD Network

http://www.canadianrsd.com/

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Turner's Syndrome Society of Canada

http://www.turnersyndrome.ca/

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National Lymphedema Network - US

http://www.lymphnet.org/


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Breast Cancer Association of Nova Scotia

BCANS provides online support and chat through its international breast cancer community support forums. The site also includes biography pages, user galleries, a cancer glossary, information, links resources and much, much more.

http://bca.ns.ca

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The Genetic Alliance

The Genetic Alliance is an international coalition representing 300 consumer and health organizations which works to protect the genetic rights of the public while encouraging genetic research which benefits individuals with genetic conditions and their families. The Genetic Alliance can be contacted through its web site or through its e-mail address at: info@geneticalliance.org

http://www.geneticalliance.org/

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Little Leakers

Lymphangiectasia Support and Forum

http://www.littleleakers.com/

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Neurofibromatosis Canada

http://www.nfcanada.ca/index.php

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Canadian Cancer Society

http://www.cancer.ca/ccs/internet/niw_splash/0%2C%2C3172%2C00.html

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Lymphoma Foundation of Canada

http://www.lymphoma.ca/

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Klinefelter Syndrome Support Group - Ontario

http://klinefeltersyndrome.org/London,_Ontario,_Canada_Support_Group.html

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Crohn's & Colitis Foundation of Canada

http://www.ccfc.ca/

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Healthline Crohn's Disease

http://www.healthline.com/health/crohns-disease

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LAM - Lymphangioleiomyomatosis - Canada

http://www.lamcanada.org/providers.htm

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Candian Fabry Association

http://www.fabrycanada.com/

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Lymphedema Treatment Programs in Canada - Lymphovenous Canada

http://www.lymphovenous-canada.ca/treat.htm

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Lymphedema Associations and Groups

http://www.lymphovenous-canada.ca/groups1.htm

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Lymphedema Treatment Programs - British Columbia

http://www.lymphovenous-canada.ca/treatbc.htm

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Lymphedema Treatment Programs - Saskatchewan

http://www.lymphovenous-canada.ca/treatsk.htm

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See also:

Government Resources Canada

http://www.lymphedemapeople.com/thesite/government_resources_canada.htm

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Lymphedema Organizations Canada

http://www.lymphedemapeople.com/thesite/lymphedema_organizations_canada.htm

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Lymphedema Therapists Canada

http://www.lymphedemapeople.com/thesite/lymphedema_therapists_canada.htm

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Join us as we work for lymphedema patients everywehere:

Advocates for Lymphedema

Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.

http://health.groups.yahoo.com/group/AdvocatesforLymphedema/

Subscribe: AdvocatesforLymphedema-subscribe@yahoogroups.com

Pat O'Connor

Lymphedema People / Advocates for Lymphedema

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For information about Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\

For Information about Lymphedema Complications

http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema

For Lymphedema Personal Stories

http://www.lymphedemapeople.com/phpBB2/viewforum.php?f=3

For information about How to Treat a Lymphedema Wound

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound

For information about Lymphedema Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment

For information about Exercises for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema

For information on Infections Associated with Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema

For information on Lymphedema in Children

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

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Lymphedema People - Support Groups

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Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.

http://health.groups.yahoo.com/group/childrenwithlymphedema/

Subscribe: childrenwithlymphedema-subscribe@yahoogroups.com

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Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!

http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515

Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com

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Men with Lymphedema

If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.

http://health.groups.yahoo.com/group/menwithlymphedema/

Subscribe: menwithlymphedema-subscribe@yahoogroups.com

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All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.

http://health.groups.yahoo.com/group/allaboutlymphangiectasia/

Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com

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Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.

DISCRIPTION

Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.

http://health.groups.yahoo.com/group/lymphaticdisorders/

Subscribe: lymphaticdisorders-subscribe@yahoogroups.com

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Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet?  Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more.  Come and take a stroll! 

Lymphedema Glossary 

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing 

Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema 

Arm Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema 

Leg Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema 

Acute Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema 

The Lymphedema Diet 

http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet 

Exercises for Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema 

Diuretics are not for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=diuretics_are_not_for_lymphedema 

Lymphedema People Online Support Groups 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_people_online_support_groups 

Lipedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lipedema 

Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment 

Lymphedema and Pain Management 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pain_management 

Manual Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT)

http://www.lymphedemapeople.com/wiki/doku.php?id=manual_lymphatic_drainage_mld_complex_decongestive_therapy_cdt 

Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema 

How to Treat a Lymphedema Wound 

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound 

Fungal Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=fungal_infections_associated_with_lymphedema 

Lymphedema in Children 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children 

Lymphoscintigraphy 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphoscintigraphy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Extraperitoneal para-aortic lymph node dissection (EPLND) 

http://www.lymphedemapeople.com/wiki/doku.php?id=extraperitoneal_para-aortic_lymph_node_dissection_eplnd 

Axillary node biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=axillary_node_biopsy

Sentinel Node Biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=sentinel_node_biopsy

 Small Needle Biopsy - Fine Needle Aspiration 

http://www.lymphedemapeople.com/wiki/doku.php?id=small_needle_biopsy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Lymphedema Gene FOXC2

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_foxc2

 Lymphedema Gene VEGFC

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_vegfc

 Lymphedema Gene SOX18

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_sox18

 Lymphedema and Pregnancy

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pregnancy

Home page: Lymphedema People

http://www.lymphedemapeople.com

Page Updated: Jan. 16, 2012

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