Lymphoedema Organizations Canada

Lymphoedema Related Resource Directory for Canada

May 21, 2008

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Lymphovenous Canada

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Welcome to the Dr. Vodder School - North America

http://www.vodderschool.com/

To provide the highest quality education in the Dr. Vodder method of Manual Lymph Drainage and Combined Decongestive Therapy and to ensure the continuing competence of practitioners trained by the Dr. Vodder School.

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Breast Cancer Association of Nova Scotia

BCANS provides online support and chat through its international breast cancer community support forums. The site also includes biography pages, user galleries, a cancer glossary, information, links resources and much, much more.

http://bca.ns.ca

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The Lymphedema Association of Quebec

This group is currently attempting to have lymphedema treatments covered under the government health insurance plan.

Visit their drop-in center, which offers a library of books and videos on lymphedema-related topics, lymphedema alert bracelets, and more.

Monthly support group meetings, of the Lymphedema Association of Quebec
will be held in French and English on THE LAST TUESDAY OF EACH MONTH from 5:00 p.m. to 7:00 p.m. at

5792 Cote des Neiges #268
Montreal, QC H3S 1Y9

For more information on these and other activities of the Lymphedema Association of Quebec:

AQL/LAQ 5792 Cote des Neiges #268
Montreal, QC H3S 1Y9

aql@infolympho.ca

Tel:(514)735-1149

www.infolympho.ca

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The Lymphovenous Association of Ontario

The Lymphovenous Association of Ontario is a support group for individuals, families and health care professionals with lymphatic disorders such as lymphedema.

Once a year the group holds its annual general meeting. It also puts out a newsletter three times a year. The Association is currently trying to improve ADP program coverage and improve coverage for CDT. It has a resource kit to help people lobby for improved services and an information package on how to get better insurance coverage

E-mail: lymphontari@yahoo.com

http://www.lymphontario.org/

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Alberta Lymphedema Association

The Alberta Lymphedema Association (ALA) is a not for profit charitable organization founded in 2003 by a team of people who recognized the need to help people living with, or at risk of, lymphedema. A learning association committed to ongoing education of its stakeholders, ALA works to make a difference and empower affected individuals and their families to help manage this condition. ALA works from the patient standpoint.

http://www.albertalymphedema.com/

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Saskatchewan Lymphovenous Learning Association (SLLA)

The Saskatchewan Lymphovenous Learning Association (SLLA) is a support group and information network for people affected by lymphedema. For more information about the SLLA, contact:

Email: sasklymph@yahoo.ca

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McGill Lymphedema Research Program

http://www.mcgill.ca/lymphedema-research/

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Related Medical Links:

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Breast Cancer Information Resources and Support for Canadian Women

http://www.cbcn.ca/

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Canadian Breast Cancer Research Alliance

http://www.breast.cancer.ca/WebNET.aspx?u=WebNETGuest&p=user&v1=guest&a=2

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Willow Breast Cancer Support and Resources Services

http://www.willow.org/

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Health Canada

http://www.hc-sc.gc.ca/

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Charity Village

Canada's supersite for the nonprofit sector --- 3,000 pages of news, jobs, information and resources for executives, staffers, donors, and volunteers. If philanthropy and volunteerism are part of your world, this is your place. Discover what's new today in the village, or visit our Welcome Centre for first-time visitors and the media

http://www.charityvillage.com/cv/main.asp

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Canadian Organization for Rare Disorders

email: office@cord.ca.

www.cord.ca/

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The Klippel-Trenaunay Support Group of Canada

www.k-t.org

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Canadian RSD Network

http://www.canadianrsd.com/

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Turner's Syndrome Society of Canada

http://www.turner-syndrome.com/index.php3

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National Lymphedema Network - US

http://www.lymphnet.org/

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The Genetic Alliance

The Genetic Alliance is an international coalition representing 300 consumer and health organizations which works to protect the genetic rights of the public while encouraging genetic research which benefits individuals with genetic conditions and their families. The Genetic Alliance can be contacted through its web site or through its e-mail address at: info@geneticalliance.org

http://www.geneticalliance.org/

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Little Leakers

Lymphangiectasia Support and Forum

http://www.littleleakers.com/

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Neurofibromatosis Canada

http://www.nfcanada.ca/index.php

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Canadian Cancer Society

http://www.cancer.ca/ccs/internet/niw_splash/0%2C%2C3172%2C00.html

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Lymphoma Foundation of Canada

http://www.lymphoma.ca/

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Klinefelter Syndrome Support Group - Ontario

http://klinefeltersyndrome.org/London,_Ontario,_Canada_Support_Group.html

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Crohn's & Colitis Foundation of Canada

http://www.ccfc.ca/

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LAM - Lymphangioleiomyomatosis - Canada

http://www.lamcanada.org/providers.htm

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Candian Fabry Association

http://www.fabrycanada.com/

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Lymphedema Treatment Programs in Canada - Lymphovenous Canada

http://www.lymphovenous-canada.ca/boxromanow.htm

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Lymphedema Associations and Groups

http://www.lymphovenous-canada.ca/groups1.htm

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Lymphedema Treatment Programs - British Columbia

http://www.lymphovenous-canada.ca/treatbc.htm

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Lymphedema Treatment Programs - Saskatchewan

http://www.lymphovenous-canada.ca/treatsk.htm

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See also:

Government Resources Canada

http://www.lymphedemapeople.com/thesite/government_resources_canada.htm

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Lymphedema Organizations Canada

http://www.lymphedemapeople.com/thesite/lymphedema_organizations_canada.htm

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Lymphedema Therapists Canada

http://www.lymphedemapeople.com/thesite/lymphedema_therapists_canada.htm

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Join us as we work for lymphedema patients everywehere:

Advocates for Lymphedema

Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.

http://health.groups.yahoo.com/group/AdvocatesforLymphedema/

Subscribe:

AdvocatesforLymphedema-subscribe@yahoogroups.com

Pat O'Connor

Lymphedema People / Advocates for Lymphedema

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For information about Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\

For Information about Lymphedema Complications

http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema

For Lymphedema Personal Stories

http://www.lymphedemapeople.com/phpBB2/viewforum.php?f=3

For information about How to Treat a Lymphedema Wound

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound

For information about Lymphedema Treatment

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment

For information about Exercises for Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema

For information on Infections Associated with Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema

For information on Lymphedema in Children

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

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Lymphedema People - Support Groups

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Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.

http://health.groups.yahoo.com/group/childrenwithlymphedema/

Subscribe: childrenwithlymphedema-subscribe@yahoogroups.com

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Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!

http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515

Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com

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Men with Lymphedema

If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.

http://health.groups.yahoo.com/group/menwithlymphedema/

Subscribe: menwithlymphedema-subscribe@yahoogroups.com

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All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.

http://health.groups.yahoo.com/group/allaboutlymphangiectasia/

Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com

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Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.

DISCRIPTION

Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.

http://health.groups.yahoo.com/group/lymphaticdisorders/

Subscribe: lymphaticdisorders-subscribe@yahoogroups.com

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All About Lymphedema

For our Google fans, we have just created this online support group in Google Groups:

Homepage: http://groups-beta.google.com/group/All-About-Lymphedema

Group email: All-About-Lymphedema@googlegroups.com

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Lymphedema Friends

http://groups.aol.com/lymphedemafriend

If you an AOL fan and looking for a support group in AOL Groups, come and join us there.

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Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet? Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more. Come and take a stroll!

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema

Arm Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema

Leg Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema

Acute Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema

The Lymphedema Diet

http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet