Lymphedem Online Support Groups
Lymphedema Online Discussion Boards
Lymphedema Blogs
For
most of my 55 years, I felt I was alone in this battle with lymphedema.
This
year I have discovered numerous on-line support groups. In these
groups, I have
found a wonderful family. The hope, joy, information, and companionship
I have
received from these groups is immeasurable. Below is a listing of some
groups.
Check them out, see which one fits your needs and situation. You may
wish to
join one, two or all. You will not be disapointed. Some you may only be
able to
get to thru Yahoo Groups.
I've tried to include only active groups. There are many groups still listed (for example) in the Yahoo group directory that haven't been active for some time.
May 11, 2008
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Advocates for Lymphedema
Join us in our sister site as we develop a grass roots movement for the advocacy of lymphedema. We are focusing on information presentation through the media, passage of state laws for reform and consistancy in the treatment and insurance coverage of lymphedema and legal reform at the Federal level.
Home Page
http://health.groups.yahoo.com/group/AdvocatesforLymphedema/
Subscribe
Subscribe: | AdvocatesforLymphedema-subscribe@yahoogroups.com |
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CHILDREN WITH LYMPHEDEMA
The time has come for families, parents, caregivers to have a support
group of their own. Support group for parents, families and caregivers
of chilren with lymphedema. Sharing information on coping, diagnosis,
treatment and prognosis. Sponsored by Lymphedema People.
http://health.groups.yahoo.com/group/childrenwithlymphedema/
Subscribe: childrenwithlymphedema-subscr...@yahoogroups.com
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Teens with Lymphedema
Description
Support group for teens and friends of teens with the condition
lymphedema. This will be a safe forum where teens can meet others who
share the same struggle with this condition. A place to find
information, encouragement and hope. A home where you no longer have to
feel like your the only one with lymphedema. Sponsored by Lymphedema
People
http://health.groups.yahoo.com/group/Teens_with_Lymphedema/
Subscribe: Teens_with_Lymphedema-subscribe@yahoogroups.com
All
About Lymphangiectasia Yahoo Support Group
Support group for parents, patients, children who suffer from all forms
of lymphangiectasia. This condition is caused by dilation of the
lymphatics. It can affect the intestinal tract, lungs and other
critical body areas.
http://health.groups.yahoo.com/group/allaboutlymphangiectasia/
Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com
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MEN WITH LYMPHEDEMA
Allright
men, its our turn and its time. Let's face it, we are years behind the
women in understand and dealing with health issues that face us. This
seems to be especially true in understand, dealing with and overcoming
the physical and psychological issues that face us with lymphedema.
This is a safe haven, where we can lay it on the table, a place where
we can "take charge" of this condition and move ahead with our lives.
Here we don't have to worry about impressing the ladies (how could they
be any more impressed anyway); we don't have to be the strong silent
type (everyone knows we are as tough as a mad marine and as solid as
the rock of Gilbralter); we don't have to be concerned with being macho
(after all, we make even Dirty Harry cringe in the corner).
If you are a man with lymphedema; a man with a loved one with
lymphedema who you are trying to help and understand come join us and
discover what it is to be the master instead of the sufferer of
lymphedema.
http://health.groups.yahoo.com/group/menwithlymphedema/
Subscribe: menwithlymphedema-subscribe@yahoogroups.com
Pat O'Connor
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Lymphatic Disorders Support Group
While we have
a number of support groups for lymphedema... there is nothing
out there for other lymphatic disorders. Because we have one of the
most
comprehensive information sites on all lymphatic disorders, I thought
perhaps,
it is time that one be offered.
DISCRIPTION
Information and support for rare and unusual disorders affecting the
lymph
system. Includes lymphangiomas, lymphatic malformations,
telangiectasia,
hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of
information
available through sister site Lymphedema People.
http://health.groups.yahoo.com/group/lymphaticdisorders/
Subscribe: lymphaticdisorders-subscribe@yahoogroups.com
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Lipedema Lipodema Lipoedema
No matter how you spell it, this is another very little understood and
totally frustrating conditions out there. This will be a support group
for those suffering with lipedema/lipodema. A place for information,
sharing experiences, exploring treatment options and coping.
Come join, be a part of the family!
http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515
Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com
All
About Lymphoedema
Yahoo Australia and New Zealand's Groups first online
community for lymphoedema.
Welcome to the All About Lymphoedema Support Group. A caring support
group and extended family for those who experience the condition known
as lymphoedema. Come join us as we learn not only how to live with
lymphoedema, but learn how to overcome it and enjoy life to its
maximum. Sponsored by Lymphedema People
http://au.groups.yahoo.com/group/All_About_Lymphoedema/
Subscribe: All_About_Lymphoedema-subscribe@yahoogroups.com.au
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Our Blogs:
My
Life with Lymphedema
http://mylifewithlymphedema.blogspot.com/
http://lymphsystemdisorders.blogspot.com
Edema and Related Medical Conditions
http://www.edemainformation.blogspot.com
http://lymphedemaville.wordpress.com/
Disorders of the Lymph System
http://lymphaticdisorders.wordpress.com/
Bacterial
Infections
http://fungalinfections.wordpress.com/
http://trisomydisorders.wordpress.com/
http://lymphedemahome.livejournal.com/
Lymphedema
http://www.xanga.com/lymphedema
MRSA Information
http://mrsainformation.blogspot.com/
Lymphangiectasia - Xanga
http://mrsainformation.blogspot.com/
Lymphangiectasia
http://lymphangiectasia.blogspot.com/
http://iconoclasticeclectic.wordpress.com/
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Lighthouse Lymphedema Network - Facebook
http://www.facebook.com/groups/163672565089/
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Friends Families and Suffers of Lymphedema
For more information:
http://health.groups.yahoo.com/group/FriendsFamilyandSuffersofLymphedema/
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Lymphedema
http://health.groups.yahoo.com/group/Lymphedema/?yguid=143325747
Post message: Lymphedema@yahoogroups.com
Subscribe: Lymphedema-subscribe@yahoogroups.com
Unsubscribe: Lymphedema-unsubscribe@yahoogroups.com
List owner: Lymphedema-owner@yahoogroups.com
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Christian L L S G
(Christian Lower Limb Support Group)
* Wonderful group for those who want to learn aboutlymphedema and who
also wish
to share their faith - upholding one another in prayer*
http://health.groups.yahoo.com/group/Christian_L_L_S_G/?yguid=143325747
Post message: Christian_L_L_S_G@yahoogroups.com
Subscribe: Christian_L_L_S_G-subscribe@yahoogroups.com
Unsubscribe: Christian_L_L_S_G-unsubscribe@yahoogroups.com
List owner: Christian_L_L_S_G-owner@yahoogroups.com
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ACOR Lymphedema Online
Support Group
To subscribe to the Lymphedema Online Support Group, send an e-mail to:
LISTSERV@LISTSERV.ACOR.ORG
Leave the subject blank. In the message, just write:
SUBSCRIBE LYMPHEDEMA yourfirstname yourlastname
To learn more about the Lymphedema Online Support Group, visit the ACOR
website at http://www.acor.org
If you have any problems, please send me a message at renee@reneekaplan.com
and I will help you.
Renee Kaplan
Listowner, Lymphedema Online Support Group
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Lymphedema
ACCOR
ArchivesofLymphedema@Listserv.acor.org
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*** This group has moved to a
new home due to technical problems,
it is still open, but members are encouraged to go to the new site***
see - Christian L L S G
Christian with
Lower Limb Lymphedema
http://health.groups.yahoo.com/
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Swell Folk
http://health.groups.yahoo.com/group/swellfolk/?yguid=143325747
Subscribe: swellfolk-subscribe@yahoogroups.com
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LLLlymphedema2
http://health.groups.yahoo.com/group/LLLymphedema2/?yguid=143325747
Subscribe: LLLymphedema2-subscribe@yahoogroups.com
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Mobile Lymphedema Yahoo Group
This is a lymphedema support group for Mobile County and Baldwin County in Alabama
http://health.groups.yahoo.com/group/Mobile_lymphedema/
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Lymphedema Patient Support - Canada
http://health.groups.yahoo.com/group/lymphpatsupcan/
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Richmond (Virginia) Lymphedema Support Network Yahoo Group
http://health.groups.yahoo.com/group/richmondlymphedemasupportnetwork/
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Lymphedema Online Discussion Boards
Visit our discussion board at our home page
Lymphedema People
http://www.lymphedemapeople.com
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UKLymph General Discussion Board
*membership required
http://www.uklymph.com/forums/
=======================Lymphedema Blogs
----------------------------
LymphBaby
http://lymphbaby.blogspot.com/
Lymphedema Art Journal
http://lymphedemaart.blogspot.com/
The Lymphedema Blog
http://lymphedemablog.blogspot.com/
Big Leg Woman - Lipedema
http://biglegwoman.blogspot.com/
===========================
For information about Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\
For Information about Lymphedema Complications
http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema
For Lymphedema Personal Stories
http://www.lymphedemapeople.com/phpBB2/viewforum.php?f=3
For information about How to Treat a Lymphedema Wound
http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound
For information about Lymphedema Treatment
http://www.lymphedemapeople.com/wiki/doku.php?id=treatment
For information about Exercises for Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema
For information on Infections Associated with Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema
For information on Lymphedema in Children
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children
Lymphedema Glossary
http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing
===========================
Lymphedema People New Wiki Pages
Have
you seen our new
“Wiki” pages yet? Listed
below
are just a sample of the more than 140 pages now listed in our Wiki
section. We
are also working on hundred more.
Come
and take a stroll!
Lymphedema
Glossary
http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema
Arm
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema
Leg
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema
Acute
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema
The
Lymphedema Diet
http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet
Exercises
for Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema
Diuretics
are not for
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=diuretics_are_not_for_lymphedema
Lymphedema
People Online
Support Groups
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_people_online_support_groups
Lipedema
http://www.lymphedemapeople.com/wiki/doku.php?id=lipedema
Treatment
http://www.lymphedemapeople.com/wiki/doku.php?id=treatment
Lymphedema
and Pain
Management
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pain_management
Manual
Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT)
Infections
Associated with
Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema
How
to Treat a Lymphedema
Wound
http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound
Fungal
Infections Associated
with Lymphedema
http://www.lymphedemapeople.com/wiki/doku.php?id=fungal_infections_associated_with_lymphedema
Lymphedema
in Children
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children
Lymphoscintigraphy
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphoscintigraphy
Magnetic
Resonance Imaging
http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging
Extraperitoneal
para-aortic lymph node dissection (EPLND)
Axillary
node biopsy
http://www.lymphedemapeople.com/wiki/doku.php?id=axillary_node_biopsy
Sentinel
Node Biopsy
http://www.lymphedemapeople.com/wiki/doku.php?id=sentinel_node_biopsy
Small
Needle Biopsy - Fine Needle Aspiration
http://www.lymphedemapeople.com/wiki/doku.php?id=small_needle_biopsy
Magnetic
Resonance Imaging
http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging
Lymphedema
Gene FOXC2
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_foxc2
Lymphedema Gene VEGFC
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_vegfc
Lymphedema Gene SOX18
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_sox18
Lymphedema
and
Pregnancy
http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pregnancy
Home page: Lymphedema People
http://www.lymphedemapeople.com
Page Updated: Jan. 16, 2012