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Lymphedem Online Support Groups

Lymphedema Online Discussion Boards

Lymphedema Blogs

For most of my 55 years, I felt I was alone in this battle with lymphedema. This year I have discovered numerous on-line support groups. In these groups, I have found a wonderful family. The hope, joy, information, and companionship I have received from these groups is immeasurable. Below is a listing of some groups.

Check them out, see which one fits your needs and situation. You may wish to join one, two or all. You will not be disapointed. Some you may only be able to get to thru Yahoo Groups.

I've tried to include only active groups.  There are many groups still listed (for example) in the Yahoo group directory that haven't been active for some time.

Pat O'Connor

May 11, 2008

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Advocates for Lymphedema

Join us in our sister site as we develop a grass roots movement for the advocacy of lymphedema. We are focusing on information presentation through the media, passage of state  laws for reform and consistancy in the treatment and insurance coverage of lymphedema and legal reform at the Federal level.

Home Page

http://health.groups.yahoo.com/group/AdvocatesforLymphedema/

Subscribe

Subscribe: AdvocatesforLymphedema-subscribe@yahoogroups.com

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CHILDREN WITH LYMPHEDEMA

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.

http://health.groups.yahoo.com/group/childrenwithlymphedema/

Subscribe: childrenwithlymphedema-subscr...@yahoogroups.com

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Teens with Lymphedema

Description

Support group for teens and friends of teens with the condition lymphedema. This will be a safe forum where teens can meet others who share the same struggle with this condition. A place to find information, encouragement and hope. A home where you no longer have to feel like your the only one with lymphedema. Sponsored by Lymphedema People

http://health.groups.yahoo.com/group/Teens_with_Lymphedema/

Subscribe: Teens_with_Lymphedema-subscribe@yahoogroups.com

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All About Lymphangiectasia Yahoo Support Group

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.

http://health.groups.yahoo.com/group/allaboutlymphangiectasia/

Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com

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MEN WITH LYMPHEDEMA

Allright men, its our turn and its time. Let's face it, we are years behind the women in understand and dealing with health issues that face us. This seems to be especially true in understand, dealing with and overcoming the physical and psychological issues that face us with lymphedema.

This is a safe haven, where we can lay it on the table, a place where we can "take charge" of this condition and move ahead with our lives.

Here we don't have to worry about impressing the ladies (how could they be any more impressed anyway); we don't have to be the strong silent type (everyone knows we are as tough as a mad marine and as solid as the rock of Gilbralter); we don't have to be concerned with being macho (after all, we make even Dirty Harry cringe in the corner).

If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.

http://health.groups.yahoo.com/group/menwithlymphedema/

Subscribe: menwithlymphedema-subscribe@yahoogroups.com

Pat O'Connor

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Lymphatic Disorders Support Group

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.

DISCRIPTION

Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.

http://health.groups.yahoo.com/group/lymphaticdisorders/

Subscribe: lymphaticdisorders-subscribe@yahoogroups.com

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Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!

http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515

Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com

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All About Lymphoedema

Yahoo Australia and New Zealand's Groups first online community for lymphoedema.

Welcome to the All About Lymphoedema Support Group. A caring support group and extended family for those who experience the condition known as lymphoedema. Come join us as we learn not only how to live with lymphoedema, but learn how to overcome it and enjoy life to its maximum. Sponsored by Lymphedema People

http://au.groups.yahoo.com/group/All_About_Lymphoedema/

Subscribe: All_About_Lymphoedema-subscribe@yahoogroups.com.au

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Our Blogs:

My Life with Lymphedema

 

http://mylifewithlymphedema.blogspot.com/

Developmental Disorders of the Lymphatics

http://lymphsystemdisorders.blogspot.com

 

Edema and Related Medical Conditions

 

http://www.edemainformation.blogspot.com

 

Lymphedemaville 

http://lymphedemaville.wordpress.com/

 

Disorders of the Lymph System

 

http://lymphaticdisorders.wordpress.com/

 

Bacterial Infections

 

http://bacteriainfections.blogspot.com

 

Antibiotics

 

http://antibioticinformation.blogspot.com/

 

Fungus Infections

 

http://fungalinfections.wordpress.com/ 

 

Cellulitis

 

http://cellulitisinfections.blogspot.com/

 

Trisomy Disorders

 

http://trisomydisorders.wordpress.com/

 

Lipedema

Comprehensive blog site for brining together all information on lipedema to go with our Yahoo group Lipedema, Lipoedema, Lipodema.

http://www.xanga.com/lipedema

 

Lymphedema Home

 

  http://lymphedemahome.livejournal.com/

 

Lymphedema

 

http://www.xanga.com/lymphedema

 

MRSA Information

 

http://mrsainformation.blogspot.com/

 

Lymphangiectasia - Xanga

 

http://mrsainformation.blogspot.com/

 

Lymphangiectasia

 

http://lymphangiectasia.blogspot.com/

 

***My Personal Blogs***

 

Creative brooding

 

http://creativebrooding.blogspot.com/

 

The Life and Times of Pat O'Connor

 

http://360.yahoo.com/cpo22000

 

Iconoclastic Eclectic

 

http://iconoclasticeclectic.wordpress.com/

Pat O'Connor - A Home Page

http://hometown.aol.com/patoco2/myhomepage/index.html

Pat O'Connor - A Home Page 2

http://www.geocities.com/cpo22000/countryside2.html

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Lighthouse Lymphedema Network - Facebook

http://www.facebook.com/groups/163672565089/

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Friends Families and Suffers of Lymphedema

For more information:

http://health.groups.yahoo.com/group/FriendsFamilyandSuffersofLymphedema/

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Lymphedema

http://health.groups.yahoo.com/group/Lymphedema/?yguid=143325747

Post message: Lymphedema@yahoogroups.com

Subscribe: Lymphedema-subscribe@yahoogroups.com

Unsubscribe: Lymphedema-unsubscribe@yahoogroups.com
List owner: Lymphedema-owner@yahoogroups.com


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Christian L L S G

(Christian Lower Limb Support Group)

* Wonderful group for those who want to learn aboutlymphedema and who also wish to share their faith - upholding one another in prayer*

http://health.groups.yahoo.com/group/Christian_L_L_S_G/?yguid=143325747

Post message: Christian_L_L_S_G@yahoogroups.com

Subscribe: Christian_L_L_S_G-subscribe@yahoogroups.com

Unsubscribe: Christian_L_L_S_G-unsubscribe@yahoogroups.com
List owner: Christian_L_L_S_G-owner@yahoogroups.com


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ACOR Lymphedema Online Support Group

To subscribe to the Lymphedema Online Support Group, send an e-mail to:
LISTSERV@LISTSERV.ACOR.ORG
Leave the subject blank. In the message, just write:
SUBSCRIBE LYMPHEDEMA yourfirstname yourlastname

To learn more about the Lymphedema Online Support Group, visit the ACOR
website at http://www.acor.org

If you have any problems, please send me a message at renee@reneekaplan.com
and I will help you.

Renee Kaplan
Listowner, Lymphedema Online Support Group


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Lymphedema ACCOR

ArchivesofLymphedema@Listserv.acor.org

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*** This group has moved to a new home due to technical problems,
it is still open, but members are encouraged to go to the new site***

see - Christian L L S G

Christian with Lower Limb Lymphedema

http://health.groups.yahoo.com/

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Swell Folk

http://health.groups.yahoo.com/group/swellfolk/?yguid=143325747

Subscribe: swellfolk-subscribe@yahoogroups.com

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LLLlymphedema2

http://health.groups.yahoo.com/group/LLLymphedema2/?yguid=143325747

Subscribe: LLLymphedema2-subscribe@yahoogroups.com


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Mobile Lymphedema Yahoo Group

This is a lymphedema support group for Mobile County and Baldwin County in Alabama

http://health.groups.yahoo.com/group/Mobile_lymphedema/

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Lymphedema Patient Support - Canada

http://health.groups.yahoo.com/group/lymphpatsupcan/

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Richmond (Virginia) Lymphedema Support Network Yahoo Group

http://health.groups.yahoo.com/group/richmondlymphedemasupportnetwork/

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Lymphedema Online Discussion Boards

Visit our discussion board at our home page

Lymphedema People

http://www.lymphedemapeople.com

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UKLymph General Discussion Board

*membership required

http://www.uklymph.com/forums/

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Lymphedema Blogs

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LymphBaby

http://lymphbaby.blogspot.com/

Lymphedema Art Journal

http://lymphedemaart.blogspot.com/

The Lymphedema Blog

http://lymphedemablog.blogspot.com/

Big Leg Woman - Lipedema

http://biglegwoman.blogspot.com/

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For information about Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\

For Information about Lymphedema Complications

http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema

For Lymphedema Personal Stories

http://www.lymphedemapeople.com/phpBB2/viewforum.php?f=3

For information about How to Treat a Lymphedema Wound

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound

For information about Lymphedema Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment

For information about Exercises for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema

For information on Infections Associated with Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema

For information on Lymphedema in Children

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

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Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet?  Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more.  Come and take a stroll! 

Lymphedema Glossary 

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing 

Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema 

Arm Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema 

Leg Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema 

Acute Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema 

The Lymphedema Diet 

http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet 

Exercises for Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema 

Diuretics are not for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=diuretics_are_not_for_lymphedema 

Lymphedema People Online Support Groups 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_people_online_support_groups 

Lipedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lipedema 

Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment 

Lymphedema and Pain Management 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pain_management 

Manual Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT)

http://www.lymphedemapeople.com/wiki/doku.php?id=manual_lymphatic_drainage_mld_complex_decongestive_therapy_cdt 

Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema 

How to Treat a Lymphedema Wound 

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound 

Fungal Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=fungal_infections_associated_with_lymphedema 

Lymphedema in Children 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children 

Lymphoscintigraphy 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphoscintigraphy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Extraperitoneal para-aortic lymph node dissection (EPLND) 

http://www.lymphedemapeople.com/wiki/doku.php?id=extraperitoneal_para-aortic_lymph_node_dissection_eplnd 

Axillary node biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=axillary_node_biopsy

Sentinel Node Biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=sentinel_node_biopsy

 Small Needle Biopsy - Fine Needle Aspiration 

http://www.lymphedemapeople.com/wiki/doku.php?id=small_needle_biopsy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Lymphedema Gene FOXC2

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_foxc2

 Lymphedema Gene VEGFC

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_vegfc

 Lymphedema Gene SOX18

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_sox18

 Lymphedema and Pregnancy

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pregnancy

Home page: Lymphedema People

http://www.lymphedemapeople.com

Page Updated: Jan. 16, 2012