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Autoimmune Disease Resource Directory

Immunodefiency Diseases included also

This page has been updated and will be maintained as a resource guide.  For specific updated information please see our new Wiki page:

Lymphedema and Autoimmune Diseases

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A super good question was raised by two members regarding lymphedema and autoimmune diseases. It appears that secondary lymphedema can be a complication of these conditions.

Again, though, I am not a doctor, just a LE lifer attempting to provide information that I wish the medical world would have done.

Addenum: Because listing each autoimmune condition that may cause
lymphedema or edema is so massive, it may well be beyond the scope of
this website. If you go into any of the sites linked below you will
find extensive lists of autoimmune conditions. Click on the one you
are interested in and it will take you further for comprehensive information. 

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What are autoimmune diseases?

Our bodies have an immune system, which is a complex network of special cells and organs that defends the body from germs and other foreign invaders. At the core of the immune system is the ability to tell the difference between self and nonself: what's you and what's foreign. A flaw can make the body unable to tell the difference between self and nonself. When this happens, the body makes autoantibodies (AW-toh-AN-teye-bah-deez) that attack normal cells by mistake. At the same time special cells called regulatory T cells fail to do their job of keeping the immune system in line. The result is a misguided attack on your own body. This causes the damage we know as autoimmune disease. The body parts that are affected depend on the type of autoimmune disease. There are more than 80 known types.

Overall, autoimmune diseases are common, affecting more than 23.5 million Americans. They are a leading cause of death and disability. Yet some autoimmune diseases are rare, while others, such as Hashimoto's disease, affect many people.

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Excellent over-all site for understand what an autoimmune disease is and its pathophysiology:

Understand Autoimmune Disease

National Institutes of Health

http://www.niams.nih.gov/health_info/Autoimmune/

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Here is a page of subjects with links to articles on immunity, autoimmune diseases and immunology:

An Attack on Self Tissues , and about Autoimmune Diseases - NIAID
     The Autoimmune Disease Research Center at Johns Hopkins Medical Institutions (US)
     The Autoimmune Disease Research Foundation
     About Autoimmune Disorders - The Doctor's Doctor (US)
     About Auto Antibody Test Methods and Auto Antibody Patterns [G Reeves] - Hunter Area Pathology Service (AU)
     Discussions among people affected by Autoimmune Diseases - BrainTalk Communities (US)
     About Plasmapheresis and autoimmune disease therapy - MDA (US)
     The American Autoimmune Related Diseases Association Inc., including Autoimmunity - The Common Thread [NR Rose]
     Autoimmune diseases classified by the mechanism of tissue damage [from Immunobiology. 5th ed. by Janeway et al., 2001] - via PubMed, NLM (US)
     Tolerance and Autoimmunity [IR Mackay] - BMJ, Jul 2000
     Autoimmunity [L Laidler] - Texas A&M Univ, Kingsville (US)
     Clinical Immunology/Autoimmunity - Univ of Leicester (UK)
     Autoimmunity Links [M Breske]
     Autoimmune Inner Ear Disease [DD Backous] - Baylor Coll.
     Ocular Autoimmune Disease - an introduction [CS Foster] and a discussion on Multiple Autoimmune Diseases [N Tesavibul] - MEEI/Harvard
     A Gender Gap in Autoimmunity [Whitacre et al.] - Science Magazine Feb '99
     Sex Differences and Gene Expression in Autoimmune Disease [ER Winstead] - GNN
     Vitamin D: its role and uses in immunology [DeLuca and Cantorna] - FASEB Journal 2001;15:2579-85

Autoimmune Diseases of the Nervous System

Lambert-Eaton Myasthenic Syndrome  
About Lambert-Eaton Myasthenic Syndrome - MEDLINEPlus/ADAM
Lambert-Eaton Myasthenic Syndrome and Myasthenia Gravis - MDA USA
About Lambert-Eaton Myasthenic Syndrome [P Kleinschmidt] - eMedicine
Lambert-Eaton myasthenic syndrome - Wikipedia
On Two treatment of Lambert-Eaton Myasthenic Syndrome [abstract] - Cochrane Review

http://www.mic.ki.se/Diseases/C20.html#C20.111

Karolinska Institutet University Library

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What is auto-immune disease?

Good basic article on autoimmune

http://www.recoverymedicine.com/auto_immune_disease.htm


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Autoimmune Diseases

Supportfind.com

Action for M.E. Bristol Services
Bristol, United Kingdom
Westcare UK was established in 1989 to provide specialist, high quality services for people with Chronic Fatigue Syndrome (CFS) also known as ME (Myalgic Encephalomyelitis). Westcare UK also provides services for health professionals involved in CFS/ME. These services have been highly valued by the people who have used them.

Arthritis Symptoms
Washington, United States
Provides information on hundreds of types of arthritis and other inflammtory conditions.

Behcet's Syndrome Society
West Berkshire, United Kingdom
The Society's aims are: To provide information and support for people with Behçet’s disease and for those who care for them; To provide financial aid in hardship caused by Behçet’s disease; To foster education, collaboration and networking in the medical and allied professions with an interest in Behçet’s disease; To promote and assist with research into Behçet’s disease; To promote the cause of patient support groups and of rare diseases amongst the appropriate influential institutions, authorities and decision-making bodies and to provide them with information about Behçet’s disease.

Fibromyalgia Support North Down
County Down, Ireland
We provide support for people with Fibromyalgia through montly meetings, a lending library, guest speakers, etc.

GRACE - Give Rheumatoid Arthritis Children Encouragement
Lancashire, United Kingdom
A web site dedicated to the education of juvenile rheumatoid arthritis. We have formed a support group which provides resources and avenues for sharing ideas and feelings. A place to meet and learn from other families who truly understand what your child is experiencing.

Guillain-Barré Syndrome of New South Wales
New South Wales, Australia
The aims of the Association include visiting and encouraging existing and newly diagnosed people with Guillain-Barre Syndrome or chronic inflammatory demyelinating polyradiculoneuropathy, maintain telephone support,and increasing the awareness of the general public of GBS and CIDP. 

Guillain-Barré Syndrome Support Group
Lincolnshire, United Kingdom
We provide information and support to all those suffering from the Guillain-Barré syndrome (GBS) and related conditions (including CIDP), and to their families and friends.

Guillain-Barre Syndrome Support Group of New Zealand
Taranaki, New Zealand
The GBS Support Group pools the knowledge and support of sufferers and their carers. Feel free to contact any of executive officers listed who can give you information and, if possible, put you in touch with fellow sufferers in your area.

Jeanette's APECED Home page
Web-based, New Zealand
My vision is to link families and health professionals with sound and empowering information and with each other, to help maximise the quality of life for people with APECED (APS1).

Jooly's Joint
London, United Kingdom
Jooly's Joint is an award-winning online community of people who live with Multiple Sclerosis. If you, a family member or a friend has MS you will find friendship here.

Kids Foundation of New Zealand Inc
Auckland, New Zealand
Our vision is to provide New Zealand families affected by Primary Immune Deficiency (PID) with Support, Advocacy and Education on these rare genetic disorders.

Lupus Association of NSW Inc.
New South Wales, Australia
The Lupus Association of NSW aims to help lupus patients and their families in a number of ways: by providing help, counselling and up-to-date information; by promoting understanding by patients, their families and the community; and by encouraging research, training and the provision of high quality healthcare services.

Lupus Association of Tasmania
Tasmania, Australia
Information on Lupus including symptoms, treatment and support available to sufferers and their family and friends. Contains Links to other Lupus sites all over the world.

Lupus Australia Foundation
Victoria, Australia
The Lupus Australia Foundation is a volunteer organisation dedicated to providing information, support and advocacy for people with Systemic Lupus Erythematosus and Discoid Lupus.

Lupus Australia, QLD Inc.
Queensland, Australia
Information on Lupus including symptoms, treatment and support available to sufferers and their family and friends.

Lupus Group of WA (Inc)
Western Australia, Australia
The website of the Lupus Group of WA provides support for lupus patients and their families, together with educational awareness of the disease and its treatment.

Lupus Trust of New Zealand
Auckland, New Zealand
We are committed to understanding and supporting people with Lupus and related autoimmune diseases

Lymphoedema Association of Victoria
Victoria, Australia
We are a non-profit organisation working towards increased awareness, education, research and support for those with lymphoedema.

Lymphoedema Association of Australia
South Australia, Australia
The Lymphoedema Association of Australia was founded in 1982 to encourage research into lymphoedema (lymphedema) and its treatment, and to spread information about these among doctors, therapists and patients.

New Zealand Addison's Network
Hawkes Bay, New Zealand
The New Zealand Addison's Network (NZAN) has been formed to provide members with sound information to help achieve the best quality of life.

North East Lupus Group
Durham, United Kingdom
We hold meetings in Newcastle, Durham, and Middlesbrough, and occasionally in other areas. We have a network of local contacts - people who have Lupus and are willing to talk on a one-to-one basis about any concerns you may have about Lupus.

Overton Studios Trust
Conwy, United Kingdom
Online help for Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and Fibromyalgia.

Sheffield ME Group
South Yorkshire, United Kingdom
There are an estimated 1000 sufferers of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome in Sheffield and South Yorkshire. Sheffield ME Group is run by sufferers for sufferers as a point of contact, information and support for people with ME/CFS of all ages and their families and carers in the area. Sheffield ME Group runs a variety of services, such as information, regular and special meetings, library and newsletter, listening ear, and computer skills training.

Sjogrenís Syndrome New Zealand
Auckland, New Zealand
A site operated for the benefit of Sjogrenis Syndrome sufferers in New Zealand, Australia and elsewhere.

Sjögren's Syndrome Foundation
Maryland, United States
The The Sjögren's Syndrome Foundation promises to make a difference in the lives of people with Sjögren's and their families.

Support Myalgic Encephalomyelitis Hampshire
Hampshire, United Kingdom
Support M.E Hampshire is a local support group to give young people the opportunity to be with friends who understand their illness. The emphasis of the group is not on the illness but on the social time with others. We plan to meet every other month, to plan a trip out in the following month, suggested trips so far, Cinema, shopping, museum, bowling.

Swindon ME Support Group
Swindon, United Kingdom
The aims of the group are to encourage and support sufferers and their carers in a positive way by meeting and keeping in touch regularly, to share information and ways of coping with the illness, to raise public awareness of M.E. and it’s causes and effects, to raise funds to cover the running costs of the Group and to provide money for research into M.E.

The Lupus Site
Lancashire, United Kingdom
Information on lupus (SLE) including diagnosis, symptoms of lupus, tests, lupus FAQ, tips, forum, chat room & more.

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Epstein-Barr virus-related lymph node lesion resembling autoimmune disease-like clinicopathological findings in elderly patients Report of three cases

Abstract

http://www.blackwell-synergy.com/links/doi/10.1111/j.1600-0463.2003.apm1111202.x/abs/


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Autoimmunity

http://microvet.arizona.edu/Courses/MIC419/Tutorials/autoimmunity.html


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Immune Response Diseases

Massive 46 page article on the subject. Requires
Adobe Acrobat

www.cehs.siu.edu/fix/301/PDF/lecture6.pdf


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Autoimmune Diseases - Complement deficiency 

http://www.emedicine.com/ped/TOPIC447.HTM

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Human autoimmune diseases: Progress in clinical laboratory tests.

Medical Laboratory Observer, Oct, 2000, by Robert M. Nakamura

http://www.findarticles.com/cf_0/m3230/10_32/66498629/p1/article.jhtml


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Therapeutic plasmapheresis for autoimmune disease.

http://www.findarticles.com/cf_0/m3230/11_32/67503354/p1/article.jhtml


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Autoimmune disorders

Gale Encyclopedia of Medicine by John Thomas Lohr

http://www.findarticles.com/cf_0/g2601/0001/2601000170/p1/article.jhtml

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  Immunologic Diseases   
  Immonology [Bowers et al.; educ.] - Univ of South Carolina (US)
  A 4-pages introduction to The Immune System - Nobel Foundation
  Understanding the Immune System 
  The Anatomy of the Immune System , and an Immunology Glossary - Univ of Leicester (UK)
  The Immune System [P Bugl] -Univ of Hartford (US)
  Basic Immunology [G Heath] - Optometry Today, Feb 2002 (UK)
  Understanding the Immune System [Schindler et al.] - Cancer.gov (US)
  Immunobiology. 5th ed. [Janeway et al., 2001; online book] - via PubMed, NLM (US)
  The Immune System [TJ Copeland]
  An Immunology Study Sheet - Medical Study Guides, Univ of Kansas (US)
  How Your Immune System Works [M Brain]
  Immunobiology animations [Flash 5 Player required] - Garland Science Publ. (UK)
  Immunological Disorders [Edgar and Sewell; sample chapter] - Textbook of Medicine/Souhami et al.
 
  Immunology Links [educ.] - Medical Educ Inf Center, U of Texas (US)
  Immune Responses 
  Immunity and Infection 
  Phagocytes in the human body - Cancer.gov
  The Integrin Page [J Koster]
  Immunology Lectures , including i.a. Histocompatibility 
  Understanding Tissue Typing 
  Pediatric Rheumatology [T. Lehman] - (US)
  Primer on Rheumatic Diseases - University of Birmingham (UK)
  Injection Techniques in Rheumatology 
  See also under Musculoskeletal Diseases [links] - KIB (SE)
  Papers in Reproductive Immunology - Finch Univ., Chicago (US)
  Ocular Immunology - MEEI/Harvard
  Inducible Defenses 
  Immunology Overview [Goldman & Prabhakar] - U of Texas (US)
  Immune Defenses (against infections) and How Microbes Evade the Human Immune Reaction [P Millikin] - UIC/Pathology (US)
  About Corticosteroids 
  The Cyclosporin Story 
  Antibodies [sample chapter from Roitt and Brostoff: Immunology, 2001]
  The Antibody Resource Page [K. Shreder]
  About B cells [T Lee] and about Antibodies - Structure & Sequence [A Martin] - Univ. College London (UK)
  Hybridoma Technology - Cancer.gov (US)
  About Adhesion Molecules 
  About Superantigens - Ohlendorf Lab, Univ of Minnesota (US)
  About Regulatory T cells , and T Helper cells [JW Kimball]
  About the Thymus gland , and T cells [T Lee] and about the Spleen 
  T Cells [image] - StressTips.com
  Cytokines [T Lee] - Dalhouise Univ. (CA)
  Cytokines in Allergic Disease - Houston Medical School, Univ of Texas (US)
  COPE - Cytokines Online Pathfinder Encyclopaedia [H Ibelgaufts] - (DE)
  About Tumor Necrosis Factor ; TNF - OMIM, NLM (US)
 
  Brief facts about Leukocytes and Mast Cells - HON (CH)
  About Lymphocytes
  How Lymphocytes Produce Antibody - Cells Alive
  Chemokines - Background Info - RDI
  Chemokines review [2 pages] - State Univ of N.Y./Pathol
  About Chemokine Family   
  Substance P: A Modulator of Inflammation
  On The Placebo Effect - the Skeptic's Dictionary
  The International ImMunoGeneTics Database - IMGT (FR)
  Vaccines information - WHO
  The 2003 Recommended Adult Immunization Schedule - AAFP (US)
  The US Nat'l Network for Immunization Information
 
  Vaccines
  Vaccine Research - NIAD/NIH (US)
  About Vaccines [J Moodie] - (ZA)
  The Nat'l Vaccine Information Center - (US)
  Six Common Misconceptions about Vaccination , and the US Nat'l Immunization Program - CDC/NIP
  Immunoglobulin Handbook , indications and dosage for normal/specific preparations - Health Protection Agency (UK)
  The importance of injecting vaccines into muscle [editorial] - BMJ, Nov 2000
  The DNA Vaccine Web - (US)
  The CHF - Citizens for Healthcare Freedom [vaccination sceptics] - North Carolina (US)
  Breast-Feeding What to Expect 
http://www.whattoexpect.com/first-year/breastfeeding/landing.aspx
  La Leche League Int'l (breast feeding)
  Recalls and Withdrawals of Fractionated Blood & Plasma Products - CBER (US)
  International Immunology [journal]
  Journal of Immunology - AAI
  Immunity (journal) - Cell Press
     Autoimmune Diseases   
     Autoimmune Diseases - NIAID
     Autoimmune Diseases 
     The Autoimmune Disease Research Center at Johns Hopkins Medical Institutions (US)
     CTLA-4 and Autoimmune Diseases 
     The Autoimmune Disease Research Foundation
     About Autoimmune Disorders - The Doctor's Doctor (US)
     About Auto Antibody Test Methods and Auto Antibody Patterns [G Reeves] - Hunter Area Pathology Service (AU)
     Discussions among people affected by Autoimmune Diseases - BrainTalk Communities (US)
     About Plasmapheresis and autoimmune disease therapy - MDA (US)
     The American Autoimmune Related Diseases Association Inc., including Autoimmunity - The Common Thread [NR Rose]
     Autoimmune diseases classified by the mechanism of tissue damage [from Immunobiology. 5th ed. by Janeway et al., 2001] - via PubMed, NLM (US)
     Tolerance and Autoimmunity [IR Mackay] - BMJ, Jul 2000
     Autoimmunity [L Laidler] - Texas A&M Univ, Kingsville (US)
     Clinical Immunology/Autoimmunity - Univ of Leicester (UK)
     Autoimmune Inner Ear Disease [DD Backous] - Baylor Coll.
     Ocular Autoimmune Disease - an introduction [CS Foster] and a discussion on Multiple Autoimmune Diseases [N Tesavibul] - MEEI/Harvard
     A Gender Gap in Autoimmunity [Whitacre et al.] - Science Magazine Feb '99
     Sex Differences and Gene Expression in Autoimmune Disease [ER Winstead] - GNN
     Vitamin D: its role and uses in immunology [DeLuca and Cantorna] - FASEB Journal 2001;15:2579-85

        Antiphospholipid Syndrome   
        About Antiphospholipid Syndrome [E Letko] - Massachusetts Eye & Ear Infirm. (US)
        Antiphospholipid Antibody Syndrome - MedicineNet
        Antiphospholipid Syndrome - Medstudents (BR)
        The Hughes Syndrome ( Antiphospholipid Syndrome ) Foundation [G Hughes]
       
        Antiphospholipid Antibodies and Systemic Lupus Erythematosus [M Petri]
        Lupus and Sneddon's Syndrome
        About Antiphospholipid Syndrome , and Sneddon Syndrome - OMIM (US)
        Classification of Sneddon's Syndrome [SM Schellong et al.; abstract] - PubMed (US)

        Arthritis, Rheumatoid   

           Sjogren's Syndrome   
           The Sjögren's Syndrome Foundation Inc. (US)
           Sjögren's Syndrome - Cleveland Clinic (US)
           Sjögren's Syndrome - MedStudents (BR)
          
           Resources for Sjögren's Syndrome , including a Guide for the Patient [Fox et al.; 1995]
           Sjögren-Syndrom-Selbsthilfe - Rheuma-Liga Hessen e.V. (DE)
           About Schirmer's Test - Adam, via MedlinePlus
           On Hematological abnormalities within primary Sjvgren's syndrome [Manthorpe et al.] - Malmoe Univ Hospital (SE)
           Patientföreningen Sjögren's Syndrom [in Swedish & English] - (SE)
           On Sjogren's Syndrome and Estrogen Deficiency [Ishimara et al., abstract only] - Am J Pathol, Oct 2003, via PubMed
           Sjögren's Syndrome - U of Washington, Seattle (US)

           Autoimmune Diseases of the Nervous System   

           Lambert-Eaton Myasthenic Syndrome   
           About Lambert-Eaton Myasthenic Syndrome - MEDLINEPlus/ADAM
           Lambert-Eaton Myasthenic Syndrome and Myasthenia Gravis - MDA USA
           About Lambert-Eaton Myasthenic Syndrome [P Kleinschmidt] - eMedicine
           On some Treatment of Lambert-Eaton Myasthenic Syndrome [abstract] - Cochrane Review


        Lambert-Eaton Myasthenic Syndrome   

     Graft vs Host Disease   
     Quick clinical facts about Graft-vs.-Host Disease - CHORUS
     Control of Graft versus Host Disease - BioScience.Org
     A Case of Hemoptysis and Fever [Geraldino & Nine] - Pathol./U of Pittsburgh (US)
     Graft Versus Host Disease [RA Mandanas] - eMedicine
     About Graft Versus Host Disease - US Nat'l Marrow Donor Program
     Chronic Cutaneous Graft-versus-Host Reaction [images] - 
     Hypersensitivity   
     Hypersensitivity diseases [a chapter from Immunobiology. 5th ed.,Janeway et al., 2001] - via PubMed, NLM (US)
     American Academy of Allergy, Astma & Immmunology
     American College of Allergy, Asthma & Immunology , including, among many other things, an Immunotherapy Fact Sheet
     Articles on Asthma & Allergy from the Mayo Clinic (US)
     On The Immunologic Basis of Allergic Diseases - Houston Medical School, Univ of Texas (US)
     ALLSA Handbook of Practical Allergy - Allergy Society of South Africa
     About Allergy Testing - Nat'l Jewish C. for Immunology & Respiratory Medicine (US)
     About Asthma [links]
     Allergy Related Articles & Databases [H Steinman], compiled by AllAllergy
     What function does Immunoglobulin E (IgE) serve? - SciAm
     About Antihistamines - AAIR (UK)
     About Antihistamine Toxicity [B Roth] - e-medicine/BMP (US)
     Hygiene Hypothesis gains support in the US and Europe [T Begany] - Respiratory Reviews, Jan 2003
     Infections Alter Allergic Response [Feb 2003; in support of the Hygiene Hypothesis] - Nat'l Jewish Medical & Research Center (US)
     The Allergy Discussion List (@ tamu.edu) and the Allergy Basics Center [B Kinnaman] - (US)
           Multiple Chemical Sensitivity   
           Resources for the Chemically Sensitive or Environmentally Ill - Lassen Technologies (US)
          
           On Multiple Chemical Sensitivities [PB Rosen] - TAMU (US)
           Multiple Chemical Sensitivities [IR Bell] - Psychiatric Times, Jan 2003
           MCS Survivors (Multiple Chemical Sensitivity) [L Hamilton]
           Multiple Chemical Sensitivity Syndrome [Magill and Suruda] - Am Family Phys, Sep '98
           Electrosensitivity (not on MeSH)
           Electromagnetic Fields and Public Health - WHO
           EMF-Link: Hypersensitivity to Electromagnetic Fields - EMF Clearinghouse (US)
          
           About Hypersensitivity to Electricity [C Tegenfeldt] - FEB/Linkoping (SE)
          
           A background paper on Power Line Fields and Public Health [D Hafemeister]
           A collection of FAQs on Cellular Phone Antennas and Human Health 
           Health Issues related to Mobile Phones - FDA (US)
           On Biological Effects of Mobile Telephony - SSI, 2003 (SE)
           EMF Rapid (electric and magnetic fields research) - NIEHS (US)
           Sick Building Syndrome   
           About Sick Building Syndrome , and Indoor Air Pollution - EPA (US)
           Indoor Environment Management - EPA (US)
           Sick Building Syndrome 
           Sick Building Syndrome - Health Directorate (UK)

        Hypersensitivity, Immediate   
        About Assessment of Allergic Disease , and about Tryptase levels [G Reeves] - HAPS (AU)
        AAIR: Asthma & Allergy Information & Research - (UK)
        About Urticaria ( Hives ) [links]
        About Airborne Allergens - NIAID/NIH (US)
        About Allergic Rhinitis and Hay Fever - BUPA (UK)
        About 'Farmer's Lung' - CCOHS (CA)
        About Contact Allergy - National Skin Centre (SG)
        About Insect Sting Allergy 
        About Pet Allergies - EMed
        About Pigeon Breeders Disease (Pigeon Lung) - British Pigeon Fanciers
        Food Allergy Resources - USDA/FDA (US)
        Manifestations of Food Allergy: Evaluation and Treatment [S Sicherer] - Am Family Phys, Jan '99
        The Food Allergy & Anaphylaxis Network
        NoSoy (for the soybean challenged) [V & D Washington]
        Food Allergy Center , and about Food and Hypersensitivity [SJ Gislason] - NutraMed
        A note about Chinese Restaurant Syndrome (Sensitivity to Monosodium glutamate, or ...?) - Nutrition Australia
           Anaphylaxis   
           About Anaphylaxis - Nat'l Jewish Medical & Research C (US)
           Anaphylaxis - Life-threatening allergy [M Stern]
           Anaphylaxis [R Wyatt] - PostGradMed, Aug 1996
           Anaphylaxis [RS Krause] - eMedicine
           The Food Allergy & Anaphylaxis Network
           Flowchart for the treatment of acute anaphylaxis 
           Samter's Syndrome (not on MeSH)
           Some Aspirin related information - CancerWeb, and about Samter's Triad/Aspirin Triad - Allergy Capital (AU)
           Bronchial asthma, nasal polyps, and aspirin sensitivity: Samter's syndrome [HJ Zeitz; 1988] - via PubMed
           Aspirin "Allergy" or Sensitivity - Allergy Web, Florida (US)

        Immune Complex Diseases   
        A brief note about Immune Complex Disease - Cancer.gov (US)
              Purpura, Schoenlein-Henoch   
              Henoch-Schonlein Purpura [picture] - Univ. of Iowa (US)
              Henoch-Schonlein Purpura - Adam, via MedlinePlus
              About Henoch-Schonlein Purpura (Anaphylactoid Purpura) - MedicineNet
              Henoch-Schönlein Purpera - A Review [Kraft et al] - Am Family Phys, Aug '98
             
              An Unusual Rash [Findlay and Primrose] - PMJ Online, Apr '99
              Henoch-Schonlein Purpura - MDChoice

        Latex Hypersensitivity   
        About Natural Rubber Latex Allergy - (UK)
        A collection of Latex Allergy Links [NA Mitchell]

     Immunologic Deficiency Syndromes   
     The Challenge of Immunodeficiency Disorders [Dube et al.] - PostGradMed, Jul 2002
     Int'l Patient Organization for Primary Immunodeficiences
     A Patient and Family Handbook , a Guide for Nurses , and a Physician's Primer (about Primary Immune Deficiency Diseases) from the Immune Deficiency Foundation - (US)
     PiA - Primary Immunodeficiency Association in the UK
     Primary Immune Deficiency Diseases information - NIAID
     Immunodeficiency Diseases [GD Marshall, Jr] - Univ of Texas/Houston Med School
     Primary Immunodeficiency - NICHHD
     The Jeffrey Modell Foundation (Primary Immune Deficiency) , and some disease information from the US National Primary Immunodeficiency Resource Center http://www.info4pi.org/
     About Primary Immune Deficiency - Jeffrey Modell Foundation (US)
     The Immune Deficiency Resource [J Valiaho] - (FI)
     The US Immune Deficiency Foundation including the IDF Patient/Family Handbook
     X-linked Immunodeficiency with Hyper-IgM [A O'Neill Shigeoka] - eMedicine
     On the genetics of Immunodeficiency with Hyper-IgM - NCBI
     The Primary Immune Deficiency Web Ring
        Ataxia Telangiectasia   
        About Ataxia Telangiectasia - Immune Deficiency Foundation
        Questions & Answers About Ataxia Telangiectasia - NIH via Med Help Int'l, FL (US)
        The Ataxia-Telangiectasia Society - (UK)
        A-T Project Online [for children]
        New Clues about Ataxia Telangiectasia ... - NINDS, Sep '98
        The A-T Children's Project - Florida (US)
        A-T Gene on Chromosome 11 - NCBI (US)
        Common Variable Immunodeficiency   
        Common Variable Immunodeficiency 
        About Common Variable Immunodeficiency - Handbook/Immune Deficiency Foundation
        Common Variable Immunodeficiency [RM Modak and PR Modak] - eMedicine
        DiGeorge Syndrome   
        About DiGeorge Syndrome - Jeffrey Modell Foundation (US)
        My daughter has DiGeorge Syndrome... - Dr Greene
        DiGeorge Syndrome 
        DiGeorge Syndrome karyotype - Cytogenetics Gallery, Univ of Washington/Pathol. (US)
        DiGeorge Syndrome and chromosome 22 - Genes and Disease/NCBI/NIH (US)
        Discarded Thymus Tissue May Save Lives In Digeorge Syndrome Infants [Oct '99] - via Doctor's Guide
        HIV Infections   
        Links to HIV & AIDS (Acquired Immunodeficiency Syndrome) Resources
 
        Phagocyte Bactericidal Dysfunction   
           Granulomatous Disease, Chronic   
           About Chronic Granulomatous Disease - CGD [Atteberry & Jackson] - Univ. of Kansas (US)
           Chronic Granulomatous Disease Trust and Support Group - (UK)
           Chronic Granulomatous Disease - Jeffrey Modell Found.

        Severe Combined Immunodeficiency   
        The SCID Home Page [B Ballard]
        About Severe Combined Immunodeficiency - Jeffrey Modell Foundation
        Treatment of X-linked Severe Combined Immunodeficiency by In Utero Transplantation of Paternal Bone Marrow [case study] - C for Fetal Diag and Treatment, Philadelphia (US)
        Brief note on the Genetics of Severe Combined Immunodeficiency - NCBI/NLM (US)
        Gene therapy frees 'bubble babies' (Severe Combined Immunodeficiency) - BBC News , Apr 2000
        Gene therapy: Treating the 'bubble babies' (Severe Combined Immunodeficiency) - The Human Genome
        Wiskott-Aldrich Syndrome   
        About Wiskott-Aldrich Syndrome - US Immune Deficiency Foundation
        About Wiskott-Aldrich syndrome [Dibbern Jr and Routes] - eMedicine
        Wiskott-Aldrich syndrome: life-threatening haemorrhage .... , a case report [Loan et al.] at St. Jude Children's Research Hospital
 
        Immunoproliferative Disorders   
        Lymphoproliferative Disorders   
        About some Uncommon Lymphoproliferative Disorders - Sloan-Kettering Cancer Center (US)
        On Lymphoproliferative Disorders [S Winter] - eMedicine
        Cord blood transplants may restore defective immune systems (X-linked lymphoproliferative syndrome, XLP) [R Dobson] - BMJ, Apr 2001
        The Autoimmune Lymphoproliferative Syndrome (APLS) Database - NHGRI/NIH (US)

=======================================================

See also:

Edema 

http://www.lymphedemapeople.com/wiki/doku.php?id=edema

Edema and Chronic Venous Insufficiency

http://www.lymphedemapeople.com/thesite/edema_chronic_venous_insufficiency.htm

Edema and Deep Venous Thrombosis

http://www.lymphedemapeople.com/thesite/lymphedema_deep_venous_thrombosis.htm

Edema and Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome

http://www.lymphedemapeople.com/thesite/edema_and_reflex_sympathetic_dystrophy.htm

Edema and Venous Pooling

http://www.lymphedemapeople.com/thesite/edema_and_venous_pooling.htm

Angioedema

http://www.lymphedemapeople.com/wiki/doku.php?id=angioedema

Edema of the Neck

http://www.lymphedemapeople.com/thesite/lymphedema_of_the_neck.htm

Edema and Nephrotic Syndrome

http://www.lymphedemapeople.com/thesite/edema_nephrotic_syndrome.htm

Edema of the Face

http://www.lymphedemapeople.com/thesite/edema_of_the_face.htm

Thrombophlebitis

http://www.lymphedemapeople.com/wiki/doku.php?id=thrombophlebitis

Edema and Diabetes

http://www.lymphedemapeople.com/thesite/lymphedema_and_diabetes.htm

===========================

Join us as we work for lymphedema patients everywhere:

Advocates for Lymphedema

Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.

http://health.groups.yahoo.com/group/AdvocatesforLymphedema/

Subscribe: AdvocatesforLymphedema-subscribe@yahoogroups.com

Pat O'Connor

Lymphedema People / Advocates for Lymphedema

===========================

For information about Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\

For Information about Lymphedema Complications

http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema

For Lymphedema Personal Stories

http://www.lymphedemapeople.com/phpBB3/viewforum.php?f=3

For information about How to Treat a Lymphedema Wound

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound

For information about Lymphedema Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment

For information about Exercises for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema

For information on Infections Associated with Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema

For information on Lymphedema in Children

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

===========================

Lymphedema People - Support Groups

-----------------------------------------------

Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.

http://health.groups.yahoo.com/group/childrenwithlymphedema/

Subscribe: childrenwithlymphedema-subscribe@yahoogroups.com


......................

Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!

http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515

Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com

......................

MEN WITH LYMPHEDEMA

If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.

http://health.groups.yahoo.com/group/menwithlymphedema/

Subscribe: menwithlymphedema-subscribe@yahoogroups.com

......................

All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.

http://health.groups.yahoo.com/group/allaboutlymphangiectasia/

Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com

......................

Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.

DISCRIPTION

Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.

http://health.groups.yahoo.com/group/lymphaticdisorders/

Subscribe: lymphaticdisorders-subscribe@yahoogroups.com

===========================

Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet?  Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more.  Come and take a stroll! 

Lymphedema Glossary 

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing 

Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema 

Arm Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema 

Leg Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema 

Acute Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema 

The Lymphedema Diet 

http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet 

Exercises for Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema 

Diuretics are not for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=diuretics_are_not_for_lymphedema 

Lymphedema People Online Support Groups 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_people_online_support_groups 

Lipedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lipedema 

Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment 

Lymphedema and Pain Management 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pain_management 

Manual Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT)

http://www.lymphedemapeople.com/wiki/doku.php?id=manual_lymphatic_drainage_mld_complex_decongestive_therapy_cdt 

Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema 

How to Treat a Lymphedema Wound 

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound 

Fungal Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=fungal_infections_associated_with_lymphedema 

Lymphedema in Children 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children 

Lymphoscintigraphy 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphoscintigraphy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Extraperitoneal para-aortic lymph node dissection (EPLND) 

http://www.lymphedemapeople.com/wiki/doku.php?id=extraperitoneal_para-aortic_lymph_node_dissection_eplnd 

Axillary node biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=axillary_node_biopsy

Sentinel Node Biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=sentinel_node_biopsy

 Small Needle Biopsy - Fine Needle Aspiration 

http://www.lymphedemapeople.com/wiki/doku.php?id=small_needle_biopsy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Lymphedema Gene FOXC2

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_foxc2

 Lymphedema Gene VEGFC

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_vegfc

 Lymphedema Gene SOX18

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_sox18

 Lymphedema and Pregnancy

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pregnancy

Home page: Lymphedema People

http://www.lymphedemapeople.com

Page Updated: Dec. 6, 2011