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Government Resources in the United Kingdom

Lymphoedema Government Resource Directory for the United Kingdom

This list is in no means all inclusive, but does contain some of the main sites that I thought would be of help to our lymphedema family in the UK.

Pat O'Connor

May 23, 2008

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Welcome to the Department of Health - UK

http://www.doh.gov.uk/

Department of Health

http://www.dh.gov.uk/en/index.htm

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10 Downing Street

http://www.number10.gov.uk/

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House of Parliament Home Page

http://www.parliament.uk/

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Work and Pensions Committee - House of Commons

http://www.parliament.uk/parliamentary_committees/work_and_pensions_committee.cfm

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National Electronic Library for Health - UK

http://www.library.nhs.uk/Default.aspx

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Department for Work and Pensions

http://www.dwp.gov.uk/

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Disabled people and carers

http://www.dwp.gov.uk/lifeevent/discare/

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Information for Disabled People

http://www.direct.gov.uk/en/DisabledPeople/index.htm

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Disability Living Allowance Advisory Board

http://www.dsdni.gov.uk/index/dlaab.htm

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Social Care Online

Electronic Library for Social Care - UK

http://www.scie-socialcareonline.org.uk/

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National Health Service

http://www.nhs.uk/

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N H S Direct Online

http://www.nhsdirect.nhs.uk/

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NHS Local Services Search

List of care trusts, hospital trusts, primary care trusts and strategic health authorities with contact details and website addresses where available.

http://www.nhs.uk/servicedirectories/Pages/ServiceSearch.aspx

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Intute: Health & Life Sciences

OMNI - Your guide to quality Internet resources in health and medicine

http://www.intute.ac.uk/healthandlifesciences/medicine/

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Patient Information - Patient UK

Contains listings of UK and international internet sites on consumer health issues, including sites providing information on health promotion, medicines, dental and eye health, caring, benefits, news, glossaries and alternative medicine. Also includes details of UK Self Help and Patient Support Groups.

http://www.patient.co.uk/

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Healthcare Commission

Commission for Health Improvement

The Commission for Health Improvement
Finsbury Tower
103-105 Bunhill Row
London, EC1Y 8TG

Email: information@chi.nhs.uk
Tel: 020 7448 9200

http://www.chi.nhs.uk/

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Health Protection Agency

http://www.hpa.org.uk/

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Medicines and Healthcare products Regulatory Agency

An executive agency of the Department of Health

We enhance and safeguard the health of the public by ensuring that medicines and medical devices work and are acceptably safe. No product is risk-free. Underpinning all our work lie robust and fact-based judgements to ensure that the benefits to patients and the public justify the risks.

http://www.mhra.gov.uk/

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National Institute for Clinical Excellence

http://www.nice.org.uk/

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The Parliamentary and Health Service Ombudsman

http://www.ombudsman.org.uk/

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Ableize 

Disability resource directory of disabled aids information products services and advice

Ableize is a comprehensive UK and Ireland resource of disability and mobility information. Find disability and disabled products and services, sports and the arts plus, children's needs, education, social care and mobility and walking aids. The directory contains the largest disability categories in the UK. Ableize directory is UK based but may contains listings from any country offering shipping, services or information to disabled people in the UK.

 http://www.ableize.com/

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The Department for Work and Pensions (DWP)

http://www.dwp.gov.uk/

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Caring for the NHS

You & your doctor - British Medical Association

http://www.bma.org.uk/ap.nsf/Content/__HubYouYourDoc


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British Medical Society

http://www.bma.org.uk/ap.nsf/content/home

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Building a safer NHS for patients: Improving Medication Safety

http://www.bma.org.uk/ap.nsf/Content/__HubYouYourDoc

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Building a safer NHS for patients - implementing an organisation with a memory

'Building a safer NHS for patients' sets out the Government's plans for promoting patient safety.

http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4006525

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Complaints procedures for the Department of Health

Details are provided here of the formal complaints procedures available to those who are not satisfied with the service provided by either the UK National Health Service or Local Authority Social Services. This document is published on the Web by the Department of Health

http://www.dh.gov.uk/en/Managingyourorganisation/Legalandcontractual/Complaintspolicy/index.htm

Complaints about the Department of Health - contact and procedures

http://www.dh.gov.uk/en/ContactUs/ComplaintProcedures/index.htm

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Health service ombudsman for England

The Health Service Ombudsman for England investigates complaints about the National Health Service (NHS). The ombudsman is independent of both the government and the NHS. This Web site provides information on how to make a complaint, how to complain locally, how to involve the ombudsman, who can complain, what type of complaints can and cannot be investigated by the ombudsman, the stages of the investigation, and how to complain about the decisions reached by the ombudsman. Official documents are available in full-text from this site (including an online ombudsman complaints form) and there is no charge for the services provided.

http://www.ombudsman.org.uk/

How to Complain

http://www.ombudsman.org.uk/make-a-complaint/how-to-complain

Making a Complaint

http://www.ombudsman.org.uk/make-a-complaint

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Disability Services

Easy access to the public services you use and the information you need, delivered by the UK government

http://www.direct.gov.uk/en/index.htm

Disability Financial Support Page

http://www.direct.gov.uk/en/DisabledPeople/FinancialSupport/index.htm

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Office for Disability Issues

http://www.officefordisability.gov.uk/default.asp

The Minister for Disabled People

http://odi.dwp.gov.uk/about-the-odi/the-minister-for-disabled-people.php

Disabled people

http://www.direct.gov.uk/en/DisabledPeople/index.htm

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ODI's list of useful sites including websites for government, disability organisations

http://odi.dwp.gov.uk/index.php

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National Archives

http://webarchive.nationalarchives.gov.uk/+/www.direct.gov.uk/en/Hl1/Help/Socialservices/index.htm

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The Scottish Government

http://www.scotland.gov.uk/Home

Scottish Social Services Council

http://www.sssc.uk.com/

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The Welsh Assembly Government

http://new.wales.gov.uk/splash

Social Services and Social Care

http://wales.gov.uk/topics/health/socialcare/?lang=en

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OnlineNI

The citizen portal for Northern Ireland

http://www.onlineni.net/

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Patient Advocacy - UK

http://www.patient.co.uk/showdoc/30/

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European Parliament

http://www.europarl.europa.eu/news/public/default_en.htm

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European Parliament - health & Invironmental Issues

http://www.europarl.europa.eu/news/public/documents_par_theme/911/default_en.htm

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Social Security and Pensions - United Kingdom

http://www.lymphedemapeople.com/thesite/social_security_and_pensions_united_kingdom.htm

Lymphedema Resources - United Kingdom

http://www.lymphedemapeople.com/thesite/lymphedema_resources_united_kingdom.htm

Lymphedema Therapists - United Kingdom

http://www.lymphedemapeople.com/thesite/lymphedema_therapists_united_kingdom.htm

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Join us as we work for lymphedema patients everywehere:

Advocates for Lymphedema

Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.

http://health.groups.yahoo.com/group/AdvocatesforLymphedema/

Subscribe: AdvocatesforLymphedema-subscribe@yahoogroups.com

Pat O'Connor

Lymphedema People / Advocates for Lymphedema

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For information about Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\

For Information about Lymphedema Complications

http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema

For Lymphedema Personal Stories

http://www.lymphedemapeople.com/phpBB2/viewforum.php?f=3

For information about How to Treat a Lymphedema Wound

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound

For information about Lymphedema Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment

For information about Exercises for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema

For information on Infections Associated with Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema

For information on Lymphedema in Children

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

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Lymphedema People - Support Groups

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Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.

http://health.groups.yahoo.com/group/childrenwithlymphedema/

Subscribe: childrenwithlymphedema-subscribe@yahoogroups.com

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Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!

http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515

Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com

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MEN WITH LYMPHEDEMA

If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.

http://health.groups.yahoo.com/group/menwithlymphedema/

Subscribe: menwithlymphedema-subscribe@yahoogroups.com

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All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.

http://health.groups.yahoo.com/group/allaboutlymphangiectasia/

Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com

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Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.

DISCRIPTION

Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.

http://health.groups.yahoo.com/group/lymphaticdisorders/

Subscribe: lymphaticdisorders-subscribe@yahoogroups.com

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Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet?  Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more.  Come and take a stroll! 

Lymphedema Glossary 

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing 

Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema 

Arm Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema 

Leg Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema 

Acute Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema 

The Lymphedema Diet 

http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet 

Exercises for Lymphedema  

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema 

Diuretics are not for Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=diuretics_are_not_for_lymphedema 

Lymphedema People Online Support Groups 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_people_online_support_groups 

Lipedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=lipedema 

Treatment 

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment 

Lymphedema and Pain Management 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pain_management 

Manual Lymphatic Drainage (MLD) and Complex Decongestive Therapy (CDT)

http://www.lymphedemapeople.com/wiki/doku.php?id=manual_lymphatic_drainage_mld_complex_decongestive_therapy_cdt 

Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema 

How to Treat a Lymphedema Wound 

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound 

Fungal Infections Associated with Lymphedema 

http://www.lymphedemapeople.com/wiki/doku.php?id=fungal_infections_associated_with_lymphedema 

Lymphedema in Children 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children 

Lymphoscintigraphy 

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphoscintigraphy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Extraperitoneal para-aortic lymph node dissection (EPLND) 

http://www.lymphedemapeople.com/wiki/doku.php?id=extraperitoneal_para-aortic_lymph_node_dissection_eplnd 

Axillary node biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=axillary_node_biopsy

Sentinel Node Biopsy 

http://www.lymphedemapeople.com/wiki/doku.php?id=sentinel_node_biopsy

 Small Needle Biopsy - Fine Needle Aspiration 

http://www.lymphedemapeople.com/wiki/doku.php?id=small_needle_biopsy 

Magnetic Resonance Imaging 

http://www.lymphedemapeople.com/wiki/doku.php?id=magnetic_resonance_imaging 

Lymphedema Gene FOXC2

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_foxc2

 Lymphedema Gene VEGFC

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_vegfc

 Lymphedema Gene SOX18

 http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_gene_sox18

 Lymphedema and Pregnancy

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_and_pregnancy

Home page: Lymphedema People

http://www.lymphedemapeople.com

Page Updated: Jan. 17, 2012