Government Resources Australia and New Zealand

Lymphoedema Resources for Ausralasia

I have tried to update this page as best I could. The Department of Health and Ageing for Australia has been completely reworking their website, so I will keep check as they change their information. If you see any errors or know of information we should include, please email me direct.

Lymphedema is seldom the only condition an individual may have. In fact, as we have seen through research, the lymph system is intricately tied to every other bodily system and many conditions and diseases. We have included in this update a directory of community health services and medical foundations.

Pat O'Connor

Lymphedema People

e-mail: lymphedemapeople@aol.com

May 20, 2008

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Government of Australia - website

http://www.australia.gov.au/

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AUSTRALIA - Department of Health and Ageing

http://www.health.gov.au/

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Disability Support Pension

The Disability Support Pension is a payment for people whose physical, intellectual or psychiatric impairment prevents them from working, or for people who are permanently blind.

http://www.centrelink.gov.au/internet/internet.nsf/payments/disability_support.htm

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Information on Conditions and Diseases

http://www.health.gov.au/internet/main/publishing.nsf/Content/Conditions+and+Diseases-1

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Medical Indemnity Homepage

http://www.health.gov.au/internet/main/publishing.nsf/Content/medical-indemnity.htm

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Medicare Australia

http://www.medicareaustralia.gov.au/

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Medicare Plus

http://www.health.gov.au/medicareplus/index.htm

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How do I claim from Medicare?

http://www.medicareaustralia.gov.au/public/claims/how/index.shtml

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Pharmaceutical Benefits Scheme (PBS)

http://www.health.gov.au/pbs

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The Core Department of Human Services

http://www.humanservices.gov.au/dhs/index.html

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Australian Department of Human Services - Budgetary Information

http://www.humanservices.gov.au/dhs/publications/budget/0809-financial-year.html

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BreastScreen Australia Program

http://www.cancerscreening.gov.au/internet/screening/publishing.nsf/Content/breastscreen-1lp

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Cancer

http://www.healthinsite.gov.au/topics/Cancer

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CancerScreening

http://www.cancerscreening.gov.au/

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Diabetes

http://www.healthinsite.gov.au/topics/Diabetes

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State Departments of Health

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Queensland Health Department

http://www.health.qld.gov.au/

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Queensland Department of Families

http://www.families.qld.gov.au/

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The Australian Capital Territory Government Health

http://www.health.act.gov.au/c/health

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New South Wales Health

http://www.health.nsw.gov.au/

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NSW Health Clinical Access Program

http://www.clininfo.health.nsw.gov.au/

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NSW Department of Community Services

http://www.community.nsw.gov.au/

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Northern Territories - Department of Health and Community Services

http://www.nt.gov.au/health/

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Government of Western Australia - Department of Health

http://www.health.wa.gov.au/

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South Australia - Department of Human Services

http://www.health.sa.gov.au/

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State Government of Victoria - Department of Human Services

http://www.dhs.vic.gov.au/

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VicHealth

http://www.vichealth.vic.gov.au/

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Tasmania - Department of Health and Human Services

http://www.dhhs.tas.gov.au/index.php3

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Other Important Links:

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Ability Incorporated Advocacy Service

Ability Incorporated Advocacy Service is funded to advocate and support people with disabilities their families and carers. The service is FREE to consumers. A person can access the service if they have a disability that has an; acquired brain injury, sensory, or physical impairment, or a combination of such, and is permanent or likely to be permanent and the person must have a need for ongoing support services.

http://abilityincorporated.org.au/

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Association of Genetic Support of Australasia

AGSA will endeavour to facilitate contact with another family/individual affected by the same, or similar conditions, and/or provide information about an overseas support group. AGSA also provides: A Peer Support and Information Officer who deals with enquiries and facilitates ongoing support for individuals, families, health professionals and other interested groups.

http://www.agsa-geneticsupport.org.au/

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Australian Charities

This site has been running since 1996 and is the gateway for information on major Australian
charities and the publication - The Charities Book. The book itself is now in its 22nd year.

http://www.auscharity.org/

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Australian Competition & Consumer Commission

The ACCC promotes competition and fair trade in the market place to benefit consumers, businesses and the community. It also regulates national infrastructure services. Its primary responsibility is to ensure that individuals and businesses comply with the Commonwealth competition, fair trading and consumer protection laws.

http://www.accc.gov.au/content/index.phtml/itemId/142

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Australian Health Map

The Australian Health Map is a state-by-state guide to health resources, statistics and information. Click on a state in the map below for health resources, statistics and information.

http://www.abc.net.au/health/healthmap/default.htm

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Australian Patient Safety Foundation

The Australian Patient Safety Foundation Inc. (APSF) is a non-profit independent organisation dedicated to the advancement of patient safety.

http://www.apsf.net.au/

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Cancer Council of Australia

The Cancer Council Australia advises the Australian Government and other bodies on practices and policies to help prevent, detect and treat cancer. We also advocate for the rights of cancer patients for best treatment and supportive care.

http://www.cancer.org.au/Home.htm

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Disability Services Australia

DSA is one of Australia's largest and most respected providers of employment and community support services for people with a disability, providing support for more than 1300 people.

http://www.dsa.org.au/Home.aspx?element=1&category=1

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Health Insite

Through this site you will find a wide range of up-to-date and quality assessed information on important health topics such as diabetes, cancer, mental health and asthma.

http://www.healthinsite.gov.au/

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Lifeline Service Finder

This service is a resource available to both health professionals and the public. Search for agencies, services and programs close to home, using this confidential search engine.

http://www.justlook.org.au/

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National Disability Services

NDS is the national industry association for disability services, representing over 600 not-for-profit organisations. Collectively, our members operate several thousand services for Australians with all types of disability. NDS’s members range in size from small support groups to large multi-service organisations, and are located in every State and Territory across Australia.

http://www.nds.org.au/

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Palliative Care Australia

Palliative Care Australia is the peak national organisation representing the interests and aspirations of all who share the ideal of quality care at the end of life for all.

http://www.palliativecare.org.au/

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Medical Foundations and Organizations:

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Arthritis Australia

http://www.arthritisaustralia.com.au/

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Australia Kidney Foundation

http://www.kidney.org.au/

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Australian Rheumatology Association

http://www.rheumatology.org.au/

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Breast Cancer Network - Australia

http://www.bcna.org.au/

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Chronic Fatigue Syndrome

http://www.healthinsite.gov.au/topics/Chronic_Fatigue_Syndrome

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Cystic Fibrosis in Australia

http://www.cysticfibrosis.org.au/

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Diabetes Australia

http://www.dav.org.au/content.asp?rid=495

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Epilepsy Action Australia

http://www.epilepsy.org.au/

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Fibromyalgia Network

http://www.fmnetnews.com/

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Heart Foundation

http://www.heartfoundation.org.au/index.htm

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Lymphoedema Association of Australia

http://lymphoedema.org.au/index.html

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MS Australia

http://www.msaustralia.org.au/

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National Asthma Council

http://www.nationalasthma.org.au/html/home/index.asp

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National Stroke Foundation

http://www.strokefoundation.com.au/

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OzMS - Australian Multiple Sclerosis Peer Support

http://www.ozms.org/

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Gideon Lang Research Foundation

Research into Chronic Pain and Chronic Fatigue

http://www.gideonlang.org/pain_friends.htm

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Parkinson's Australia

http://www.parkinsons.org.au/

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New Zealand Government Web Site

http://newzealand.govt.nz/

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New Zealand Ministry of Health

Ministry of Social Development

http://www.moh.govt.nz/moh.nsf

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Minister of Health

http://www.beehive.govt.nz/minister/david+cunliffe

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New Zealand Health and Disability Sector Contacts

Public Health Services

http://www.moh.govt.nz/moh.nsf/indexmh/contact-us-public-health-services

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New Zealand Health and Disability Sector Contacts

Health-related Government Agencies and Ministerial Committees

http://www.moh.govt.nz/moh.nsf/indexmh/contact-us-govt-agencies

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The New Zealand Health and Disability System

http://www.moh.govt.nz/moh.nsf/f872666357c511eb4c25666d000c8888/a4655bc724ee3809cc256ac0000d4bfa?OpenDocument

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Accommodation Supplement

Ministry of Social Development

http://www.workandincome.govt.nz/get-assistance/extra-help/accommodation-supplement.html

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Disability and Child Care Allowance

Ministry of Social Development

http://www.workandincome.govt.nz/get-assistance/extra-help/disability-child-allowance.html

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Invalids Benefit

Ministry of Social Development

http://www.winz.govt.nz/get-assistance/main-benefit/invalids.html

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Main benefit information

Ministry of Social Development

http://www.workandincome.govt.nz/get-assistance/main-benefit/index.html

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Sickness Benefit

http://www.winz.govt.nz/get-assistance/main-benefit/sickness.html

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Health and Disability Commissioner

The Health and Disability Commissioner is an independent agency set up to:

promote and protect the rights of consumers who use health and disability services;
help resolve problems between consumers and providers of health and disability services; and
improve the quality of health care and disability services.

http://www.hdc.org.nz/

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Health and Disability Complaints

http://www.hdc.org.nz/complaints/opinions?97HDC9756

Making a Complaint

http://www.hdc.org.nz/complaints/making-a-complaint

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Nationwide Health and Disability Advocacy Service

A health and disability advocate belonging to the Nationwide Advocacy Service will listen to consumers' concerns and explain the options available to resolve a complaint. The advocate is on the side of the consumer and will support and assist the consumer in any actions he or she chooses to take to resolve concerns

http://www.hdc.org.nz/advocacy

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The Code of Health and Disability Services Consumers' Rights

http://www.hdc.org.nz/theact/theact-thecode

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Medical Council of New Zealand

http://www.mcnz.org.nz/

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New Zealand Government Websites - Directory / Links

http://www.moh.govt.nz/moh.nsf/wpgIndex/Links-New+Zealand+Government+Contents

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New Zealand Guidelines Group

The New Zealand Guidelines Groups leads the health and disability sector in driving the effective use of credible evidence.

http://www.nzgg.org.nz/index.cfm

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New Zealand Health Websites - Directory / Links

http://www.moh.govt.nz/moh.nsf/wpgIndex/Links-New+Zealand+Health+Contents

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A-Z of Government Agencies Directory / Links

http://newzealand.govt.nz/directory/

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SEE ALSO:

Lymphoedema Organizations Australia

http://www.lymphedemapeople.com/thesite/lymphoedema_organizations_australia.htm

Lymphedema Therapists - Australia

http://www.lymphedemapeople.com/thesite/lymphedema_therapists_australia.htm

Lymphedema Therapists New Zealand

http://www.lymphedemapeople.com/thesite/lymphedema_therapists_new_zealand.htm

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Join us as we work for lymphedema patients everywehere:

Advocates for Lymphedema

Dedicated to be an advocacy group for lymphedema patients. Working towards education, legal reform, changing insurance practices, promoting research, reaching for a cure.

http://health.groups.yahoo.com/group/AdvocatesforLymphedema/

Subscribe:

AdvocatesforLymphedema-subscribe@yahoogroups.com

Pat O'Connor

Lymphedema People / Advocates for Lymphedema

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For information about Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema\

For Information about Lymphedema Complications

http://www.lymphedemapeople.com/wiki/doku.php?id=complications_of_lymphedema

For Lymphedema Personal Stories

http://www.lymphedemapeople.com/phpBB2/viewforum.php?f=3

For information about How to Treat a Lymphedema Wound

http://www.lymphedemapeople.com/wiki/doku.php?id=how_to_treat_a_lymphedema_wound

For information about Lymphedema Treatment

http://www.lymphedemapeople.com/wiki/doku.php?id=treatment

For information about Exercises for Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=exercises_for_lymphedema

For information on Infections Associated with Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=infections_associated_with_lymphedema

For information on Lymphedema in Children

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema_in_children

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

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Lymphedema People - Support Groups

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Children with Lymphedema

The time has come for families, parents, caregivers to have a support group of their own. Support group for parents, families and caregivers of chilren with lymphedema. Sharing information on coping, diagnosis, treatment and prognosis. Sponsored by Lymphedema People.

http://health.groups.yahoo.com/group/childrenwithlymphedema/

Subscribe: childrenwithlymphedema-subscribe@yahoogroups.com

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Lipedema Lipodema Lipoedema

No matter how you spell it, this is another very little understood and totally frustrating conditions out there. This will be a support group for those suffering with lipedema/lipodema. A place for information, sharing experiences, exploring treatment options and coping.

Come join, be a part of the family!

http://health.groups.yahoo.com/group/lipedema_lipodema_lipoedema/?yguid=209645515

Subscribe: lipedema_lipodema_lipoedema-subscribe@yahoogroups.com

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MEN WITH LYMPHEDEMA

If you are a man with lymphedema; a man with a loved one with lymphedema who you are trying to help and understand come join us and discover what it is to be the master instead of the sufferer of lymphedema.

http://health.groups.yahoo.com/group/menwithlymphedema/

Subscribe: menwithlymphedema-subscribe@yahoogroups.com

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All About Lymphangiectasia

Support group for parents, patients, children who suffer from all forms of lymphangiectasia. This condition is caused by dilation of the lymphatics. It can affect the intestinal tract, lungs and other critical body areas.

http://health.groups.yahoo.com/group/allaboutlymphangiectasia/

Subscribe: allaboutlymphangiectasia-subscribe@yahoogroups.com

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Lymphatic Disorders Support Group @ Yahoo Groups

While we have a number of support groups for lymphedema... there is nothing out there for other lymphatic disorders. Because we have one of the most comprehensive information sites on all lymphatic disorders, I thought perhaps, it is time that one be offered.

DISCRIPTION

Information and support for rare and unusual disorders affecting the lymph system. Includes lymphangiomas, lymphatic malformations, telangiectasia, hennekam's syndrome, distichiasis, Figueroa
syndrome, ptosis syndrome, plus many more. Extensive database of information available through sister site Lymphedema People.

http://health.groups.yahoo.com/group/lymphaticdisorders/

Subscribe: lymphaticdisorders-subscribe@yahoogroups.com

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All About Lymphedema

For our Google fans, we have just created this online support group in Google Groups:

Homepage: http://groups-beta.google.com/group/All-About-Lymphedema

Group email: All-About-Lymphedema@googlegroups.com

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Lymphedema Friends

http://groups.aol.com/lymphedemafriend

If you an AOL fan and looking for a support group in AOL Groups, come and join us there.

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Lymphedema People New Wiki Pages

Have you seen our new “Wiki” pages yet? Listed below are just a sample of the more than 140 pages now listed in our Wiki section. We are also working on hundred more. Come and take a stroll!

Lymphedema Glossary

http://www.lymphedemapeople.com/wiki/doku.php?id=glossary:listing

Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=lymphedema

Arm Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=arm_lymphedema

Leg Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=leg_lymphedema

Acute Lymphedema

http://www.lymphedemapeople.com/wiki/doku.php?id=acute_lymphedema

The Lymphedema Diet

http://www.lymphedemapeople.com/wiki/doku.php?id=the_lymphedema_diet