My name is Jacquie and I am 44 yrs young, I live right outside of Philly.
Long story short, back in Aug 2006 I came down with my first ever case of cellulitis in my right leg. After about a month of antibiotics it went away, HOWEVER this strange swelling stayed and began to move up to right below my knee. My primary doc kept saying it was from the cellulitis, 4 months after it began I noticed some "pitting", next thing I know I have 4 holes with clear fluid running out of them. Primary doc sends me for DVT ultrasound, no clots, still saying its the cellulitis. Few more months go by and now I am noticing my calf is hard as stone, now he has me taking Lasix, to no avail, all that did was deplete my potassium within 48 hrs.
I had even asked him twice if he thought it could be LE, "No, I don't think so" is his answer.
8 months have gone by now at it April 2007 and I notice my left foot and ankle are now swelling...... I go in and raise hell, I mean I was livid, I kept telling him this was not cellulitis and it certainly wasn't normal.
So he reccomends a Vascular Surgeon near by, takes me a month to get in. As you can imagine by now I am just beside myself with the imagination running wild as to what is wrong, I mean the last 2 weeks before being diagnosed I literally had to take a med for anxiety I was that bad, of course going on the internet and trying to figure it out was the worst thing I could have done.
I met with Dr Brotman the VS 2 weeks ago, turns out he was voted in the top 10 of this years Consumer Reports best surgeons.
Takes a history, reads the reports and examines my legs and looks up at me and says "You have secondary LE"
Then he explains things to me and tells me the next step which will be this Wed when I meet with the LE Therapist for evaluation
So now I have a name for it and of course I want to know as much as my brain will absorb right. I should have just read a little at a time because after reading some stories I find myself back in the panic mode.
I have a few questions if anyone can help me I would appreciate it.
1) Which antibiotics should I have on hand, I have a brand new script of Keflex in case of cellulitis, but what about a sore from say a blister from a shoe, a bug bite, etc...is Keflex ok for that too?
2) Which antibiotic creams or ointments should I keep on hand?
3) I have read stories about the fluids moving up into other parts of the body during therapy, does this happen to everyone?
4) Why does LE never go away, why will I always have this?
I'm so glad to have found this site, its comforting to kow I am not alone and I look forward to getting to know others.