Good to hear from you stranger
But not so glad to hear of you having difficulties.
If you have had all those other tests and everything else has been ruled out, I would say it may well be a p[rogression of the lymphedema. If the right side lymphatics in the chest stop functioning then you may have extensive swelling.
This happened to me starting in 2006. My right side lymphatics and the thoracic duct lymphatics basically shut down. I would up with several tubes in me so I could even drain the lung fluids every three days. BTW, keep check on oyur lungs to make sure this doesn't start happening to you.
In addition to what you therapist does, be sure you do lots of breathing exercises and ab/chest exercises. you therapist should be able to show you lots of those that may help in fluid movement.
Kim, while diuretics are contraindicated for lymphedema, my fluid got so bad that it was use diuretics or kick the bucket. So, I have also been on them for several years. I hate it, but in my case it was a life saving necessity.
Don't be such a stranger - let me know how you are doing.
Super best to you to