Vitamin D resistant--waiting to visit specialist..

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Vitamin D resistant--waiting to visit specialist..

Postby gottahavesun » Fri Mar 16, 2007 9:09 pm

My primary doctor checked my vitamin D level at the end of November and found it to be a 7(I think she said normal range was 50-80. She prescribed me 50K of vitamin D a week for 4 months and rechecked my level this week. The level did not budge, so she is sending me to an endocronoligist with the diagnosis of Vitamin D resistance. Wading thru the info on the web, I'm wondering if I'm going to get Celtic disease diagnosis that Julie had a while back or maybe it is something else. I just found an article on malabsorption, which talks about a possible problem with the postabsorptive phase with possible obstruction of the lymphatic system(good gosh how come LE is listed in all the weird medical jargan articles-lol). Anyone else have any guesses or experience of their own with this? I have to wait until the 28th to see the doctor, so of course I'm digging for all the info I can find...Thanks!
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Postby patoco » Fri Mar 16, 2007 9:19 pm

Hi Ya Lisa

Interesting you should post this. Malabsorption problems seem to run high with lymph patients.

My sister has Vit D and Vit B malabsorption. For some reason, I seem to have now a serious problem with protein absorption. I'm a heavy meat/cheese/egg eater, yet you would think I only chewed on grass and leaves :?

Let's hope for the best and we'll be waiting to hear how the doctor's appointment went.

Big hug

If you want some real Irish reading for St. Patrick's Day :D

http://blog.360.yahoo.com/blog-GqMqmLwy ... x=43&lmt=5

Pat O
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Postby joanne johnson » Fri Mar 16, 2007 11:38 pm

Happy St. Patrick's Day Pat!

We share the same heritage and I enjoyed reading what you put together on your blog. My husband and I went to Ireland about 6 years ago on a tour and really loved it.
Proud to be Irish!
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Postby gottahavesun » Thu Mar 29, 2007 10:53 pm

Update:
I went to the endocrinologist yesterday and he says I have a severe malabsorption problem--not just with Vit D, with protein, and problably the rest of vitamins and some of my meds as well. He says it looks like whatever I eat or take in is going right thru me(well dag why haven't I lost a ton of weight-lol). He wants me to have a colonscopy asap and he is retesting my blood to compare it to the full panel I had in November. Of course he says my bones are also at risk and probably low density, but right now he wants to get the malabsorption problem tackled first, since it is so severe. I can't get an appt with a gastrologist until April 9th, but they are pretty quick after that getting the colonscopy scheduled. I am already on meds for hypothyroidism, but he has now found a nodule that he wants to check out further. He has upped my vit d 50k dose to three times a week and I have an appt in 4 weeks to recheck everything. He says if he finds something else in the lab results that needs action before getting the coloscopy he will call me. It was really a big hit you in the face that this is very serious while I was talking to him. I mean of course I knew it was bad, but did not realize how my malabsorption problem is destroying my body. Hopefully, they will be able to find out what it is and I'll be able to restore some of the damage this is causing my body.
Thank goodness it is RIVAH time--I'm going tomorrow and none too soon to forget about the doc visit for a couple of days
I'll update more when I have new info.

Have a good weekend!
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Postby patoco » Fri Mar 30, 2007 12:14 am

Hi Ya Lisa :D

Thanks for the update, was wondering about you.

I hope the docs can work out a plan to help.

One thing I didn't mention is that with those of us who do have a problem with all over lymphedema, the lymphaticcs of the intestinal system can actually become dilated. This will not only cause additional swelling and can be a root problem with malabsorption.

Have fun at the rivah :wink:

Down here in Georgia, it has been so unseasonably hot that it has caused everything to explode open...pollen is at record levels so even those of us who don't have allergies are hiding inside.....cough, cough, :lol:

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Postby gottahavesun » Wed Apr 04, 2007 5:15 pm

Hey Pat--same here with the pollen--a green yellowish film over everything in sight.

The weekend at the rivah was just what I needed---well except for having to call the cops as soon as I got there--lord knows why someone would want to steal our 1991 golf cart that went less than 5 miles an hour--lol!!! We have insurance and are waiting to hear how much it will reimburse us and when, cuz daggone it I wanted to take my golf cart cruz with my hubby and couldn't. Of course HE has already picked out the next gas powered baby, since he has been bugging to get one for a couple of years now. The timing is never good to put out $$$ for stuff like that, but nothing to do except deal with it. Much like we deal with our LE isn't it?

Pat-what are you and your sis doing about your malabsorption problems--taking tons or modifying your diet? Can't wait to get the tests over and done with so I'll know what I need to do and then just do it.

Everyone have a good day!!!
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