Sooooo glad to hear back from you, I've been checking everyday.
I will say that sometimes lymphomas can be tricky to diagnose with lymphedema as the tissue fibrosis and changes can throw things off. That's why it is critical for the doctors to do secondary biopsies. They did this on me and then sent the specimens to several different pathologists. They were all in agreement. They may want to do follow up this way too.
I don't think your hubby's slacking off would have triggered the lymphoma, infact it has probably been lurking for some time.
This is hard for me because my commitment is to be totally honest, but at the same time I don't want to unnecessarily scare you with anything I say. I just feel you both need as much info at hand as you can have.
Initially, I too had daily radiation on the spot the tumor was removed. At the time, we just had no choice as Rituxan was not yet on the market and there was no way they could give me CHOPs (standard hard hitting chemo). It did work on that tumor, but there is no evidence that it really threw the lymphoma into any type of remission.
But, here's the major caveat on radiation. Yes, we did it, because we felt we were in a corner with no choice. However, the radiation did cause tisue damage in me as well and it just is absolutely out of the question any more. The central problem with radiation is not only the tissue damage that can occur, but radiation on a limb with lymphedema seems to be one of the important factors in making us susceptible to this cancer called lymphangiosarcoma. (Stewart Treves Syndrome)http://www.lymphedemapeople.com/thesite ... arcoma.htmhttp://www.lymphedemapeople.com/thesite ... ndrome.htm
Therefore, in your husbands case, I would very very strongly urge them not
to do further treatment with it. The doctor may feel like he can "better" treat him now, but the damage would still be there. In my case they did a less strong dose over a longer period thinking that may avoid damage, but it didn't.
I also don't think him not wearing wraps was what caused the infection. His immune system was simply under full assault and worn out and at that state just couldn't handle any type of infection. The pneumonia is probably due to the same reason. It is my understanding that even localized radiation takes quite a while for the body to get over. When you add everything together, it isn't surprising he got both.
BTW, it is true that interferon can cause some nasty psoriasis. It seems to be listed everywhere as a complication of the drug. When your husband had the radiation, the doctors should have know of the complications and should have had him use some type of skin lotion to help heal the skin.
One last thing. When the oncologists give any type of chemo, whether it is interfeon, standard chemo - whatever, they need to realize too that what goes into a lymphedema limb, stays in a lymphedema limb for a very very long time. This is because the system is simply not able to flush the leg out as it normally would. Having any type of med (in my opinion) like chemo staying in a limb can itself cause damage. Think of it that chemo is designed to kill cells - and having it stay in a limb gives it a longer time to kill not only the cancer cells, but possibly regular cells also.
As I said, I don't want to scare you with any of this, but at least if you and your husband are fully informed, you both will be able to make decisions better and hopefully guide the doctors. There are no easy answers or decisions.
And don't worrying even for a second about "ramblin"
....doesn't bother me in the slightest.
Give your hubby my best and remember, don't hesitate to write!
All the best