What can I expect from lymphedema?

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What can I expect from lymphedema?

Postby hoss » Tue Sep 08, 2009 1:28 pm

Hey gang!
I'm new here and just want to say I think it's awesome what you're doing to help
people in their times of need.

I'm a 31 year old male and was diagnosed with cellulitis,lymphedema,and chronic adema in early 2007 as a result of an injury to my left leg.
I'm use to getting cuts and bruises from my job as a Pipefitter for 13 years so I was'nt too worried about the injury it's self.
When my legs started to swell to the point of the skin cracking open I knew something was'nt right.So I was placed in the Hospital for 4 days on IV antibiotics and later told what I had as mentioned above.

So for the past 2 years I've had to deal with constant swelling in my legs.It's way worse when working on my feet for 12 hours a day up to 6 days a week.All I can do is sleep in a recliner with my legs propped up so the swelling won't get too bad.

My question is.
What can expect from this?
What can I do to help myself?

Thank you for any help and insight you can give me.
hoss
 
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Joined: Tue Sep 08, 2009 12:15 am

Re: What can I expect from lymphedema?

Postby patoco » Wed Sep 09, 2009 9:59 am

Hi Hoss :)

Super welcome to the family here - glad you found us.

Predicting what lymphedema will do is almost impossible to do. In my family of hereditary LE, it ranges the full spectrum. We have family members in their fifties who have it so mild, you would hardly notice they have it while others like myself seem to have just about every complication that can come along.

You will face a couple challenges here. First, if you haven't been to a certified LE therapist, please do so. They can treat the existing swelling and show you what to do to help prevent it from getting worse. You'll learn all about compression bandages and compression garments and how to use them.

Also, you've got to do all you can to prevent further cellulitis. Cellulitis is a major complication of LE and will also damage the lymph system even further.

With your job as a pipe fitter, these two points are really critical.

Let me load you up with some info pages and as you go through them jto down any questions and post them. I'll get back to you in day or so.

Leg Lymphedema

http://www.lymphedemapeople.com/wiki/do ... lymphedema

Cellulitis

http://www.lymphedemapeople.com/thesite ... ulitis.htm

MANUAL LYMPHATIC DRAINAGE (MLD) and COMPLEX DECONGESTIVE THERAPY

http://lymphedemapeople.com/wiki/doku.p ... herapy_cdt

At the bottom of each page are links for further information too.

I would also start now using a lotion like Lubriderm to help keep the skin soft and help prevent any cracking or chapping. Any little open area is like putting out a welcome mat for bacteria.

You don't necessarily have to sleep in a recliner, it's ok to sleep in a bed (more comfortable too).

Whatever you do, please do ignore this either though. It is imperative that you follow up or these complications can follow/

Complications of Lymphedema

http://www.lymphedemapeople.com/wiki/do ... lymphedema

Look forward to hearing from you!

Pat
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patoco
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