Recent visits to orthopedist for arthritic knees

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Recent visits to orthopedist for arthritic knees

Postby ppaesch » Sun Sep 10, 2006 1:07 pm

:) I saw the orthopedist about my knees. X-Rays showed bone-on-bone
on the right side, and almost there on the left side. Because of the lymphedema, surgery was not considered at this time because of the high
risk for infection and risk for delayed wound healing. Also, the Synvisc
injections were contraindicated because of the higher risk of edema and
hematoma formation. I did have both knees injected a week apart with
a steroid & both knees are significantly better, and I had no problem with
the lymphedema from the injections. I am encouraged!
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Postby patoco » Sun Sep 10, 2006 10:08 pm

Hi ppaesch :)

Good news :!: :!:

I hope the shots continue to work for you. There are quite a number of lymphers that have problem with the knees. Infact, there have been some good clinical indicating finally acknowledging how hard lymph is on the joints and it may add to/cause joint inflammation.

Pat
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Postby ppaesch » Mon Sep 11, 2006 11:43 am

:D Pat, thanks for your reply. You're right on target. My lymph therapist
also told me that the arthritis and resulting inflammation can trigger
increased edema. She felt it advisable to have the injections. I'm
glad I did. My name is also Pat.
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Arthritic Knees w/lymph legs

Postby charpunk » Mon Sep 11, 2006 10:50 pm

Hi ppaesch, This is my first post, but I had to write since you have the same problem as I do with the knees. When I went to the orthopedic he really had no idea I had lymphodema, just said I had to get the swelling down before knee surgery. It took me forever to finally have a correct diagnosis. I am having the wrappings now and my hose should be here this week. I am very interested to know what type of steroid your dr gave you?? I had the roostacrome (I am sure spelling is wrong..) 1 shot a week for 5 weeks in each knee. It lasted for about 2 months & then back to the way it was before the shots. How long has the steroid shots lasted so far? Were they very painful (as the ones I had were very painful]. I need relief. I also have never been told lymph was bad on the joints & inflammation. I read one of the posts from Memphis and he had indicated he kept his swelling down with diet and exercise?? What kind of diet and exercise?? I know I have lots of questions, but I have learned so much from the forums.
Thanks, Charpunk
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Arthritis of the knees and lymphedema

Postby ppaesch » Tue Sep 12, 2006 1:40 am

Hello Charpunk, I'm new to the forums myself, but agree that it's a great source for information. I had Hydrocortisone injections, one injection into
each knee. My injections were not really painful--just the needle stick and
then some pressure. My friend, who does not have lymphedema, also had
the injections you're speaking of and found them very painful also. I'm sorry that your relief lasted only two months. I just had my injections
recently (a couple weeks ago), so can't say yet how long the relief will
last, but I'm hopeful. I suppose the weight of the limbs add to the stress
on the knees. I'm glad that you've been diagnosed and have gone through the manual lymph drainage and wrapping. You say that your
compression stockings have been ordered. Will you also get the sleeves
to wear at nighttime (I wear Reidsleeves at night)? I wear Elvarex during
the day. About the diet and exercise, I only know that excessive sodium
can add to fluid retention and, when you went through the lymphedema
program, you probably learned exercises there. If not, your therapist
could advise you on this. I understand too the aquatic exercises chest
deep in a pool are excellent for lymphedema. There are also aquatic
exercises for arthritis available at the YMCA, so these would help both the
arthritis and the lymphedema. Perhaps the person in Tennessee who
mentioned the diet & exercise would have more suggestions. I wish you
well. Mine is secondary lymphedema from cancer treatment. Is yours
primary or secondary? I've been dealing with it for 20 years now. It's
an ongoing challenge, but can be kept under control. There is light at
the end of the tunnel!
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arthritic knees with lymphodema legs

Postby charpunk » Tue Sep 12, 2006 12:24 pm

Hi ppaesch,
Thanks so much for the information. They have ordered me Jovi Paks to wear at night. I am not familiar with them yet or the ones you wear. This is all new to me. I do know I am having custom flat woven hose as the regular circular woven hose cinch into my skin and are painful. So I just have to wait and see I guess. We are hoping my hose will come today or tomorrow. Also, after all this wrapping is over I am joining a water aerobic group a couple of miles from my house. I was doing this before the wrappings and felt much better with the arthritis doing the water aerobics. So I will be back at it. My therapist also said it is really great for the lymph because of the compression from the water. I am so glad the shots have helped you. I think I will ask my arthritis doctor about these shots & see what he says. The other shots were really a waste of time and pain and very expensive too. & at the time I never thought about them making the lymph worse.....Thanks again for the info and I hope to talk to you again soon.
Charpunk
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arthritic knees with lymph legs

Postby charpunk » Tue Sep 12, 2006 12:30 pm

Hi again,

I forgot to answer your question...I have secondary lymphodema caused by my hyeterectomy in 1993. legs started swelling soon after but at the time I never put two and two together. I recently have started going to a wonderful nurse practitioner who has lymph in her arm from breast cancer. She has helped me tremendously and she is wonderful. I don't know where I would be now without her. Before I went to several doctors that just said I needed a water pill..I think they just don't know about lymph and probably still don't. Then for a longtime we didn;t have anyone in my town that did lymph therapy..Then I found out about my therapist thru a friend and the rest is history.
Bye for now and take care.
Charpunk
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Postby ppaesch » Tue Sep 12, 2006 4:02 pm

:) You are on the road to success, Charpunk. Remember, you have
lymphedema, but lymphedema doesn't have you! Best wishes, Pat
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arthritic knees with lymph legs

Postby charpunk » Tue Sep 12, 2006 5:37 pm

Thanks so much, Pat. and thanks for the forums. I have learned so much from them.
Thanks again, Charpunk
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Sterois shots helping knees

Postby charpunk » Fri Nov 03, 2006 12:49 am

Hi PPaesch,

I am interested in hearing if the steroid shots are still helping your knees??

Thanks, Charpunk
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Steroid Shots for Arthritic Knees

Postby ppaesch » Fri Nov 03, 2006 3:33 am

Charpunk, I had both knees injected in August 2006. After about two weeks, I was pleased with the improvement. Both gradually started
hurting again, the close to total relief lasting about a month, and
then gradual decline. My next appt. for steroid injections is Nov. 20th,
and I intend to have them injected again, as they're now hurting quite
a bit. I felt it worthwhile. Hope this answers your question. All the best
to you, Pat Paesch[/i]
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injections for knees

Postby charpunk » Fri Nov 03, 2006 1:08 pm

Hi Pat,

Thanks for the info. Are the shots very painful?? I have had the others that were so painful all I could do was cry and then the relief didn't last very long at all. I am so glad they have helped you.
Thanks again,
Charpunk/Rhonda
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Arthritic knees

Postby ppaesch » Fri Nov 03, 2006 8:49 pm

Hello Rhonda,

The injections weren't bad at all. One feels the initial stick and then some
pressure, but I wouldn't say it was painful. I know what you mean about
the other shots, such as Synvisc, hurting because a friend of mine got those and said they were very painful. Sometime in the past, she had also
had steroid injections and said those weren't bad. If you decide to go ahead with it, I hope the discomfort is minimal and the result favorable.
Lymphedema is difficult enough, so if I can get some help for the arthritis, I'm all for it!

Pat
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shots for arthritic knees

Postby charpunk » Sat Nov 04, 2006 12:28 am

Hi Pat,

Yes, anything that'll help I usually try. So I will let you know what happens when I go and if it does help me. I am ready for less pain for sure.
Thanks, Rhonda
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Arthritic knees

Postby ppaesch » Sat Nov 04, 2006 2:58 am

Yes, Rhonda, we lymphedema folks have to stick together -- there's not
an awful lot of support out there, is there? I'm thankful for this link with
others who share the same challenges. I had hoped that the knee shots
would have lasted the entire three months, but no such luck. I'm ready
once again to have them injected. Best of luck!

Pat
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Postby silkie » Sat Nov 04, 2006 12:21 pm

Hi Rhonda Hi Pat

Have been reading you postings with great interest

I will never be quite sure if my mom had lymph i suspect she did

or lipedema She had terrible knee problems and the injections

did at first help but i remember she could only have so many in a certain
period then had to stop for a long time

She also had what we cald gold treatment im not exactly sure what they did it was into the limbs that was terrific


i know this sounds strange but the new beds /mattresses there Called Tempra over here there what they used at nassa well

i have three ladies with lymph an knee problemds that swear by these beds the relief they have got

Thought it worth a mention

Hugsssssssssssssssssssss

Silksxxxxxxxxxxxxxxxxxxxxx
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arthritic knees

Postby charpunk » Sat Nov 04, 2006 1:30 pm

Hi Silks,
I will check out the mattresses for sure. Thanks for the info.
Rhonda
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Postby ppaesch » Sat Nov 04, 2006 4:39 pm

Hi Silks,

So nice of you to help us out with your suggestions. Will definitely bring
these up when I go for my injections on Nov. 20th. By the way, my mom
was from Hitchin, England. I have a cousin in Peterborough.

Many thanks,
Pat
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