Massive Lymphedema Lump On My Leg...Help!

leg pain, leg bleeding, Farrow Wraps, Compression Stockings, cold feet, Reid Sleeve, Restless Leg Syndrome, Leg Cramps, Compression Pumps, Shoes, lower limb lymphedema, secondary leg lymphedema, leg wrapping, Cold Feet, Compression socks, nerve pain, self leg massage, right leg lymphedema

Moderators: Cassie, patoco, Birdwatcher, Senior Moderators

Massive Lymphedema Lump On My Leg...Help!

Postby KnockOut » Mon Mar 28, 2011 10:48 pm

Here's my story. I had weight loss surgery in July (my starting weight was 557) and have lost 160 pounds! I have a VERY large lump on the inside of my right thigh that I always thought was just cellulite. However, after researching online I realized it was a lymphatic pseudotumor. When I went through the procedure of getting the surgery I visited a lymphedema specialist who told me that I would have to do "a few treatments" and that combined with weight loss would "get me back to normal in no time." Well a few months after the surgery when I had fully recovered I went back and spoke with a different therapist. She basically told me I'd have to come in and get wrapped and massaged for 1 1/2 hrs 5 days a week for anywhere from 2 weeks to 6 months, in which case I wouldn't be able to wear a shoe or pants, and then we would move into the maintenance phase. Well there's a multitude of problems with that solution...

A) My job would never allow that kind of time off work

B) My co-pay for this place is $50 per visit, so $250 a week is not possible in any way whatsoever

I left there feeling more hopeless and lost than I've ever felt. I just got married to a beautiful woman in November and this thing on my leg is the only thing preventing me from having an idyllic life.

I saw the episode of that show Heavy where that guy had his lump (which was very similar to mine) removed and it gave me a little hope, but a lot of the online research I've done about surgical removal seems to recommend against it. I need some answers please.


Here are a couple of pics of the lump....

This is a frontal view with shorts on

Image

And this is taken from the side while I'm sitting in a chair

Image
KnockOut
 
Posts: 10
Joined: Fri May 14, 2010 6:42 am

Return to Leg Lymphedema

Who is online

Users browsing this forum: No registered users and 6 guests