Hi there Furry
Was so happy to come home from the doctor and see you had joined us...but not happy to hear how bad of a time you've had...not good
It is amazing, in the 21st century medical world that lymphedema is still only treatable/managable and not curable.
The good thing though is that with the current research, I truely believe a cure is on the horizon.
I'm not surprised to hear about the Complex Regional Pain Syndrome as I have actually know it to happen to other lymphers. Somehow the bacterial infections seem to alter our entire metablosim, the CRPS is probably due to damage done to the nerves from the cellulitis.
Those leaky spots, the fluid is called lymphorrhea and it is important to try and stop that leakage as the fluid will eventually degrade surrounding skin tissue and before you know it, you have a giant wound.
The fibrosis is also treatable by the use of what we call "chips." These are pieces of foam rubber that are placed over the hardened areas, underneath the compression bandages.
Let me give you some pages of info that will really help on these things.
I really need to apologize too for not writing back from your email, it came at a crazy time. Had bi-lateral lung surgery, with catheters in both lungs now and all kinds of other complications from this wonderful lymphedema/lymphoma combination I've been wrestling with.
But I am sooooooo glad to have you join us. When you go through these pages, if you have any questions just holler and we'll be here
http://www.lymphedemapeople.com/wiki/do ... lymphedema
How to Treat a Lymphedema Wound
http://www.lymphedemapeople.com/wiki/do ... dema_wound
http://www.lymphedemapeople.com/thesite ... brosis.htm
http://www.lymphedemapeople.com/thesite ... orrhea.htm
big hug to ya too