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Welcome Family
Welcome to all our family and friends. Patients, families, caregivers, therapists, nurses, doctors, anyone with a concern for and interest in lymphedema is most welcome!!!
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

138 Topics

674 Posts

Last post by Monica
Thu Sep 02, 2010 9:04 am
MEMBERSHIP RULES IN NEW FORUMS
***BEFORE YOU JOIN PLEASE READ***

Due to the horrendous amount of spam, we have gone to manually approved membership.

You will be notified via email upon approval.
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

5 Topics

31 Posts

Last post by SueB
Sun Mar 01, 2009 10:19 pm
Lymphedema People Administrative, Management
Includes listing and links to our other websites, blogs and support groups.
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

15 Topics

41 Posts

Last post by Brad
Wed May 26, 2010 10:36 am
Registry of Lymphedema Doctors
United States and International
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

2 Topics

16 Posts

Last post by patoco
Tue Jun 15, 2010 8:32 am
Lighthouse Lymphedema Network
Information about the organization, events and more!
Moderators: Cassie, Birdwatcher, jenjay, Senior Moderators

13 Topics

18 Posts

Last post by patoco
Mon May 31, 2010 9:13 am
Lymphedema Events Calender
A special place for members to share and find out about events related to lymphedema. If you know of an event, please share with us.
Moderators: Cassie, Birdwatcher, jenjay, Senior Moderators

17 Topics

22 Posts

Last post by mirrorless
Wed Aug 04, 2010 8:54 pm
Lymphedema Personal stories
genetics clinic, leaking legs, EMG, nerve conductions, phantom liquid feeling, chronic fatigue, chills, malaise, ankle pain, swollen feet, transient lymphedema, full body lymphedema, tissue hardness, dystonia, painful boil
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

198 Topics

889 Posts

Last post by annelicious
Thu Sep 02, 2010 10:24 am
Lymphedema Family Talk
trusting doctors, stomach swelling, compression garment fitting, perception of lymphedema, anger, shoulders, shoulder blades, pantyhose, benadryl, TB test, shaking leg
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

71 Topics

369 Posts

Last post by patoco
Tue Aug 24, 2010 11:17 am
Our Daily Lives with Lymphedema
lymphatic fault, carpal tunnel, Sesamoiditis, Tendonitis in Foot, hot tubs, spas, jacuzzi, mattress toppers, cold weather, daily lymphedema management, Bandage Wrapping, Wrapping and Rolling
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

105 Topics

416 Posts

Last post by rosegardener
Wed Sep 01, 2010 10:06 am
Lymphedema Information
scar lymphedema, upper limb swelling, sirolimus-treated patients, limb volume, Massive Localized Lymphedema, Toxoplasmosis research papers, surgery pain, tattoos, hysterectomy, lymphedema side effects, causes of lymphedema, head lymphedema, eyelid lymphedema, insect bites, rosacea, elderly lymphedema, bioimpedence
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

52 Topics

126 Posts

Last post by blubrdfrend
Thu Aug 26, 2010 2:08 pm
Children and Lymphedema
Infants, Babies, Toddlers, Teens with Lymphedema, lymphedema chronic arthritis, pediatric lymphedema, debulking surgery children, arm and leg swelling in babies, daily care
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

24 Topics

37 Posts

Last post by patoco
Mon May 31, 2010 8:48 am
Young People with Lymphedema
Special Section for Ages 15 through 35. Late Teens through young adults, clothes, toe leakage, study, work, shoes
Moderators: Cassie, Birdwatcher, jenjay, blush

21 Topics

89 Posts

Last post by patoco
Tue Aug 17, 2010 2:39 pm
Leg Lymphedema
leg pain, leg bleeding, Farrow Wraps, Compression Stockings, cold feet, Reid Sleeve, Restless Leg Syndrome, Leg Cramps, Compression Pumps, Shoes, lower limb lymphedema, secondary leg lymphedema, leg wrapping, Cold Feet, Compression socks, nerve pain, self leg massage, right leg lymphedema
Moderators: Cassie, patoco, Birdwatcher, Senior Moderators

163 Topics

651 Posts

Last post by evelyn
Fri Aug 20, 2010 9:52 am
Related Medical Conditions
Diabetes, Prader Willi Syndrome, Buerger's Disease, Clark's Syndrome, Axillary Web Syndrome, Post Thrombotic Syndrome, Sed Rate, Chronic Myofascial Pain, Kawasaki Disease, Duncan's Syndrome, pulmonary edema, thoracentesis, pleurodesis, lung fluid, Lymphangioleiomyomatosis (LAM), Restless Leg Syndrome, Inflammation, Lipomas, Crohn's Disease, Panniculitis, Hidradenitis Suppurativa, Phelan-McDermid Syndrome - 22q13 deletion, lymphoproliferative disorders, blood tests. amniotic band syndrome, nerve damage, hives, leg edema, omphalocele, Podoconiosis
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

45 Topics

107 Posts

Last post by Hoopa7p
Mon Aug 30, 2010 4:10 pm
Complications of Lymphedema
swollen back, rash, Lymph node fibrosclerosis, Immunodificient Limb, DVT, venous insufficiency, inflammation, inflammatory response, bone fractures
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

18 Topics

49 Posts

Last post by Shirl
Sun Aug 22, 2010 1:06 am
Lymphedema Infections, Cellulitis, lymphangitis
delayed breast cellulitis, recurrent cellulitis, recurrent erysipelas, soft tissue infections, Dermatolymphangioadenitis (DLA), Flesh Eating Bacteria, Bacterial Infections, Strep Infections, bacterial cellulitis, prophylactic antibiotics
Moderators: patoco, Birdwatcher, jenjay, Senior Moderators

39 Topics

70 Posts

Last post by blubrdfrend
Fri Aug 27, 2010 8:03 pm
Treatment for Lymphedema
laser workshops, physiatrists, Diaphragmatic Breathing, daflon 500, coumarin powder, nordic walking, lymphocyte injection, essential oils, massagers, ball massage, heat, Lymphomyosot, Self Massage Therapy, Elastin Ampules, Lymphobiology, leg drainage, naturopathy, ace bandages, Craniosacral Therapy, lymph node transplants, Lymphatic-venous anastomosis, vein grafting, lymph vessel transplantation, surgery scrotal lymphedema, shoes
Moderators: patoco, Birdwatcher, jenjay, Senior Moderators

96 Topics

281 Posts

Last post by adamstarr
Sat Aug 21, 2010 12:24 am
Meet the Therapist
A special forum where you can have direct chat with a certified lymphedema therapist for questions regarding your treatment and daily management of lymphedema. Tom Kincheloe is our moderator for this forum.
Moderators: Cassie, patoco, Birdwatcher, jenjay, tkincheloe, Senior Moderators

5 Topics

27 Posts

Last post by patoco
Sat Mar 27, 2010 8:06 am
Therapists, Clinics, Hospitals
Certified Lymphedema Therapists in the United States, Complex Lymphatic Therapy Courses, Massage Therapy Definitions by State Boards, LANA, Choosing a Lymphedema Therapist, Resources for Locating Lymphedema Treatment, in patient treatment
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

13 Topics

28 Posts

Last post by patoco
Wed Sep 01, 2010 11:41 am
Skin care, conditions, complications
Diseases, Fungal Infections, treatment, health, Cuts, Scrapes, Blisters, Skin Hygiene, Shingles, Papillomatosis cutis carcinoides, Tea Tree Oil, Psoriasis, Dry Skin, Lymphomatoid Papulosis, Cutis Marmorata, Warts and Verrucas, Bug Bite Protection, laser hair removal, eczema, skin plaque, nodules, psoriasis, nail care, Acroangiodermatitis
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

29 Topics

53 Posts

Last post by patoco
Wed Jun 02, 2010 10:00 am
Lymphedema Wounds
Weeping spots, lymphorrhea, Cuts, Scrapes, Stitches, Blisters, Silver Dressings, Compression therapy, wound bandaging, wound infections
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

15 Topics

18 Posts

Last post by patoco
Tue Sep 15, 2009 8:00 am
Lymphedema Lifestyles
Exercises, Diets, Nutrition, Vitamins, Health, Coping, gardening, herbal remedies, truncal lymphedema, chronic illness, breathing, stress, arm exercises, leg exercises, water exercises, low impact exercises, weight training, chair exercises, resistance exercises, stretch exercises, lymphatic drainage, detox patches
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

44 Topics

115 Posts

Last post by Queenie EJC
Thu Jun 17, 2010 9:48 am
Lymphedema and Cancer Information
Cutaneous B-Cell Lymphoma and Lymphedema, Cutaneous T-cell lymphoma and Lymphedema, Hodgkins Lymphoma, Kidney and Renal Cancer, Cervical Cancer, Renal Cell Carcinoma, Breast Cancer, Ovarian Cancer, Testicular, arm swelling, Skin Cancer, angiosarcoma, kaposi's sarcoma, gallium scan, axillary node dissection, gynecological cancer, axillary reverse mapping, lymphatic cancers, inguinal node dissection, cancer treatment, Complete decongestive therapy for arm lymphedema, lymphedema therapy, intensive decongestive physiotherapy, breast cancer related lymphedema, upper limb lymphedema
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

75 Topics

156 Posts

Last post by patoco
Wed Jun 02, 2010 9:51 am
Lymphedema Articles
lymphatic mapping, Fluorescence lymphography, lymphatic alterations, lymphatic vessel abnormalities, clinical trials, lymphatic capillary regeneration, orbital lymphatics, lymph fluid physiology, lymph fluid, cutaneous periarteritis nodosa, lymph detox, Lymphatic Vessel Hyperplasia, puffy hand syndrome, lymphatic valves, lymph flow, lymphedema roadshow, Thoracic lymphatics, Abdominal Lymphatics
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

36 Topics

48 Posts

Last post by patoco
Tue Jun 08, 2010 3:09 am
Advocacy and Governmental Resources
advocacy news, Medicare coverage of Lymphedema Garments, Bandages and Supplies, ssdi, new york lymphedema bill, medicare drug plan, medicare therapy caps, Access to Physical Medicine and Rehabilitation Services Act, medicare Outpatient Therapy Caps Exception Process 2007, Lymphedema Stakeholders, Prosthetics, Orthotics, long term disability, Georgia Medical, Nursing and Therapy Schools, Georgia lymphedema resolution, lymphatic disease awareness, insurance companies, resource links, Status of state bills for lymphedema treatment, Lymphedema Awareness Day - Georgia, Consumer Actions Websites, Health Policy Issues, How to lobby, National institutes health, Patient advocacy, Federal government, state government resources
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

47 Topics

51 Posts

Last post by patoco
Fri Apr 09, 2010 10:38 am
Genetics, Research, Lymphangiogenesis, Angiogenesis
Lymphangiogenic Gene Therapy, yellow nail syndrome, lymphatic vascular development, Intratumoral lymphatics, peritumoral lymphatics, stem cell research, Angiopoietins, VEGF, PIGF, FOXC1, FOXC2, Lymphatic Insufficiency. SOX18, lymphatic hyperplasia, Molecular lymphangiogenesis, PROX1, FLT3, Telangiectasia, Lymphatic endothelial cells, adult vasculogenesis, LYVE1
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

48 Topics

51 Posts

Last post by patoco
Sat May 29, 2010 9:04 am
Organizations, Support Groups, Vendors
Israel Lymphedema Association, Telesto Medtech, Compression Garments, international websites, lymphedema links, Letter of Medical Necessity, online medical sources, suppliers, insurance companies, lymphedema products
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

38 Topics

44 Posts

Last post by patoco
Fri Jun 04, 2010 11:46 pm
Lymphedema Glossary
Terms, Definitions for the lymphatic system and lymphatic disorders
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

2 Topics

7 Posts

Last post by patoco
Thu Jul 09, 2009 9:09 am
Lymphatic Filariasis
Wuchereria bancrofti vespid, Immune response, Serum immune complexes diagnosis, Diethylcarbamazine (DEC), Wolbachia in filarial parasites, Interdigital skin lesions, Urban Filariasis, Doxycycline, mass drug administration program, Filarial Lymphedema Care, Detection of filarial parasites, Albendazole, research abstracts
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

46 Topics

49 Posts

Last post by patoco
Thu Jan 21, 2010 10:47 am
Lipedema
lipedema, lipoedema, lipodema, lymph system, lymphatic disturbances, lipedema patient stories, lipedema blogs, resources, treatments, information pages, painful fat syndrome
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

24 Topics

30 Posts

Last post by patoco
Thu Jan 21, 2010 10:17 am
Lymphangiectasia
Congenital Pulmonary Lymphangiectasia, Gastrointestinal lymphangiectasia, Wireless capsule endoscopy, Antiplasmin Therapy, Medium Chain Triglycerides, Octreotide Treatment, cutaneous lymphangiectasia, primary pulmonary lymphangiectasia, skin lymphangiectasia, support group resources, haemorrhagica conjunctivae, incontinentia pigmenti, Hemihypertrophy, Impaired neutrophil function, dilated lymphatics, eye lymphangiectasia, kidney lymphangiectasia, autologous blood therapy, protein-losing gastroenteropathy, double balloon enteroscopy, malabsorption syndromes, Osteomalacia
Moderators: Cassie, patoco, Birdwatcher, jenjay, Senior Moderators

40 Topics

41 Posts

Last post by patoco
Sat May 29, 2010 10:10 am
Linfedema
Glosario de Linfedema, Enfermedad de Milroy, Asociaciones, Drenaje manual, Niños con Linfedema, Mi vida con el linfoma y linfedema, Biopsia del Nódulo Linfático Centinela, Síndrome de Stewart-Treves, Síndrome de Meige, Hinchazón del brazo, hinchazón de la pierna, Síndrome de Melkersson Rossenthal, Drenaje linfático manual, Síndrome de Meige, El Sistema Linfático, Genetica del Linfedema, Biopsia de los ganglios linfáticos, Linfadenitis, linfangitis, Infecciones del linfedema, Linfedema y Cáncer, Linfedema Hereditario, Sindromes Linfoproliferativos, La Elefantiasis, Síndrome de distiquiasis, Linfangioleiomiomatosis, Síndrome de Klinefelter, Linfogranuloma venéreo, Dolor Cronico, Linfedema postmastectomía, Linfangiograma, Tratamiento quirúrgico, Linfadenitis, Celulitis, Linfangioma, Higroma Quistico, Antibioticos, Infecciones, Linfedema Therapists, Tratamiento Clinicos - Lymphedema Spanish - Spain, Mexico, Centra and South America
Moderators: Cassie, patoco, Birdwatcher, Senior Moderators

72 Topics

84 Posts

Last post by patoco
Thu Jul 09, 2009 9:12 am
Lymphoedème
Glossaire Lymphoedème, nouvellement diagnostiqué, Ma vie avec le lymphome et le Lymphoedème, Fibros, Bandage enveloppant, Lymphoedème pédiatrique, lymphoscintigraphie, Drainage manuel de lymphoedème, La Filariose Lymphatique, Traitement, Prévention de Cellulites, Erysipèle, Lymphangite, Lymphedema French (France)
Moderators: Cassie, patoco, Birdwatcher, Senior Moderators

27 Topics

29 Posts

Last post by patoco
Sat Jul 05, 2008 7:28 am
Lymphoedema

Moderators: Cassie, patoco, Birdwatcher, Senior Moderators

28 Topics

31 Posts

Last post by patoco
Sat Oct 17, 2009 6:05 am
Antibiotic Glossary
Terms and Definitions for Antibiotics
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

2 Posts

Last post by patoco
Thu Oct 08, 2009 10:48 am
Blood Glossary
Blood and Hematology terms and definitions
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

2 Posts

Last post by patoco
Thu Oct 08, 2009 10:47 am
Clinical Trials Glossary
Words, Definitions, Terms
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

2 Posts

Last post by patoco
Thu Oct 08, 2009 10:46 am
Cancer Glossary
Definition and Terms
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

2 Posts

Last post by patoco
Thu Oct 08, 2009 10:46 am
Edema Glossary
Terms and Definitions for Edema and Conditions Related to Swelling
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

2 Posts

Last post by patoco
Thu Oct 08, 2009 10:45 am
Diet Glossary
Terms and Definitions
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

2 Posts

Last post by patoco
Thu Oct 08, 2009 10:45 am
Genetics Glossary
Genes, Chromosomes and Related Terms
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

4 Posts

Last post by patoco
Sun Feb 28, 2010 8:58 am
Immune System Glossary
Words, Terms, Definitions
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

2 Posts

Last post by patoco
Thu Oct 08, 2009 10:44 am
Skin Glossary
Words, Terms and Definitions
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

4 Posts

Last post by patoco
Fri Feb 26, 2010 9:57 am
Wound Glossary
Wound Terms, Definitions
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

2 Posts

Last post by patoco
Thu Oct 08, 2009 10:43 am
Vitamin Glossary
Vitamins, Minerals, Amino Acids, Nutrients
Moderators: Cassie, Birdwatcher, Senior Moderators

1 Topics

4 Posts

Last post by patoco
Wed Feb 24, 2010 10:30 am

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